Oonagh Cousins
@theoldlostroad.bsky.social
Severe #MECFS for a very long time. Loves nature poetry children hope. Hates arrogance dishonesty injustice.
@bylinesnetwork.co.uk
Powerful citizen journalism | regulated by IMPRESS https://bylinesnetwork.co.uk A network of 10 not-for-profit, volunteer-led news publications from across the UK Donate via https://bylinesnetwork.co.uk/donate/ Email info@bylinesnetwork.co.uk
@helenld.bsky.social
Jeweller 💍 Scientific Illustrator 👩🏼🎨 Graphic Designer 👩💻 I ♥️ dogs🐕 rats🐀 nature🍃 bugs🐞 skulls💀 water💦 flowers🌸 music🎶 first wave #LongCovid 🌊 Team member @longcovidsos 🛟
@mecfsmama.bsky.social
Just a Mama navigating parenting with a chronic illness. Mild ME/CFS & IST Aotearoa, New Zealand.
@carolinechristian.bsky.social
Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
@amymooney.bsky.social
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions. http://www.OT4ME.com
@twoshaws.bsky.social
#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@rcolvile.bsky.social
Director of CPS, editor-in-chief of CapX, columnist for The Sunday Times, author of The Great Acceleration. Politics, policy and parenting.
@mjrobbins.bsky.social
Value of Nothing: https://open.substack.com/pub/martinrobbins
@thonigilles.bsky.social
La promotion intégrée de l' #ActivitéPhysique favorable à la #Santé : de la santé des individus à la #SantéPublique. #Sédentarité; #Education; #Evidencebased; #APA CovidLong, EM, Réadaptation, Malaise/exacerbation de symptômes post-effort MPE PEM, Pacing
@theresluethi.bsky.social
science/medical journalist: interested in infectious disease. dementia research. psychiatry. cancer. climate. health disparities. books. biol PhD https://theresluethi.ch/en/work/
@amoorelouise.bsky.social
Professor of Political Geography Algorithms, politics, technology, biometrics, AI, ethics Author Politics of Possibility https://www.dukeupress.edu/the-politics-of-possibility & Cloud Ethics http://dukeupress.edu/cloud-ethics
@tenaciousmumma.bsky.social
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
@youngvulgarian.marieleconte.com
jester of goodwill (journalist, author, radio person, etc) marie.s.leconte@gmail.com
@profstevegriffin.bsky.social
Professor of Cancer Virology, University of Leeds. Co-Chair, Independent SAGE
@carolinefricker.bsky.social
Full time carer to my daughter with very severe M.E. For 9 years.
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@rgleadow.bsky.social
Plant scientist studying how climate change affects plant toxicity (#cyanide). Born 314ppm. Interested in science, tech, plants. #MECFS ally #botanist 🌾🪴🧪🌱🌿💉 Views my own
@frenshamrobin.bsky.social
@andrewphillips.bsky.social
Policy and Research Manager at Phoenix Insights, focusing on employment, skills and labour market. Previously worked at Demos (@demos-uk.bsky.social) and Institute for Government. Views my own. www.thephoenixgroup.com/phoenix-insights
@gabyhinsliff.bsky.social
Guardian columnist & writer, author of Half a Wife, sometimes on telly/Guardian Politics Weekly podcast. No, I didn't write the headline. Event host & speaker https://www.specialistspeakers.com/?p=2705
@charlotte2153.bsky.social
Labour MP for Warrington North 🌹 Jewish, book worm, happiest outdoors Email: charlotte.nichols.mp@parliament.uk
@samfr.bsky.social
Writes the most popular UK politics Substack (samf.substack.com) Sunday Times bestselling book "Failed State" out now. (An Economist and Financial Times Book of the Year for 2024). Senior fellow: Institute for Government
@jburnmurdoch.ft.com
Columnist and chief data reporter the Financial Times | Stories, stats & scatterplots | john.burn-murdoch@ft.com 📝 ft.com/jbm
@alastaircampbell2.bsky.social
Writer, strategist, co-presenter the U.K. No1 podcast The Rest Is Politics … love Britain hate Brexit, loved Twitter loathe Musk n Trump
@elkeasen.bsky.social
MSc Economics Student @LSE | former tax policy analyst | Life on Pause since Dec 2021 due to #LongCovid
@sarahwestonrd.bsky.social
Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume. Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍 Facilitator PACE program 👣🫂🌈
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@chantalbritt.bsky.social
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli @ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
@gaby0605.bsky.social
CEO @weandmecfs Supporting our sons and everyone else fighting with #MECFS and #PAIS
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@longcovidscot.bsky.social
Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid. https://www.longcovid.scot
@nickyproctor.bsky.social
New here... Writing up my PhD in coach learning and development. Love learning, family, ancestry and tolerance. Campaigning for better healthcare for ME #Biggest Medical Scandal of 21st Century
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
@mare1967.bsky.social
#CleanAir #SaubereRaumluft (in Schulen, medizinischen Einrichtungen, Alters-/Pflegeheimen) #LongCovid (seit Sommer 2022) #TeamScience #DavosStandard #DavosSafe #Luftfilter // Ex-Weltenbummlerin; used to travel the world // Zurich, Switzerland
@margaretohara.bsky.social
Patient Advocate in #LongCovid and #HyperemesisGravidarum Patient Involvement in Research in #NHS
@lauravictorine.bsky.social
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE