ME/CFS Skeptic
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS).
https://mecfsskeptic.com/
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ME/CFS advocates
Here are some interesting accounts of ME/CFS advocates to follow that are perhaps lesser known but nonetheless very valuable.
@lievenscheire.bsky.social
Science and comedy on stage and on TV, in Dutch and English. Www.lievenscheire.com
@ezra.zone
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
@deevybee.bsky.social
Retired professor of psychology at University of Oxford. Interests in developmental neuropsychology and improving science. Blogs at deevybee.blogspot.com
@ulrichschimmack.bsky.social
Liberté, Égalité, Solidarité Freiheit, Gleichheit, Gemeinsamkeit Freedom, Equality, Solidarity
@jdwilko.bsky.social
Centre for Biostatistics, Uni of Manchester. Currently developing INSPECT-SR, a tool to identify problematic clinical trials. Research misconduct, fertility research. Own opinions.
@vincentab.bsky.social
Prof. Most tweets about R. “Polisci, it’s all about what’s going on.” http://arelbundock.com
@davelevitan.bsky.social
Deputy editor, Splinter, covering various horrors. Previous: Grid, bylines all over before that. Author: NOT A SCIENTIST: How politicians mistake, misrepresent, and utterly mangle science (2017, WW Norton). Davelevitan{at}gmail.com Signal: @davelevitan.26
@hildabast.bsky.social
Scientist (PhD; she/her), writer, cartoonist. Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress.com/ Mastodon enthusiast: @hildabast@mastodon.online
@astridmeyerknutsen.bsky.social
Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
@michelenuijten.bsky.social
Assistant Professor at the Meta-Research Center, Tilburg University, NL. Interested in reproducibility, replicability, and overall robustness of psychological science. Developer of #statcheck: a spellchecker for statistics. She/her. Mom.
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@andlon.bsky.social
Researcher and PhD candidate @ RWTH Aachen University. I work in the intersection between math, physics and software. Simulating the macroscopic world 🌍🦀 andreaslongva.com
@frozen.bsky.social
Dad, ally, and keeper of digital receipts | #MECFS since 2004 | #LongCovid since 2020 | Archivist by training | 🇨🇦 by choice | @frozen in the old 🐦 country | he/him
@ioanaacristea.bsky.social
Associate Professor @Unipd | Affiliate @METRICStanford | Scholar @FulbrightPrgrm | #Metaresearch #Openscience #Psychotherapy #Trials | @ERC_Research DECOMPOSE https://cordis.europa.eu/project/id/101042701
@minedogucu.com
minedogucu.com • teaching stats & data science by day • reading and writing stories by night • she/they/o/او • views my own • datapedagogy.com • bayesrulesbook.com • posts mostly about data science and education but also life things • 📍 Los Angeles
@jebyrnes.bsky.social
marine ecologist, online bon vivant, dad, ❤️ teaching #datasci & #rstats, byrneslab.net | floatingforests.org #BlackLivesMatter @jebyrnes in other places https://linktr.ee/jebyrnes
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@mediumwhite.bsky.social
Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
@ellecarnitine.bsky.social
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@malte.the100.ci
Professor at Uni Bern Meta Science ⸾ Research Methods ⸾ IT Security & Privacy ⸾ Problem Solving ⸾ Media Effects. https://the100.ci & @error.reviews
@ruben.the100.ci
Bayescurious evidence enthusiast at the100.ci Topics: evolution, ovulation, mutation, intelligence, personality, sexuality, R, open science & source tools. https://rubenarslan.github.io/
@giadadaros.bsky.social
@neuroskeptic.bsky.social
@forbetterscience.bsky.social
Science journalism by Leonid Schneider https://forbetterscience.com/
@thatsregrettab1.bsky.social
@Thatsregrettab1 on Twitter 👉 Not a scientist, just a nuisance 👈 Named: ‘Perpetrator 1’ by @sciguardians.bsky.social CheshireGrins@protonmail.com
@stuartjritchie.bsky.social
Comms at Anthropic; writer and podcaster on bad science. Newsletter: https://www.sciencefictions.org/ Podcast: https://www.thestudiesshowpod.com/
@urisohn.bsky.social
Pragmatic methodologist and behavioral scientist at Esade business school. Barcelona website: https://urisohn.com Blog: https://DataColada.org
@steamtraen.eu
English/Irish/EU in Spain. PhD in psychology & self-appointed data police cadet. Interested in the lower tail of many distributions. Not yet disabled. ID confirmation: https://x.com/sTeamTraen/status/1858181372126408774
@alexandernl.bsky.social
Founder Blendle (acquired), University of the Netherlands, http://POM.show
@devezer.bsky.social
Metascientist @ uidaho. I work at the intersection of behavioral sciences, statistics, and philosophy. Love thinking and talking about science. Post lots of cat and food pics. Allergic to advice.
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@siebepersists.bsky.social
Be kind Be rational Protect democracy Govern AGI Cure ME/CFS & Long Covid
@paulbuerkner.com
Full Professor of Computational Statistics at TU Dortmund University Scientist | Statistician | Bayesian | Author of brms | Member of the Stan and BayesFlow development teams Website: https://paulbuerkner.com Opinions are my own
@helenajambor.bsky.social
Data Visualization & Biomedical Science. PhD in biology, trained in art, Associate Prof Writes here: https://helenajamborwrites.netlify.app/
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@cameronpat.bsky.social
stats consultant and PhD student in Epidemiology & Biostatistics (multiple imputation, causal inference, clinical trials) @ University of Melbourne. always graph your data. also runs, bikes, hikes, etc. he/him #BiInSci 🏳️🌈 https://cameronpatrick.com/
@danielmissailidis.bsky.social
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@bigbookofr.com
🤖 A collection of over 400 open-sourced, free #RStats books. This bot posts a random entry every few hours. Maintained by @oscarbaruffa.com
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@tommysiegel.bsky.social
i draw comics for the New Yorker and candy hearts and extremely accurate birds and you can buy my books and calendars and things over on my webstore, xoxo www.tommysiegel.net
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons