@katesattler.bsky.social
Music: https://sweetfreeze.bandcamp.com/ Radio show: SongsthatShapedMe.com She/her 😷
@joissummers.bsky.social
Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid. #FBPE #FBLC #PWLC
@pillowwriters.bsky.social
Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
@skittlydoo.bsky.social
Live in uk, Love to eat cake😜travel,volunteer with animal rescue. I take photos of everything I see just for fun 📸
@nickyproctor.bsky.social
New here... Writing up my PhD in coach learning and development. Love learning, family, ancestry and tolerance. Campaigning for better healthcare for ME #Biggest Medical Scandal of 21st Century
@lygianavarro.com
indie journalist editor. reporter. producer (ES & EN). cover: Latine, LGBTQ+, health stories +more #DisabilityJustice. disabled. queer. #LongCovid + #ME. immigrant in Tkaronto Signal: Lygia.65 lygianavarro.com contributing writer @discojourno.bsky.social
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@onaalbizu.bsky.social
Empowering persons with Myalgic Encephalomyelitis. 35y w/ME ICPrimer our best tool. Coordinating Spanish subtitles for #UniteToFight2024 conference talks. Empoderando a #pcME. El Manual-CI nuestra mejor herramienta. Informando ME, MCAS, ANPE, Long COVID.
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@sarahwestonrd.bsky.social
Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume. Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍 Facilitator PACE program 👣🫂🌈
@marygr65.bsky.social
Retired RN & Qualified Social Worker. #LongCovid since March 2020 Advocate FBLC Adult son, 3 grandchildren and 4 cats A bit preoccupied after serious house fire on 15/10/24, living in temporary accommodation while they rebuild https://gofund.me/99cc079b
@elizacharley.bsky.social
Actress on Pause with Myalgic Encephalomyelitis 🌍 Florence, Italy <-> Melbourne, Australia 🎙️ Writer, Producer, Actor 🦋Living that Stockdale Paradox life
@oonaghcousins.bsky.social
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@thephysicsgirl.bsky.social
Lame puns and #longcovid. Maybe some science here and there.
@meckermutti.bsky.social
Neurologisch in wechselhaftem Zustand 👉 Hier werden ° Wechsstaben verbuchselt, ° Worte flasch geschrieben ° und dings... 🤯 #MECFS #Postcovid - Erkrankte.
@weibsbild.bsky.social
WasmitMenschen. Ostgewächs. Darss-Fan. Intro. Getrennterziehende TeenieBegleitung. Heiter-melancholisch. BGE. Nordlicht. Online seit CI$ 1995. Folgen≠mögen. Mildes #MEcfs seit 08/2022. #TeamVernunft. #TeamScience. she/her. Manchmal geht nur🫂 oder 🫶.
@thisistheillme.bsky.social
🇬🇧: Severe ME & long covid 🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus) 🏳️🌈
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@atranscendedman.bsky.social
Transparent to the transcendent. Wrote a book on Long Covid. - https://jondouglas.dev/longhaul/ Extraordinary claims require extraordinary evidence. - Sagan
@funkishen.bsky.social
Housebound by ME (myalgic encephalomyelitis), married, has a dog, agender, lives in the forest. Gender neutral pronouns preferred. Trying to be kind.
@cbakerls.bsky.social
Educator. Athlete. Lifelong learner. Auntie supreme. #LongCovid advocate. Bluesky newbie. Currently in an LTR with Los Angeles… but it’s complicated. Running 100 miles ain’t nothing compared to living with Long Covid.
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@meighanstone.bsky.social
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
@bennessb.bsky.social
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
@phillyphile215.bsky.social
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
@waldmeer.bsky.social
ME/CFS | Medizin | Wissenschaft Website: https://bit.ly/waldmeer Auch unter: @waldpol.bsky.social
@urlaubsreif.bsky.social
Liebe meine Familie & Potenzial in Menschen zu entfalten. Mitglied des Löwinnenrudels, Aktiv für Sichtbarkeit, Unterstützung und Aufklärung #PostCovidKids & #ME/CFS ❤️-Mensch #Schattenfamilie #NoAFD www.daniela-dirlenbach.de
@pennicat.bsky.social
Shy, disabled, queer, autistic. Requires alt text to follow you. Writer of contemporary m/m/m and lesbian historical novels. Book related stuff found mostly at @penthewriter.bsky.social Cornwall dweller. May actually be the cat in the picture
@minetodo.bsky.social
Storyteller. Advocate. Stand By ME/CFS! #StandByMEcfs #StillSickStillFighting #MEcfs since 2009
@bremen.bsky.social
Pro Wissenschaft. Contra Schwurbel. 🔗 www.mecfs-assistenzhund.de 🐕🦺 #TeamWissenschaft #TeamVorsicht #CovidIsntOver #DieMaskeBleibtAuf #MECFS #NichtMeinKanzler Reiselustig 🌎 und entdeckungshungrig 🔍. (Normalerweise… 🙄)
@harmonicsoul.bsky.social
X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community. Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@ungenesbar.bsky.social
LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈 Homebase: Berlin
@koniginerl.bsky.social
#MECFS seit 25 Jahren 🦽 statt 🏍,#Longcovid, #Postcovid MECFS ist somatisch,Humanoides Oxymoron 🖤->einmal Gruftie immer Gruftie(fast nur noch im 🖤)#noAFD#FQToxicity #ArmutAbschaffen,Armutsbetroffen, suchte den Stein der Weisen+fand den Fels der Narren
@kellymeiners.bsky.social
Former professor and physical therapist/ athletic trainer disabled by Long COVID since 2021. #LongCOVID #POTS #MECFS
@migrainechat.bsky.social
Education researcher turned migraine advocate #MigraineChat host Vermont maple syrup aficionado 🚫 Unsolicited advice She/Her/Dr (PhD kind) Header: Dinosaurcouch MigraineChat Resources & Discord: https://campsite.bio/migrainechat MC feed/starter pack👇🏻
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org info@longcovidsos.org Charity reg no 1199120
@longcovidfam.bsky.social
A US non-profit supporting children with Long Covid and their families.
@frauxausnrw.bsky.social
MomOf2 mit #LongCovid since 08.22 #noafd #noCovid #UniteToFight2024
@mightymermaid87.bsky.social
M.A. Early Childhood Education // #MECFS #SFN #Hashimoto #ChronicPain #fundraisingbc007MEcfs #MEawarenessHour #Kinderschutz // MightyMermaid87 @ web.de (she/her)