Exhausted
ME/CFS. Disability advocate, researcher, policy expert. Anti-racist, anti-colonialist, etc. Free Palestine 🇵🇸
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@writebiggs.bsky.social
Reader, writer, sleeper agent Loves history, folklore & growing things ME + expansion packs ADCI network ♿️ | she/her Curtis Brown Breakthrough winner ‘24, Jericho Writers Mentorship, Novelry Octopus winner ‘23. LL Lucy Cavendish Prize ‘24
@vonhatti.bsky.social
Unwell book editor, once actor/cabaret. Fake name, real face. #ChronicIllness #Publishing #Cats #Languages #ComicSongs https://m.youtube.com/@Theheraldpatch
@kimpie.bsky.social
24 | Living with ME, Endometriosis & … | Looking for some connection | she/her ☀️
@julianlenfant.bsky.social
British/Canadian; Educational Developer/Adjunct Prof. @ Saint Mary's University; CELTA Tutor/Assessor; Doctoral Researcher (AI in Education); MEd Plurilingual Education; Husband and Dad.
@kbishof.bsky.social
🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org 🔵 Pw/ #LongCOVID, #IACCS, #Disability 🔵 Fmr. Firefighter/Paramedic 🔵 Fmr. Educator, Coach, & Dir. of Athletics 🔵 B.S. (ex science & health promotion) 🔵 #StillCOVIDING #COVIDConscious #Mask
@erinsandersnp.bsky.social
Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
@ruhisleep.bsky.social
Mom, humanist, anti-extractive. I do research - biomedical sciences through the lens of humanities & society with a focus on praxis. Settler on Turtle Island. Better Society 🔄Better Sleep Current focus MECFS & Long COVID research/care/community
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@covidchronicles.bsky.social
Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
@richardvallee.bsky.social
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.
@wanderingkayli.bsky.social
@wandering on Instagram ✍🏻 Disabled with Long Covid 40+ months Long COVID Researcher @sfu-fhs.bsky.social Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID https://beacons.ai/wanderingkayli
@itsmepz.bsky.social
Music 🎶 Film 🎞️ Long form journalism 🧐 Hot Chips 🍟 Happiest by the sea 🌊 Here to hang with chronically ill & socially isolated peeps and advocate for better care for #pwME. Living small with ME on unceded Whadjuk Noongar country ("Australia")
@quinnlenfant.bsky.social
Music / #Swiftie / Video Games / Friends / Family (Unceded) Canada
@ginaassaf.bsky.social
Participatory Design & Research/Strategy - Tech for Social & Global impact. Co-leading #longCovid @patientled research and Managing @obidigital
@franceyme.bsky.social
https://amandafrancey.com/ illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@camillebuckner.bsky.social
My pen is huge and I love sentences. And words. Like wombat and elixir. People and planet over profits. Build new systems. Equity. Inclusion. Justice. #BLM #LandBack #DefundHate #LongCovid (3/2020) #MECFS #Poetry #AcademicSky
@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@usuallyflannel.bsky.social
Librarian in the before times, artist, isolated. Disabled not disposable. There will be cats. She/Her Label⬇️applied manually so pronouns appear on posts.
@ylangirl.bsky.social
Small but mighty, early educator teaching through the early pandemic years. 30 years teaching at-risk children & home visiting families. No longer essential now #LongCovid and #ME. Speak truth to power. #MaskUp 😷#EduSky #EarlyChildhoodEducation #VERMONT
@juliadoubleday.bsky.social
Writer of The Gauntlet, about COVID and public health. Read: thegauntlet.news Subscribe: thegauntlet.news/subscribe
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@no1sarah.bsky.social
She/her. 🏳️🌈🏳️⚧️ ally @sarahslowsdown on the bird app In healthier times: Health & social care; homelessness & housing. Music, music, music. 🎶 Mostly here to connect with #LongCovid #MECFS #ChronicIllness #Dysautonomia #hEDS #MCAS
@franfriel.bsky.social
Author, Nature Rewilder🌱 Science/SF Geek🚀 Painter, Two-time Bram Stoker Award Finalist, Black Quill Award Winner, Ireland via California, LCFirstWave
@sumonkyawmyint1.bsky.social
population health, scientist, feminist, living with rare disease, disability and chronic illnesses, NDIS, lover of books & science, all posts are personal
@mariefollayttar.bsky.social
@MaineAllCare #UniversalHealthcareNow Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist Disabled Director of Mainers for Accountable Leadership(leave) Rare Chronic Cancer survivor Long Covid, Me/CFS Autistic Wabanaki
@martinangler.com
Science Journalist #LongCovid Context ABSW 2024 Awards Finalist theMHS 2024 Awards "Highly Commended" Portfolio https://muckrack.com/martinangler
@tenaciousmumma.bsky.social
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
@faithie.bsky.social
SevereME/vax injured. Can't read, write, watch, walk or talk much. Just me, my bed & my swollen brain. Trying to stay sane. Roy Kent is my spirit animal.
@mswcreations.bsky.social
Medicine Song Woman. 🎤😷Indigenous Keynote Speaker/Singer, Hand Drummer. Long COVID, CFS/ME & CPTSD. GenX. Trauma-informed virtual circles and mentoring for COVID-conscious women. NO DMs without permission. https://medicinesongwoman.com 😷she/her
@elinz.bsky.social
ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden #pwME #MECFS #NEISvoid #ChronicIllness Came here from: https://twitter.com/ezchili
@dreamsatstake.bsky.social
Mostly bedridden with severe myalgic encephalomyelitis/ME Interests: health, reading, nature, film, photography, art, travel, social issues Former blog: www.dreamsatstake.com
@nlizaki.bsky.social
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
@elizacharley.bsky.social
Actress on Pause with Myalgic Encephalomyelitis 🌍 Florence, Italy <-> Melbourne, Australia 🎙️ Writer, Producer, Actor 🦋Living that Stockdale Paradox life
@drbevans.bsky.social
Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@ilkokowalczuk.bsky.social
Wollte immer Historiker werden, ich arbeite dran:"Seltsam,im Nebel zu wandern!/Leben ist Einsamsein."
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@julimaelle.bsky.social
Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr