Ella Cook
British author of the Broclington series & standalones with Joffe & Choc Lit books. SWWJ Floella Benjamin Trophy winner.
Bird owner writing to leave ink trails across hearts & minds
#fibro #bipolar #hiddendisability #BRCA
https://linktr.ee/ellacookwrites
@downing.bsky.social
Co-founder of The Light Collective www.lightcollective.org Security Researcher Health Infosec Views are my own.
@lmg622.bsky.social
Fierce #PatientAdvocate providing up to date research for 3K+ consumers at risk & clinicians #JournalClub #bcsm #gyncsm #PancChat #BRCA #hereditarycancer #oncsky 🧬
@jholdren.bsky.social
Patient data rights and health equity advocate; Epi; BRCA/hereditary cancer; Ovarian cancer patient and advocate. she/her Co-Founder of lightcollective.org
@letswinpc.org
Let’s Win is your guide to hope and action. Our mission is to guide pancreatic cancer patients with vital information for better outcomes. 💜 https://letswinpc.org #PancChat #PancSM #PancSky
@ellenmatloff.bsky.social
CEO @MyGeneCounsel #Genetic Counselor, @Forbes contributor on #genetic counseling, testing and digital health. #digital-health #genetic testing #patient-advocacy #female-founders #precision-medicine
@stales.bsky.social
Co-founder of #BCSM, POWER TWEETER, eternal optimist, 3x #cancersurvivor #PatientDriven - VP of Patient Engagement @Medidata
@meganranney.bsky.social
Emergency physician & Dean of the Yale School of Public Health. Gun violence prevention researcher. Incorrigible optimist (because we can and do create change, together). Mom of two teens. GO BILLS. @meganranney at the other place 🛟🩺📉📈🧪
@tmprowell.bsky.social
Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky Team hope/good trouble/go high💙 https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
@foxyness1.bsky.social
Student artist, Robbie Williams fan, Brit-pop, 80s, dogs, gigs, art galleries, family, holidays, foodie, humanist, Brighton, UK | #BRCA Breast Cancer Survivor| DMs will be instantly blocked 🚫
@mesabree.bsky.social
Science and Medical illustrator, infographic artist. Professional #sciart nerd. Kidlit and graphic novel author/illustrator seeking representation. MAIN: www.mesaschumacher.com KIDLIT: https://imaginationillustration.mesaschumacher.com
@caitmmk.bsky.social
Momx2 | MCH epidemiologist studying fetal death | PhD candidate @ University of Illinois Chicago| MPH from University of Arizona | #PerinatalHealth #ReproductiveHealth #BRCA1 #Previvor #episky
@caroleeldridge.bsky.social
@nerdnurse at other place. Working to save democracy. #Health & human rights advocate, Blue 💙in red TX, #Medicare4all, RN/doctorate, #BRCA family, woke, owner health educ co, BOD member #ConnectMyVariant. No DMs, I’m serious. No profile/posts, no follow.
@lizworthey.bsky.social
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected sites.uab.edu/cgds/ she/her
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@binman.bsky.social
Bit poorly. Campaigning for ME research and awareness. Music. Sport. Films. Animals. Spurs. Thomas Dolby. Janey.
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@brunellalongo.bsky.social
I ask questions on #science, #healthcare, #technologies. Between flare-ups I'm writing my 9th book "The Sicca Messenger" on Sjögren's and other #autoimmunediseases #healthliteracy and #knowledge management. Semi-retired technologist. Freelance.
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@longcovidfam.bsky.social
A US non-profit supporting children with Long Covid and their families.
@covidlonghaulers.bsky.social
Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com #MedSky facebook.com/groups/COVIDLongHaulers YouTube.com/@covidlonghaulers Patreon.com/BrookeLine
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@alinanmsnrn.bsky.social
Registered Nurse. Over a decade of research experience. #LongCovid research + advocacy Formerly:Columbia, Mount Sinai, NYU & HSS
@vlister.bsky.social
Ex scientific researcher. Health activist and (very) mature OU history student. Living with systemic CRPS and Dysautonomia. UK. No DMs. #truthmatters
@longhaulerspodcast.bsky.social
We’re a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how they’re surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
@carolstevens.bsky.social
Wife, Mom, Nanny. Proud to live in the maritime province of New Brunswick. Life altered by ME/CFS. Gobsmacked by US election results. Concerned the MAGA trend is growing in Canada too. #IStandWithCarney
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@poncin-sue.bsky.social
After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver www.sueponcin.com In The Space Between: https://a.co/d/0fkSZMd
@rain.awoo.haus
🔞The home of Rain Mistwalker (he/they). Autistic, ADHD-nerfed lad. Streams. Sews stuff. Loves hot baths. Has a cat. Associated with @serah.awoo.haus and @ausar.awoo.haus. Currently doing pixel art for a Terraria mod, yay!
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@gabrielakhoury.bsky.social
Antiviral Immunity Theme Leader at Burnet Institute Melbourne. Exec CI PROPHECY COVID vaccine MRFF. VIIN YI Exec. LOC AVS2024. We study vaccine and viral immunity in vulnerable populations. Plus the impact of viruses on our health.
@drbevans.bsky.social
Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
@everytinyant.bsky.social
Mum & wife; hill farmer’s daughter; all ears & love a good tale; KS2 Class & SEND teacher; research & support Transitions & YP with barriers to school; trainee child counsellor; interest in STEAM & climate; community & nature lover; Long Covid voice
@mariefollayttar.bsky.social
@MaineAllCare #UniversalHealthcareNow Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist Disabled Director of Mainers for Accountable Leadership(leave) Rare Chronic Cancer survivor Long Covid, Me/CFS Autistic Wabanaki
@sirensplight.bsky.social
“The plight of the siren is no one believes her.” 🎭 +📚👩🏻🏫 on ⏸️ due to ♿️ Long Covid, Fibromyalgia, ME, POTS, PEM, AxSpa, PsA, AuDHD 🍁 settler in Tkaronto 🧶 crochet artist ✨Sicilian witch 🛜 bellaciao.03 My gender is hoodies (she/they/whatever)
@cfsresearch.bsky.social
Interested in research into ME/CFS/MECFS, FND and related conditions. https://medium.com/@cfs_research
@nursekelsey.bsky.social
Mama. Trauma ICU nurse. Introvert. Runner. Dog lover. 🏳️🌈 Strong believer in science & medicine. BLM. Prochoice.
@maconyouglow.bsky.social
Hospice Nurse by day. Multipotentialite by night. LGD mom.⚔️🐾 Catastrophe adjusting when Mother Nature acts up! ⛈️🌪️🐈⬛🪜 Waterless Health with Oliveda Pharmacy. I’ll change this description a few more times this month. https://bio.site/maconyoubreathe
@louisekenward.bsky.social
Writer, Artist, Psychologist MOVING MOUNTAINS PhD candidate at Centre for Place Writing, Manchester Met Uni. Exploring the Romney Marshes & its coastline through post-viral illness. https://louisekenward.substack.com Rep'd by @portyliterary.bsky.social
@arcadiaego.bsky.social
ofmd ate my life 🌟 She/they, 40, bi, white, disabled. 🌟🏴☠️,💍, neighbours, other stuff 🌟 🏳️🌈🏳️⚧️ 🌟 Banner by ericavee
@riverofstars.bsky.social
Be kind & inspire one another ♡ 🔞 MDNI 🚫 AI / Bigots / Paras 🚫 #SecondLife content creator & #Furry artist // 🥄 × 0 :: 🌧️ pluviophile :: 🌈 my page is a #disability & #queer safespace // #AuDHD #Fibromyalgia #CFS
@achronicvoice.com
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. https://www.achronicvoice.com/
@a-tofana.bsky.social
#Resist #BlueCrew | Disabled nurse #spoonie | Liberal💙 | Feminist | Animal Lover | Books |Childless Cat Lady | Science | 🇺🇦 Slava Ukraine 🇺🇦|LGBTQ+ 🏳️🌈🏳️⚧️Ally | BLM | Vote All Blue 🗳️|DM’s OFF 🚫Porn,MAGA,Crypto-GoFundMe | Fuck trump
@sarahbalmain.bsky.social
I’m just a Scottish woman who’s tattooed, pierced, chronically ill/disabled & extremely dark humoured/sarcastic! Welcome to my boring world!