Lucy McKay
CEO of Medics for Rare Disease. I want to see a world in which there is equitable healthcare for everyone. Trying to play my part in making this happen. Personal account. Views are my own. Trying not to burn out before #RareDiseaseDay
@giorginamaxwell.bsky.social
Genetic Counsellor & PhD student | Glaucoma Genomics @ FHMRI (see anzrag.com.au) & SeonixBio. Living & working on Kaurna Land. Views are my own 🧬🐕🌊🏳️🌈
@lexidh.catpasity.com
I'm a Norwegian childfree crazy cat lady, married to a crazy dog man, trying to juggle chronic pain with too many hobbies and being a functional adult. Crafting, reading, gardening, Lego, naps, all so much more fun than managing my rentals and investments.
@supremecourt.uk
Official profile of the UK's highest court & Judicial Committee of the Privy Council. Be scam aware, check our advice: https://supremecourt.uk/scams.html
@sraiken.bsky.social
Northern Ireland Politican, Member of Legislative Assembly, Deputy Speaker, Finance & Brexit Spokesperson, Academic & Proud Royal Navy Veteran
@exeter.ac.uk
Exeter is a leading UK university and member of the Russell Group, which combines world-leading research with high levels of student satisfaction.
@slishwood.bsky.social
Geologist, mostly working on hard rocks but occasionally on their detritus. Emeritus Professor, UCD School of Earth Sciences, University College Dublin, Ireland. Currently trying to break my Twitter habit
@mikeys-wish.bsky.social
A registered UK Charity supporting people with all speech, language and communication needs, with an added interest in Childhood Apraxia of speech. Founded by Mikey Akers.
@pamslater26.bsky.social
Raising awareness of FOXP2 & CAS (Childhood Apraxia of Speech), a rare neurological speech disorder. #14daysofdvd @GivingVoice Award. Medics4RD Patient Ambassador Trustee Mikey's Wish Foundation
@cwallingford.bsky.social
🐶 Dog mum first, 🧬 scientist second. PhD🔹genetic counsellor🔹aspiring artist🔹amateur running enthusiast🔹passionate science communicator
@barbararvt.bsky.social
Mother, Grandmother,Social Worker, State Legislator, Nonprofit Exec, Adjunct Instructor, Advocate, cat lady, NJ girl living in Vermont via Ann Arbor, MI
@melissa-kinch.bsky.social
PhD candidate UCD | Child, Adolescent & Family Research | Patient Voice & Engaged Research | Rare Disease Research | Methods Enthusiast | All views are my own
@helenwalkerncl.bsky.social
UK Myotonic Dystrophy & FSHD Patient Registries Manager at JWMDRC. Pls follow: @jwmdrc-registries.bsky.social / @jwmdrc.bsky.social (she/her) *Views my own* #neuromuscular #nmd #PatientRegistries #dm1 #dm2 #fshd #RareDisease #research #genetic
@ericftr.bsky.social
Facilitateur de #recrutements 4.0 Activateur de #Compétences #Handicap #Inclusion #TSA #digital #Tech #mixité #education 🇪🇺 francetravail.org
@cnsdrughunter.bsky.social
🧠 🧬 Neuroscientist. Looking for new medicines for #CDKL5, #SCN1A, #SHANK3, #DHPS and other neurological #RareDiseases with #epilepsy
@rebecca-stewart.bsky.social
Co-Founder of RARE Revolution Magazine dedicated to elevating the voices of the #raredisease community and bringing together stakeholders from the field.
@knighthawk899.bsky.social
30's| 🇺🇸💙Resist|♿Disabled |Movies |Video Games |Meme Maker |Disability Awareness♿ Disabled people's needs are not being met in the US right now. Donate here: https://tinyurl.com/KnightHawk899 https://ko-fi.com/knighthawk889 venmo.com/u/Knighthawk899
@marjoleinrobertson.bsky.social
Comedian and storyteller fae Shetland and your very nightmares ON 2025 TOUR NOW | 2023 SPECIAL STREAMING NOW https://linktr.ee/MarjoleinRobertson
@muffley.bsky.social
Director of Program Operations (Variant Effects Portfolio) CMAP, CAVA and the Atlas of Variant Effects Alliance | she/her 🏳️🌈 https://fowlerlab.gs.washington.edu/people https://brotmanbaty.org/research/atlas-of-variant-effects
@precisionmedicine.bsky.social
Associate Director of Bioinformatics and Software at Illumina. Unleashing the power of the genome through SW and AI. #PrecisionMedicine #Cancer #MECFS #RareDisease
@andreapa.bsky.social
Book lover, avid reader, writer of words, nature lover, art and craft, mindfulness practitioner, Reiki, owned by a BorderTerrier. 🚫 annoying DM’s 💙📚
@roxanegay.bsky.social
https://linktr.ee/roxanegay Writer, editor, publisher, professor. Some people call me a bad feminist and by some people I mean me.
@jojomcp.bsky.social
Partnerships & Community Manager for Medics For Rare Disease. This is my personal account and my views are my own. Let’s make #Raresky a thing
@aoc.bsky.social
Waitress turned Congresswoman for the Bronx and Queens. Grassroots elected, small-dollar supported. A better world is possible. ocasiocortez.com
@refugeestogether.bsky.social
We're a coalition of 600+ organisations calling for a fair and kind new plan for refugees that works for everyone #FairBeginsHere togetherwithrefugees.org.uk
@shereadytoread.bsky.social
Reader. Therapist. Explorer.📚📚#booksky https://shereadytoread.carrd.co
@predictorholly.bsky.social
Armchair philosopher | Long distance runner | Percussionist in the band that is playing while the Titanic sinks
@susiesbookreviews.bsky.social
📚💙Book lover and reviewer 🏴Scotland 🙋🏻♀️She/her 📧susiebooks@yahoo.com Buying books and reading books are two different hobbies, don’t judge me. Also manages @hburghbookfest.bsky.social https://linktr.ee/susiesbookreviews?utm_source=linktree_admin_share
@cicr-fr.bsky.social
Le Comité international de la Croix-Rouge s'efforce d'apporter protection et assistance aux victimes de la guerre et d'autres situations de violence.
@jjunebrown.bsky.social
Author, public health advocate, genetics PhD. Creatively driven, scientifically inspired. Mom of 2 with the rare inherited health condition #PKU. https://jjbrownauthor.com/ is my author site and "When the Baby Is Not OK: Hopes & Genes" my newest book.
@thebookseller.com
At the heart of the book trade since 1858📚 News, charts, previews and more, online & in print. Buyer's Guides, conferences & The British Book Awards (Nibbies)✨
@yorkshirebylines.co.uk
Powerful citizen journalism from Yorkshire | co-creational media | regulated by IMPRESS https://yorkshirebylines.co.uk/ To volunteer as a writer, editor or behind the scenes, email editor@yorkshirebylines.co.uk
@medicsforrare.bsky.social
Our vision is a world in which there is equitable healthcare for everyone
@georgetakei.bsky.social
I’ve boldly gone into the clear blue yonder. Follow for more recipes and tips.
@chcharityuk.bsky.social
Supporting children and young adults with Congenital Hyperinsulinism. Family Support Group Patient Led Research Advocacy Family Days and Conferences https://linktr.ee/chcharityuk
@rd-rn.bsky.social
An online hub supporting patient driven research ideas to be realised & flourish. Open to all. Join the #RareDisease #Research revolution at www.rd-rn.org * connections * resources *mentoring NIHR funded, co-created by CamRARE, PLRH & patient experts
@rmkubinec.bsky.social
Political scientist University of South Carolina. Interests: business politics/corruption, Middle East, measurement, Bayesian statistics The Bayesian Hitman: https://a.co/d/e4QmtKo Website: www.robertkubinec.com
@chrishouston.ca
Exec Director @canadianpeacemuseum.ca, newspaper columnist, teaching humanitarianism (U of Toronto), consulting at @humanitarianassociates.org Ex @redcrosscanada.bsky.social 🇳🇵🇱🇧, @who.int 🇾🇪, @msf.org 🇨🇦🇵🇬🇳🇬🇪🇹🇹🇷🇵🇰 🌐 chrishouston.ca
@jwnickerson.bsky.social
Humanitarian Representative to Canada for Doctors Without Borders/Médecins Sans Frontières (@MSF.ca) 🌎 Respiratory Therapist 🫁 Trail runner and adventurer🏃♂️ Public health/infectious diseases/health systems researcher focusing on older adults ☣️
@arndell.ca
Humanitarian Professional and Lt. Gov. Medal recipient. Views my own✌️ Former journalist current aspiring Dúnedain Ranger 🗡 Menagoesenog Acadien 🇨🇦 At the odd intersection of aid, climate, survival, politics and bikes 🌱 🪴 🌳
@msf.ca
Doctors Without Borders is a medical humanitarian organization that provides medical assistance to people affected by conflict, epidemics, disasters or exclusion from healthcare. Independent. Neutral. Impartial. More: hootbio.com/DoctorsWithoutBorders
@dndi.org
International non-profit developing safe, effective, and affordable treatments for the most neglected patients.
@jandelliott.bsky.social
I have type 1 diabetes and want people to stop dying from this condition. Access to insulin is a human right #insulin4all #diabetes #t1d
@benparker140.bsky.social
Humanitarian policy and practice, news, data and tech. Working for the UN in South Sudan. Previous: CEO at The New Humanitarian, Chief of Staff at the Black Sea Grain Initiative.