@paulkeeble.co.uk
ME since 2017 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe)
@tapanuiflu.bsky.social
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand
@dreamsatstake.bsky.social
Mostly bedridden with severe myalgic encephalomyelitis/ME Interests: health, reading, nature, film, photography, art, travel, social issues Former blog: www.dreamsatstake.com
@flowermad.bsky.social
Disabled, unable to work due to Long Covid, first waver March 2020. #LongCovid #LC/ME, #ME/CFS, #POTS. Housebound since June 2020. Passionate about nature, science, gardening, art. Lefty #FreePalestine🇵🇸 Sorry I cannot afford to donate to fundraisers :(
@trainrails.bsky.social
Long covid (since March 2020), ME/CFS. POTS, MCAS, EDS. Health. Music. Comedy. Chicago. Blue. Oregon Ducks.
@68thmonkey.bsky.social
Previously an alien, but really a monkey. MECFS since 2017. ♿️🌈 Science, nature, climate, dogs, politics makes me mad but I just cant help myself. Peace & Love 😍✌️ (definitely not fear). Lucky to live in Bundjalung Country 🇦🇺 (Advocate for Bleats not Skeets)
@papillyon.bsky.social
Moderate ME/CFS, mainly housebound with my three cats. One of the MillionsMissing since 2018. #MECFS #ChronicIllness #InvisibleIllness #millionsmissing
@livingnexisting.bsky.social
Reaching out to others with #ME/CFS. Learning to live a new life after Sepsis
@rippermd41.bsky.social
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@annelouisebme.bsky.social
I used to know all things medical devices in hospitals - Biomedical/Clinical Engineering; infrequent poster; watchful waiting on ME/CFS research since May 1992; watercolour learner; living on Peramangk country
@500milesforme.bsky.social
West Wales - Gorllewin Cymru - Carer - son very severe ME - longing for him to get his life back - www.500milesfor.ME
@11raych.bsky.social
Living with ME/CFS since the 90s. Still masking. #CovidIsNotOver She/Her Living in Naarm (Melbourne)
@musechick.bsky.social
Mini painter🖌 Sporadic streamer🎮 Chronically ill & AuDHD but doing my best to create a kind, calm space to share my love of music, nature and gaming my.bio/musechick
@lambiekeke.bsky.social
Crafter | ME/CFS sufferer mostly housebound | F1 fan | Cycling fan | Science geek | Classical Music | Love lakes and mountians | Pro Scottish independence | Long-suffering wife of Andrew Etsy shop: https://handcraftedkerryann.etsy.com
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@mbiggins.bsky.social
Strong Independent Woman Striving to live my best life and to help others do the same. #MECFS #MyalgicEncephalomyelitis Dysautonomia & POTS advocate #Votedblue💙
@campaignfdj.bsky.social
A UK-wide campaign run by Disabled people, for Disabled people, run by a local charity @inclusionbarnet.bsky.social Join our campaign for updates: https://www.campaignfordisabilityjustice.org.uk/sign_up_to_support
@joannebright.bsky.social
Mild ME in 1986 after Glandular Fever. Developed Lymphedema in 80's. GP diagnosed Milroy's Disease in 90's. Severe ME from Flu in 2000. Chronic Lyme also. Borrelia free after it coming back several times. Methylation & Detox mutations are work in progress.
@chronicchannel.bsky.social
Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality. https://www.youtube.com/@ChronicIllnessChannel Clean The Air http://bit.ly/CleanTheAirUK
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@dragonflydreams-za.bsky.social
Diagnosed with #MyalgicEncephalomyelitis in 1990. Bed bound since 2017. Design personalized gifts & ME awareness t-shirts, etc. online. www.zazzle.com/store/dragonfliesanddreams. Typing is hard so not very active on social media. Johannesburg, South Africa
@siebepersists.bsky.social
Be kind Be rational Protect democracy Govern AGI Cure ME/CFS & Long Covid
@jksbluewhisper.bsky.social
📍 Chicago-ish 🐈 Woman 🥊 FK Trump (MSNBC ≠ the enemy) ☁️ Follow my "Top Tier" "List" 💌 Sang Spears, NKOTB, Swift... ♿ #MECFS #EBV #ChronicIllness... 💞 Please DONATE: https://linktr.ee/BarbiB17
@jennmeagher.bsky.social
Life stolen by Myalgic Encephalomyelitis. Waiting to be rescued by science. Science waiting to be funded by governments #MECFS
@freulingskind.bsky.social
Bücherliebende Nachteule, Mama, IT Alltag mit PostCovid, Familie, Liebe, Lachen, Tränen, Träumen & vielen Kompromissen. she/her #CovidIsNotOver #CleanAir #keinSchrittNachRechts #thereIsNoPlanetB #MECFS #MCAS #CallForPublicHealthAction 📣
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@blueforpwme.bsky.social
🇬🇧DxwM.E.1995 ex dancer,lifeguard, performer now working on writing my 1st novel to rep #pwME! I’m a dreamer,nature lover & surfer 🏄♂️🛹a few times a year if I’m lucky Many undiagnosed comorbidities! Ie LC.POTS.MCAS.DYSAUTONOMIA.EDS. GASTRO.ADHD.CHIARI/SPINAL🦋
@wanderingsally.bsky.social
Sally used to wander and wander... now merely existing in a life on hold. DoB. 330ppm Living on unceded Ngunnawal & Ngambri land.
@itsmepz.bsky.social
Music 🎶 Film 🎞️ Long form journalism 🧐 Hot Chips 🍟 Happiest by the sea 🌊 Here to hang with chronically ill & socially isolated peeps and advocate for better care for #pwME. Living small with ME on unceded Whadjuk Noongar country ("Australia")
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@anatomychristina.bsky.social
Nature is a balm for my soul, dogs make my heart sing, and I love teaching. (Anatomy & Physiology professor) Kindness is contagious...spread it everywhere! Go Blue! ...UMich💙💛 and Democrat💙 Go Pack Go!💚💛 she/her
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@joeblow604.bsky.social
Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative Former Electro-Mechanical Prototyper Inclusive #pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness #art #artist #painting #oilpainting #digitalart #photography
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@longcovidjustice.org
We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@addisonacresauthor.bsky.social
Australian M/M author who writes a little bit of everything—paranormal, taboo, horror, humour, contemporary.