Laura de Vries
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@douggreigyyc.bsky.social
Caring for loved one with complex infection-associated chronic illness incl. #MEcfs. Decades-late biomedical research funding means no end in sight. #Calgary #YYC, #Alberta, 🇨🇦. #Treaty7. #CanadaSky
@doc4care.bsky.social
Recovered from Long Covid in 2022 after 2yrs. Metformin, TLR4 quieting, microclot busting, NRF2 promoting, HIF1a limiting approach. Aiming to understand more about LC/MECFS and happy to try to help others. Medical Director for Renegade Research
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@diktgymnasiet.bsky.social
Visual Artist and Writer #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #VisualPoetry #PostdigitalPoetry #PoeticWeb http://www.diktgymnasiet.com
@davidjoffe64.bsky.social
Respiratory and Sleep Medicine Neurobiology and Long Cövid WHN Long Covid Working Group Vice Chair
@remediescounseling.bsky.social
Remedies Counseling: Counselor only for people living w chronic illness - #MEcfs, #LongCOVID, vx injury, MCS/ES, #Lyme, #HIV, etc. https://remediescounseling.com/ I am living w MEcfs and HIV. Competed 3x at triathlon world champs.
@ednamacnamara.bsky.social
💙 M.E.Carer of son aged 31, ME for 12yrs 💙. RaisingAwareness for #PwME. #Carers #LCovid #greatestMEdicalscandal X Edna, M.E.Advocate 🇨🇮 https://www.irishexaminer.com/news/arid-40218716.html http://www.idonate.ie/aMothersWalkforMECFSresearch
@nessau.bsky.social
Vegetation ecologist & research laboratory manager - on pause (ME / LC). Also: fire behaviour, libraries, cultural preservation, music, guinea pigs, TNR cats, sunsets. AUS
@anneinayrshire.bsky.social
Long term living with ME (over 30 yrs) Have a lot of crashes but Still trying Still hoping Largs, Scotland
@olliecornes.bsky.social
Living in London with a Hungarian, two Russian Blue cats, #MEcfs and a healthy obsession with the art of Keith Haring. 🇬🇧🇪🇺🏳️🌈🇺🇦♥️
@tracyme.bsky.social
Neurodiverse socialist. Love history, science, nature and creativity. Medically retired biomedical research associate with severe ME
@fordski.bsky.social
Retired Canadian currently living in Mexico. Mostly home-bound and bed-bound with Long Covid since mid 2022.
@damesa.bsky.social
Long Covid sufferer since 2020. #FBLC Will mostly be banging on about #Covid and #LongCovid and criticising governments for their diabolical public health policies. #CleanAir https://petition.parliament.uk/petitions/700304
@trans4m8tion.bsky.social
Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS Mastodon: @_trans4m8tion@zeroes.ca
@monzamayhem.bsky.social
Mother of child with ME/CFS; trying to create a life for him while waiting for answers from medical research. My oldest is a wildland firefighter. I post primarily about public health, ME/CFS, Long Covid, and wildland firefighting.
@macanders.bsky.social
Author of several novels | ME #pwme | https://henryandersonbooks.com
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@clausernst.bsky.social
https://clausernst.com/mecfs-long-covid-overlay/ Moderate Long Covid since "mild" SARS-CoV-2 infection in Jan. 2021
@sickbound.bsky.social
Sick Bound: Life from bed with ME/CFS and Long COVID. A blog by Rosemary Harper. Coming soon!
@maaikeverbruggen.bsky.social
PhD Researcher Nederbelg in Brussel ☞ History & the Future║Emerging Technologies║Arms Control║Military Innovation║Environment║Bikes and Trains║Europe║Art on long term sick leave, so don't expect anything NL/EN
@osaca.bsky.social
https://twitter.com/Osaca_ME Life on pause due to Long Covid and ME/CFS-advocate and patient
@craftymissb.bsky.social
Politically Adrift, Crafter, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs. https://craftymissbcrafts.etsy.com
@andreabarrett.bsky.social
Campaigner, Patient Advocate & Artist. Volunteer w/ NHSBT CTAG, CVF, PTHOTA. Founder: Clean Air Hampshire. Posts on: Disability Justice, gardening, Transplant Life, Clinical Vulnerability, cats, #CleanAir, Long Covid & Neurodivergence (AuDHD).😷💊🎗💗💜💙🇬🇧🇦🇹🇮🇪🐈🌱🍂
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@leopardgizmo.bsky.social
Psych Clinician (30yrs+) practices interpersonal neurobiology, rinzai zen, silversmithing. #Lupus, #Bronchiastasis & #LongCovid Passionate about climate change, public health, women’s rights, climate, birds of all sorts — and REASON. INTP
@incognita143.bsky.social
☮️ COVID-informed Anti-fascist Anti-genocide Anti-privatization of healthcare and education Ontario Lighter interests - music, books, films, tv shows, food Elbows up!
@hubbubhullabaloo.bsky.social
I’m a lover of democracy and a lemon achar addict 🍋. Reader of medical literature pertaining to chronic illness. 📖 Fund Long Covid and ME/CFS research! 🔬
@paulfrommableton.bsky.social
Interested in health, economics and politics. Looking for sources of information I can trust.
@davidepike.bsky.social
Teaching. Geography. Urban Planning & Design. Geosciences. Biological Sciences. Climate. Anti-fascism. Anti-racism. Anti-ignorance. Music. Art. History. Basset Hounds. Bicycles. Lichen. Cryptobiotic soil crusts. Pandemics. Books. Reading. Learning.
@ace9801.bsky.social
ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@nofutureforme.bsky.social
#EM encéphalomyélite myalgique (c'est pas une maladie rare mais elle n'est pas enseignée en France) #MECFS #pwME #POTS
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
@rnussbaum11.bsky.social
writer, journalist, joker, acab, mph student. #longcovid, #environmentalhealth, #publichealth, nonsequitors. shitpost and comedy lover. she/her, @rnussbaum11 on twitter
@emilyrj.bsky.social
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news, media and accessibility design consults. @emily_rj on Twitter #CripTheVote #Iowa ♿️🏳️🌈📚
@michaelnobbs.bsky.social
Artist and tea drinker living on a hillside in Wales. Learning to live a gentle creative life and encouraging others to do the same. Diagnosed with #MECFS in 1997. www.patreon.com/gogently https://linktr.ee/michaelnobbs ✍️🧶
@miketjohn.bsky.social
🏴🇬🇧🇪🇺 UK. Retired programmer Interests: Cats, tech, falafel, cake, London Playing trombone (big band, brass band) Classical music (particularly Mahler) Organ music (Bach, Buxtehude) Long COVID sufferer Ambition: World sanity
@pricklywave.bsky.social
@torres-amy.bsky.social
Long Covid pediatric advocate/parent/caregiver. #CovidisAirborne #LongCovidKids #pwME Hate has no home here. A life long reader, a sometimes baker and a new gardener. Hospitality is in my blood, kindness too. Views are my own.
@jennannemiller.bsky.social
#MECFS #MEPOTS #MEPEM #MillionsMissing #MEWarrior #Disability - live it daily #IACC #PAIS #MillionsMoreMissing #LongCovid FDR Liberal #StopProject2025 💙💙💙🌊 🌈🩵🩵🤍🩷🩷 #Equality #AmericaIsAntifa #Resist 💙💙💙💙💙💙💙💙me/it💙💙💙💙💙💙💙💙