#LongCovid since March 2020. Art nature science. Mostly here for #LongCovid & adjacent community & topics.
@mhmwales.bsky.social
Mental Health Matters Wales supports mental wellbeing through advocacy, counselling & community services. Donate at www.mhmwales.org.uk Connect with us https://linktr.ee/mhmwales
@lifeaccrdingliz.bsky.social
#chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.
@gabbyoglesby.bsky.social
Activist. Cherokee. Artist & Technologist (for good) Disability Advocate. Neurodivergent Chronic Illness girlie 📍SF/DC Former: @WhoSayInc @JonasBrothers @TRADESHIFT @AOL @UMG @FIDM #Startups https://linktr.ee/gabbyoglesby EDS MCAS POTS AuDHD🤍LGBTQIA+
@penthewriter.bsky.social
Novelist (Bella Books & Nine Star Press) and writer. This is my happy place. Find photos of cats & Cornwall, good news, funny things, snippets & updates of writing, and always ALT TEXT! #writersky No alt text, no follow. http://penelopefriday.com
@chronicillnessfc.bsky.social
An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! 📍SF #EDS #MCAS #POTS #MECFS #PMDD #AuDHD #PTSD Mental health advocate, indigenous #LGBTQIA+🍉 Sign up at the form below🤍✨
@renegaderesearch.bsky.social
Renegade Research (RR) is a non-profit 501c3 decentralized organization pioneering patient and caregiver led research focused on ME/CFS and LongCovid... Website: https://renegade-research.org 💙 Project: @remissionbiome.bsky.social
@topazstudioscom.bsky.social
Grandma 🪷 Retired • 3 #chronic illnesses since 2020 #ESKD #longCOVID #immunocompromised #pericarditis #myocarditis 💙 Volunteer @renegaderesearch.bsky.social 🥩 #carnivore
@ulfdahle.bsky.social
Specialist Director Norwegian Institute of Public Health. Personal posts, not employer’s views. https://orcid.org/0000-0001-5909-7917
@sarahoc1.bsky.social
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
@jceoltasmith.bsky.social
Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@coresinai.bsky.social
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
@antimicrobial.bsky.social
AMR Antimicrobial Resistance Fernanda C. Petersen, Professor, University of Oslo and Ulf R. Dahle, Specialist Director, Norwegian Institute of Public Health
@hildabast.bsky.social
Scientist (PhD; she/her), writer, cartoonist. Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress.com/ Mastodon enthusiast: @hildabast@mastodon.online
@saskiapopescu.bsky.social
Infectious disease epidemiologist - RAND global health security policy & UMB Asst Professor working in pandemic prep, biosurveillance, One Health, AMR, BW & biosecurity. ELBI & CFR ☣️ Biopreparedness & biothreat guru - movie aficionado. Views=my own
@duncanrobertson.bsky.social
Policy & Strategy Analytics academic at Loughborough University; Member, Independent SAGE; Fellow, St Catherine's College, Oxford.
@firefoxx66.bsky.social
Die Virenjägerin! 🏹🧬! Using programming & phylogenetics, I study & track viruses. Co-developer of Nextstrain, based at Swiss TPH & Uni Basel. Founder of the orig SC2 variant-tracking website, CoVariants.org I like 🐈 & 🛫 @firefoxx66@mstdn.science
@jburnmurdoch.ft.com
Columnist and chief data reporter the Financial Times | Stories, stats & scatterplots | john.burn-murdoch@ft.com 📝 ft.com/jbm
@nicole-lee-sch.bsky.social
Historian of disability, early America, and the 19th century. Assistant Prof at Kean University Views mine, not my employer's
@phicd.bsky.social
Another Australian (Cypriot & Greek) designer existing in Berlin. Been to hell & back thanks to the pandemic. End #prescribedharm #longcovid #MECFS check @sophsoph.psd & @berlin_buyers_club on the gram
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@yogafogie.bsky.social
DMV native. COVID long hauler. Patient-Led Research Collaborative.
@uselesspriest.bsky.social
Long COVID, mild, since Apr 2022 ME / Long COVID diagnosed May 2024
@heatherhogan.bsky.social
your friendly neighborhood soft butch // @thesicktimes.bsky.social engagement editor // http://theheatherhogan.substack.com // #LongCOVID
@spichaksimon.bsky.social
Neuroscience MSc 🦔 dad Founded Resolvve Inc to make therapy affordable for students Science, health and tech journalist published in Being Patient, NYT, The Guardian's Scientific Observer, The Sick Times, and The Daily Beast
@sweetsciencewriter.bsky.social
Science journalist, with bylines in Nature, National Geographic, the New York Times, the Washington Post and the Houston Chronicle. I cover a mixture of health topics, with a focus on conditions such as autism, ADHD, ME/CFS, POTS and Long COVID.
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@phillyphile215.bsky.social
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
@curelongcovid.bsky.social
Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
@covid-wastewater.bsky.social
Reporting US CDC #COVID wastewater data every Saturday and Monday. This bot is not affiliated with the CDC. 📈 https://www.cdc.gov/nwss/rv/COVID19-currentlevels.html 💾 https://github.com/EricWVGG/covid-wastewater-bluesky 🧑💻 @wvgg.co
@meighanstone.bsky.social
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@jeremyfaust.bsky.social
ER doctor at Brigham and Women's in Boston, Harvard Medical School. Words in: NY Times, WaPo, Atlantic, Slate, CNN. I'm also "editor-in-chief" of MedPage Today and write "Inside Medicine" on Substack: https://insidemedicine.substack.com/subscribe
@donata1608.bsky.social
Nach EBV Reaktivierung und #longcovid an #MECFS erkrankt. https://x.com/donata1608?s=21&t=F8uKwluVNekKRdF5TBO1Pg
@sepfieldpatient.bsky.social
Chronically ill (CVID, adrenal insufficiency, autoimmune diseases, and the rest), sometimes a maker of things…
@seekingboston.bsky.social
Ty. Former marathoner & triathlete that raced with Liam. Disabled w/ Long Covid and now stage IV cancer. Advocate. Artist. I make satire long Covid advocacy videos via Man in the Robe Productions. Love my wife, kids, & family. Seekingbostonmarathon.com
@emmawooller.bsky.social
@mediumwhite.bsky.social
Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
@uoftpandemics.bsky.social
A University of Toronto academic centre dedicated to pandemic and public health emergency research, training and knowledge mobilization, focusing on public health, epidemiology, health policy, and the social sciences.
@ace9801.bsky.social
ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@scholenveilig.bsky.social
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com 🌍The Netherlands
@elizajody.bsky.social
Social justice, science, climate & equality. Stand up for democracy! NO DM Here for latest COVID info 💖 Bewitched ✨ Random acts of kindness 🗝 to happiness Mel Torme, Jamiroquai, Monkey House, Harry Connick Jr, Cake Ceraunophile. She/her.
@lauravictorine.bsky.social
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE