Lisa's Legacy for ALS
Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honorinf Lisa’s legacy by advocating for ALS.
@freddy3.bsky.social
Dad, Husband, Dog Dad Kentucky Wildcat #BBN PR Guru turned #ALS Warrior🧑🦼🏳️🌈 I watch a lot of 📺 🎥 🎾 🏀 🏈 I have a lot of conflicting opinions, but my politics is “Gargle my balls!”
@endpts.com
We're where the business of medicine gets answers. An independent news media organization covering biotech, pharma, science, policy, finance, venture capital and markets, and how they drive the life sciences industry. Read us at www.endpts.com.
@alsmidatlantic.bsky.social
Supporting ALS families in Pennsylvania, New Jersey, and Delaware. Learn more at www.alsmidatlantic.org
@drdanielledatadiva.bsky.social
I am a data scientist/engineer working in the rare disease space. Love arts, crafts, museums, volunteering, and my big family.
@alsassociation.bsky.social
Fighting ALS on every front through research, care services, and advocacy.
@fda.gov
Yes, it’s really us! Our posts are FDA-approved! Visit us at https://www.fda.gov
@butchart-doug.bsky.social
@christine520.bsky.social
#VOTEBLUE #OPPOSE #MomsRisingPA #MomSky Wife; mom to two wonderful adult sons; Nonni to my precious Enzo❤️ ALS/MND fighter; dog lover🐕; facts, truth, science; save our planet🌏 Defend our democracy🇺🇸 LGBTQ+🌈 BLM #DailyBeans/#Leguminati 🫘 #MeidasTouch
@lavonne.bsky.social
Health, Tech & Science Journalist | Assistive Tech Champion | Decoding AI's Promise & Perils |
@alsofgny.bsky.social
We provide local, on-the-ground services to patients and families living with ALS throughout the Greater New York area, including New York City, Long Island, lower and mid-Hudson Valley, and northern and central New Jersey. als-ny.org
@jonathansgang.bsky.social
Science writer at ALS TDI. Formerly multimedia producer @ConversationUS. Opinions are my own. RTs are public excoriations. Find me in the woods. He/Him
@christinegilmore.bsky.social
Retired RN. Living with ALS eight years, diagnosed 2019. Advice to others, don’t wait for someday to do the things you want to do. It might be too late.
@sciencepete.bsky.social
Retired educator. Early in an acoustic guitar journey. ALS advocate. Learning to love bluegrass and Americana music. Believes in the scientific process.
@maxgelman.bsky.social
Reporting on pharma and biotech for Endpoints News. Baseball fan, Northwestern alum.
@bobjherman.bsky.social
Health care business reporter for @statnews.com and its Health Care Inc. newsletter. Contact: bob.herman@statnews.com or bobjherman.09 on Signal. Sign up: https://www.statnews.com/signup/health-care-inc/
@erinbrodwin.bsky.social
Health tech reporter @Axios. Send tips on Signal: @erin.14 or via email at erinbecca@proton.me. She/they
@danielpayne.bsky.social
Washington Correspondent @statnews.com daniel.payne (at) statnews (dot) com Signal: danielp.100 @politico.com / Ole Miss alum
@maxbayer.bsky.social
Pharma reporter at Endpoints News | Past: Fierce Biotech and CBS News | mbayer@endpointsnews.com or chat me for Signal. he/him
@rickberke.bsky.social
Co-founder & Executive Editor, STAT (www.statnews.com) @statnews.bsky.social Longtime reporter/editor NYT
@notsovanilla.bsky.social
wanderer. wheel spice. writing under the influence of ALS & butter.
@jennifera86.bsky.social
Alaska girl living in WA state. ALS Advocate since 2005. ALSTDI Board member.
@jdpereira.bsky.social
Neuroscientist. Assistant Professor of Neurology at UAB Trying for a better, more humane approach to science. Interested in neurodegenerative diseases, AI toolsets, and science in general! STOP ALS.
@jasonmast.bsky.social
Covering science, medicine & business for STAT Reach out on Signal: JasonMast.05
@lisamjarvis.bsky.social
Chicago-based health & science columnist for Bloomberg Opinion @opinion.bsky.social. Writing about public health, medicine, emerging technologies (Crispr!), biotech & pharma. opinions=mine, She/her. Signal: lisajarvis.77
@ukmndri.bsky.social
A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
@andreaalsstrategy.bsky.social
ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
@merricksy.bsky.social
Cardiac RN, ALS Clinic Coordinator, Music Lover 🎶🎵, Food aficionado🥓🥑, Cat Servant 🐈🐾 (All views do not reflect that of my employers)
@martinmeyers.bsky.social
Retired commercial bankruptcy lawyer, ALS is my current battle. Pacific NW is my home.
@wesstans.bsky.social
Clinical Laboratorian | Ph.D. in Neuroscience & Molecular Genetics @IUMedSchool 🧠 🧬 | Laboratory Genetics and Genomics Fellow (ABMGG) @CUAnschutz
@doctorpaf.bsky.social
Clinician scientist and consultant neurologist. Interested in neuromuscular diseases, #neuropathy, #ALS, #nerve #regeneration, neuron #glia interactions and #Schwanncells.
@dibbouk.bsky.social
PhD, MND/SMA Research programme manager @My Name'5 Doddie Foundation All views my own #ALS #MND #SMA #RareDisease 📍 Edinburgh
@timjatkinson.bsky.social
National Campaigns Manager, Motor Neurone Disease Association @mndassoc.bsky.social Interested in #activism, #volunteering, #charities, #ukpolitics all things geek, community organising, and health and social care.
@endrarediseases.bsky.social
Blue Dog Dem. Rare Disease Patient Advocate for Amyloidosis that killed my Mom & ALS that is killing my friends. Passionate about Enviro Justice, Foster Care & Gun Safety. Proud GGD of a Righteous Gentile murdered by Nazis. 💙LA sports.
@garygodfrey25.bsky.social
Retired Management Consulting Partner. Former Auburn Basketball player. Just trying to LIVE with ALS. Make Today Your Best Day Yet!
@alswarriors.bsky.social
Widow due to ALS. Warrior because of ALS. Three words for ALS... WE WILL WIN! Dog momma. Musical Lover. Total Ham! my thoughts are mine and not my employer.
@bsw5020.bsky.social
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. www.iamals.org/als-awareness-month #ALSisHere #SoAreWe
@onein300.bsky.social
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. onein300.com
@michaelwheelson.bsky.social
Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. Oklahoma Blue Dot. ALS'ing since Feb. 2017.
@nategillespie.bsky.social
Lapsed historian turned web product person turned #ALS warrior. Aspiring novelist. Dad. Long-suffering #NUFC & #RipCity fan. Suffering builds character. Columbia City, Seattle via Portland & SF. ↙️↙️↙️
@aartisharma.bsky.social
Neuroscientist 🧠 | ALS researcher 🧪👩🏽🔬 | human | biotech | she/her There is no 🌍 without ART