Jo McPherson
Partnerships & Community Manager for Medics For Rare Disease. This is my personal account and my views are my own. Let’s make #Raresky a thing
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@pamslater26.bsky.social
Raising awareness of FOXP2 & #ChildApraxiaSpeech, a rare neurological speech disorder. #14daysofdvd @GivingVoice Award. Medics4RD Patient Ambassador Trustee Mikey's Wish Foundation
@markflannagan.bsky.social
Ready to apply my experience as Non-executive Director and/or Consultant. www.markflannagan.com Part-time CEO of https://upcyclemcf.org/ Interested in change, not status quo.
@rebecca-stewart.bsky.social
Co-Founder of RARE Revolution Magazine dedicated to elevating the voices of the #raredisease community and bringing together stakeholders from the field.
@paramountpictures.bsky.social
The Official BlueSky Page for Paramount Pictures https://www.paramount.com/
@aoc.bsky.social
Waitress turned Congresswoman for the Bronx and Queens. Grassroots elected, small-dollar supported. A better world is possible. ocasiocortez.com
@rareireland.bsky.social
@thekingsfund.bsky.social
We are an independent charity working to improve health and care in England. Our vision is that the best possible care is available to all. https://www.kingsfund.org.uk/
@camrare.bsky.social
Making rare disease an everyday conversation. CamRARE is a charity empowering rare disease communities & fostering cross-sector collaboration to improve outcomes for those affected. #RareDisease Local | National | Global www.camraredisease.org
@fopfriends.bsky.social
We are dedicated to supporting those living with the rare genetic condition FOP and raising awareness and much needed funds to support the research into a treatment and a cure. We also support those living with the rare condition POH.
@medicsforrare.bsky.social
Our vision is a world in which there is equitable healthcare for everyone
@loomoomahoo.bsky.social
CEO of Medics for Rare Disease. I want to see a world in which there is equitable healthcare for everyone. Trying to play my part in making this happen. Personal account. Views are my own. Trying not to burn out before #RareDiseaseDay
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]