Laura Marks
Rare disease advocate; nonprofit leader; tuberous sclerosis complex mom; SYNGAP1 sister. Committed to advancing human rights, trans rights, social justice, equity/belonging. Views mine
@drashleynm.bsky.social
Pediatric Neuropsychologist @ Children’s Colorado. Assistant Professor @ Univ of Colorado. Epilepsy & (Neuro)genetics. Advocate. Decolonizer. Rescue dog mama x 3.
@thechrisbenson.bsky.social
Report UPI.com & (sometimes) NorthcentralPA.com. I'm on: WXPI 88.5 FM (WXPIradio.org). Did: campaign stuff; HIV Planning Group @ PA Health; Obama ‘12. Views mine. Political parties = evil. Twitter: @TheChrisBenson | thechrisbenson.com
@scn2a.bsky.social
"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and, in every way, to improve the lives of not only the patients, but the entire family.
@epilepsyawareness.bsky.social
Just a fella from Liverpool with #Epilepsy Proud dad of 3 boys and 2 cats😻No football talk here that’s @RedFellaChris. It’s #EpilepsyAwareness 💜and how much #MentalHealthMatters 💚
@childneurosoc.bsky.social
Child Neurology Society's official BlueSky account for members. At the #CNS, every member counts because every child counts. Retweets ≠ endorsement.
@rafaelshimunov.bsky.social
Host of Beyond The Pale on WBAI 99.5 FM NYC, Board alum Jews for Racial & Economic Justice. Co-founder of the Jewish Vote. Art at Art V War. Queens is the Future. @rafternoon on IG
@jamaalbowmanny.bsky.social
First Black Congressman for NY16 2020-2024. Life long educator. Fighting for jobs and education not bombs and incarceration. Author. Unlocking our unlimited potential. Builttowin.org
@niemanlab.org
We are the Nieman Journalism Lab, part of the Nieman Foundation at Harvard. We're trying to figure out the future of news. 🔗 https://www.niemanlab.org/
@kfile.bsky.social
Reporter at CNN, Francesca, Maya, and Talia’s dad, founder of the Team Beans Infant Brain Tumor Fund. Donate at TeamBeansFund.com to help end infant brain cancer.
@thenation.com
Founded by abolitionists in 1865. Committed to progressive journalism. Subscribe: http://subscriptions.thenation.com.
@tmbg.bsky.social
Official. Touring the west coast right now! Los Angeles, San Diego, PortlandOR! http://tmbg.com
@coribush.bsky.social
St. Louis Congresswoman. Nurse, activist, organizer, mom, & pastor. Leading with love, fighting for regular people. St. Louis Strong (she/her)
@publiccitizen.bsky.social
Public Citizen has been standing up to corporate power and holding government accountable for 50 years. We're people-powered and accept no corporate money.
@workingfamilies.org
We are a progressive grassroots political party building a multiracial, feminist movement of working people. Text WFP to 30403 to join us. linktr.ee/workingfamilies
@ezralevin.bsky.social
Co-Founder and Co-Exec Director of Indivisible along with Leah. Organizing with local Indivisible groups against this fascistic clown show of an administration and congress.
@jfrejnyc.bsky.social
Building a vibrant Jewish Left in NY, fighting arm-in-arm with our neighbors for care not cops. Extremely pro-glitter.
@joaquincastrotx.bsky.social
Texas Congressman. Democrat. Born, raised and represent San Antonio. Intelligence Committee (HPSCI) + Foreign Affairs Committee (HFAC).
@fetterman.senate.gov
United States Senator fighting for the people of the Commonwealth of Pennsylvania. www.fetterman.senate.gov
@anothermarissa.bsky.social
#CDKL5 🧬 | Former school social worker turned stay-at-home medical mama | 🎙️Producer, content creator, & co-host of the CDKL5 in Color Podcast @cdkl5incolor.bsky.social www.CDKL5inColor.com
@sciencehood.bsky.social
Scientist. Advocate. Nerd. Scientific Director at Dravet Syndrome Foundation since 2020. PhD in Cell, Stem Cell, and Developmental Biology from University of Colorado Anschutz Medical Campus.
@cathyabbott.bsky.social
Professor, eEF1A2/neurological disorders. Mostly talks about research, EDI (tries hard to be a good ally) but sometimes veers off into crafts and photos of Scotland. She/her, views own.
@calancdkl5.bsky.social
Proud of the human I have become, proud Mum, Proud Wife, Proud Social Worker and Proud Patient Advocate and charity chair - CDKL5 UK BSc in Social Work and MSc in Global Health Policy
@neurobender.bsky.social
Neuroscientist at UCSF. Studies everything related to neuronal ion channels—their modulation, their role in neuronal integration, and the intersection between these functions and neurodevelopmental and neuropsychiatric disorders.
@csaninocencio.bsky.social
Qualitative health communication researcher with a focus on rare epilepsy. Assistant Professor of Communication. LGS sibling. Founder, LGS Foundation; Board, Coalition to Cure CHD2; Advisor, FamilieSCN2A; Chair, Rare Epilepsy Network. LI, NYC & CT
@djlavery.bsky.social
Loulou Foundation, tackling CDKL5 Deficiency Disorder in collaboration with our amazing patient families.
@thevgccc.bsky.social
Raising awareness & promoting collaboration across the #calcium #channelopathies. Composed of caregivers & individuals impacted by the channelopathies, alongside researchers and clinicians focused on the 10 calcium genes. https://www.thevgccc.org
@curedravet.bsky.social
The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families. https://dravetfoundation.org
@kearneylab.bsky.social
Neuroscience | Genetics | Pharmacology | Epilepsy | Neurodevelopmental Disorders | Targeted therapeutics | Northwestern University, Chicago | Opinions are my own 🧪👩🔬🧠🧬💊
@hopeforuld.bsky.social
Hope for ULD is uniting patients, families, doctors, and researchers to fund research, treatment, and education for Unverricht-Lundborg Disease ( #ULD ), also known as #EPM1. Learn more here: https://www.hopeforuld.org/ #RareEpilepsy #genetherapy
@epilepsysparks.bsky.social
Educating re the #epilepsies 🧠⚡🔬🧬! Check out our podcast & website! We bridge the comms gaps between clinicians, academics, & people with an epilepsy!
@lauren80.bsky.social
SRF, est 2018, exists to improve the quality of life of SynGAP patients through the research and development.
@hcmefford.bsky.social
Physician scientist @ St. Jude (neuro)genetics | genomics epilepsy | rare disease | precision medicine
@curesyngap1.bsky.social
SRF, est 2018, exists to improve the quality of life of SynGAP patients through the research and development.
@aledoneuro.bsky.social
Neurologist🧠 Epileptologist, director of Vithas Clinical Neuroscience Institute & Epilepsy Center - #FND - Neurogenetics🧬 angel.aledo@vithas.es
@gc4gc.bsky.social
rare disease neurogeneticist | epilepsy | epigenetics | iPSCs | mentor & genetics MedEd | here for the science, lab fun & occasionally my tiny hooman https://sites.northwestern.edu/carvilllab/
@torierobinson.bsky.social
@EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
@madeleineoudin.bsky.social
Tiampo Family Associate Professor at Tufts University, cancer and epilepsy researcher, fierce advocate for diversity and inclusion, mom of a daughter with the SCN8A epilepsy
@rikkesmoller.bsky.social
Geneticist/Professor at the Danish Epilepsy Centre, Filadelfia & University of Southern Denmark 🇩🇰 I Epilepsy 💜 | Precision Medicine 💊 I Genetics 🧬 | Rare Disease 🦓 |
@votejgr.bsky.social
NY Assemblymember | Working Families Party Democrat | Chair, Task Force on Women's Issues | Chair, Subcommittee on Human Trafficking | #Meals4AllNY Champ | Mamá | Activist | Straphanger | 🇵🇷🏳️🌈 🇵🇾 #abortionishealthcare
@repdangoldman.bsky.social
Congressman for New York's 10th District in the House of Representatives goldman.house.gov
@nyccomptroller.bsky.social
Official account of NYC Comptroller. Working to hold NYC government accountable and secure a more just and sustainable future. comptroller.nyc.gov