Kim
24 | Living with ME, Endometriosis & … | Looking for some connection | she/her
☀️
@nerdland.be
@lievenscheire.bsky.social neemt je mee door de wondere wetenschapswereld, via podcasts, boeken, specials & events! Nerdland Festival: www.nerdlandfestival.be Nerdland website: www.nerdland.be
@theskylark.bsky.social
Feed for Long Covid new arrivals on BlueSky. Reposts from trusted LC advocacy and supportive accounts who've migrated from other social media. Named in honour of surreal British 1970s cartoon Noah And Nelly. "All aboard the Skylark!"
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@ilkokowalczuk.bsky.social
Wollte immer Historiker werden, ich arbeite dran:"Seltsam,im Nebel zu wandern!/Leben ist Einsamsein."
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@martinruecker.bsky.social
investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
@drchronically.bsky.social
Bitte keine Hilferufe über Social Media! #MECFS #LongCovid #Schattenfamilie #PflegendeEltern #Praxis #NoAfD #ÄrzteGegenRechts #Löwinnenrudel Mach dich selbstständig, haben sie gesagt. Dann hast du es viel leichter mit den Kindern, haben sie gesagt.
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧[email protected]
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@susscrofa.bsky.social
Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin. Wer solche Fragen an mich stellt, wird blockiert.
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
@bettinagrande.bsky.social
Psychological psychotherapist Heidelberg| Charité Berlin Advocacy against psychologization of #MECFS, #PEM & #PENE Research & psychotherapy adapted to ME/CFS Paper: https://doi.org/10.3390/medicina59040719
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@kinderdocnina.bsky.social
Pediatrician, MD, Believe in science, takes SARSCOV2 as serious as it should be treated, Can‘t believe that science is that ignorant
@julimaelle.bsky.social
Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
@chantalbritt.bsky.social
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli @ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary 🌈🌈🌈🌈 | views are mine.
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@violetta.bsky.social
#PwME #MEcfs #PoTS #CPTSD #MCAS #SFN #FQtoxicity #ClimateEmergency #Climaterevolution41world #naturephotography #IchBinArmutsbetroffen https://www.amazon.de/hz/wishlist/ls/2YXZDKIHLH0NL?ref_=wl_share German/English
@sibylledahrendorf.bsky.social
former filmmaker II torn from life due to complex chronic illness II #CranioCervicalInstability #MCAS #SmallFiber #PoTS #FluoroQuinoloneToxicity #FlagylToxicity #Lyme #ME II https://sibylledahrendorf.jimdofree.com II Wer unter meinen Posts pöbelt ➜ Block
@symptomodyssee.bsky.social
Bessere Diagnostik & Versorgung für Patient*innen mit untererforschten Krankheitsbildern. "Das ist nur Stress" ist keine Diagnose.
@millionsmissingfr.bsky.social
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche. Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@ypsilondas.bsky.social
ME/CFS, invisible chronic diseases, prevention, democracy, private account
@pflegeherz.bsky.social
Krpfl. - Med./Pfleg. Bubble: SARS-CoV-2, LC, PCS, ME/CFS, Studien, Berichte. Datenbanken- Sammlungen: https://bsky.app/profile/pflegeherz.bsky.social/post/3kaonldkiip2r Übersicht Servicetweets: https://x.com/Pflegeherz12/status/1756714336892973082
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@mareksjf.bsky.social
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ http://mecfs.de/was-ist-me • EN ‖ PL ‖ DE
@dgmecfs.bsky.social
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein. mecfs.de
@lgoshen.bsky.social
Here mainly for evidence-based discussion of public health and the climate crisis. #TeamWissenschaft #ProtectTheKids #MaskUp Posts in German and English she/her @[email protected]
@ojohnstoni.bsky.social
Psychology, research, mother of three, fighting for my husband with #LongCovid, disillusioned yet cheerful, haven't lost humour #MECFS #maskup #ParentsForFuture
@verhac.bsky.social
ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna de/en
@simongehren.bsky.social
Advocating to #PreventLongCovid, through a smart scientific strategy: Honest risk education, good masks, mucosal vax, PlusLife, air filters. #MEAlly / #TreatLongCovid/ME💛. Swiss lawyer & strategic advisor for NGOs. https://twitter.com/CoronaZeroCH
@rsandra266.bsky.social
M.Sc.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | life pauses due to #LongCovid #MECFS #PEM #MCAS #SFN | team member of @Not_Recovered
@heikewigr.bsky.social
🐦 @will_ins_Gruene One of #millionsmissing since 2002 #MECFS Diagnose 2021
@renzpolster.bsky.social
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
@bettinasemolina.bsky.social
#millionsmissing (sie/ihr) マイペース "Es ist hoffnungslos, aussichtslos und ermüdend, aber noch schlimmer wäre es, wenn wir aufgeben würden."
@annekhlr.bsky.social
40-jährige Münchnerin mit #MEcfs nach einer Corona-Infektion im April 2022, die Hörbücher 📚, Podcasts 🎙️ und die #kleineKunstklasse 🎨 mag.
@petitfeu.bsky.social
Still suffering from #MECFS. Life still on hold. she/her 💙 = ME/CFS solidarity #noAfD
@momof2andahalf.bsky.social
Mom of 👧🏼👧🏽 and a Bonus 🧒🏼 #PostCovid #POTS #MECFS since Juli ‘22 #Schattenfamilie Collecting Information about Postcovid + ME/CFS - bc I had to become my own doctor.
@arizona10238417.bsky.social
#MECFS #LongCovidKids Wir fordern mobile Ärzte/Telemedizin mit Wissen von M-Schwabing/ Charite Träumen von einer Grundversorgung für schwerstkranke Menschen
@inogue.bsky.social
Jeder Post ohne mindestens einem Rechtschreibfehler ist nicht von mir. Specialeffects oft fehlende Kommas oder wie der Ö. noch dazu sagt Beistriche
@mefreake.bsky.social
#MECFS #PostCovid seit 2021, selten👩🏻🦼, meist 🛌 Früher Gesundheitswesen/Wissenschaft. ME/CFS ist somatisch.
@jenbrea.bsky.social