Millions Missing France
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@ancirabecky.bsky.social
Survivor. Proud mother. Teacher. Activist. Trying to make a difference. #PatientAdvocate #longcovidawareness #LCDC #March15 #ValueCognition #WHN Interview with @theWHN : https://youtu.be/YUgcqJ-m7C0
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@profhelenward.bsky.social
Prof Public Health Imperial College. she/her. Social, genetic & environmental factors in health. Research & advocacy in long COVID, STI/HIV, inequalities. Patient Experience Research Centre
@meana-au.bsky.social
@drdrdrh.bsky.social
used to do science and health stuff. now do potholes. #MedSky #publichealth #healthpolicy #FBPE #NHS #NICU #Neonatology #academicsky , Be kind. Be able to change your mind- its why you have one.
@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
@mathieumolimard.bsky.social
Professeur de médecine, Pharmacologue, Pneumologue, Pdt CCM Pellegrin, Chef Service, CHUBordeaux, Stop fake news sur les produits de santé
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@laelyonker.bsky.social
The Yonker Lab focuses on mucosal immunity and disease responses related to airway infections in children.
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@putrinolab.bsky.social
@mimil28.bsky.social
#apresj20 Covid Long France association co-founder www.apresj20.fr @apresj20.bsky.social #LongCovid
@coeurvide19.bsky.social
Julie GRASSET Présidente Association CœurVide19 Association de soutien aux malades et familles de victimes de la Covid 19 #HommageNational avec Sabrina Sellami Vice Présidente
@katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
@drmelissageraghty.bsky.social
🦋 CEO of Phoenix Rising with Dr. G 🦋 Clinical Health Psychologist (Complex Medical, Rare Disease, Eating Disorders) 🦋 Medical Gaslighting Sensitivity Trainer 🦋 Keynote Speaker 🦋 #IamRare 🦓 ♿ www.phoenixrisingwithdrg.com
@alisonmdunning.bsky.social
Epidemiologist & left-leaning autoimmunie who sometimes paints for my mental health. Pronouns: Prof/she/her. #covidisairborne
@toshiakima.bsky.social
Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
@valerieeliotsmith.bsky.social
Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com Based in London, UK
@profmarciniak.bsky.social
Professor of Respiratory Science University of Cambridge. Lung doctor. Fellow St Catharine’s College. Cell biology. Pleural medicine. Rare disease. Genetics. Lab webpage = https://www.cimr.cam.ac.uk/staff/professor-stefan-marciniak
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org [email protected] Charity reg no 1199120
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@draaliya.bsky.social
Doctor | Speaker Occupational Health & Wellbeing GP/Family Medicine Member of the Faculty of Public Health through Distinction NHS Health@Work Board | NExT Director LLR ICB Elected RCGP Council Health&Work Equity | Leadership Own views
@elisaperego78.bsky.social
#LongCovid | researcher | Covid | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
@drsuzymcnulty.bsky.social
Peds Doc • mom of 2 college kids • dog mom • college softball fan • former D1 athlete • #MedSky • advocate for #Dyslexia, #Concussion care, #LTAD, #YouthMentalHealth, #LongCOVID #SuicidePrevention, #AutismAwareness • Just be kind-it’s not that hard! 💙
@corentin.bsky.social
✍️ Journaliste pour @lemonde.fr (@pixelsfr.bsky.social). 🎤 Co-host du podcast @zqsd.fr 💸 Co-fondateur de @jvlemag.com ❤️ Président du fan club des gens qui lisent les articles avant de commenter ➡️ https://linktr.ee/corentinlamy
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@kurtzermd.bsky.social
Activist doc vs interpersonal violence violence. Med Dir #TraumaInformedCare GYN Northwestern Chicago. Long COVID Mar ‘2020 #AMWA-PATH #DoctorsForAmerica #MomsDemandAction #LongCOVID Doc TIC gynecology sexmedmenopause.nm.org Posts my own & not employer’s
@antifouchiste.bsky.social
Veille et analyse sur les mouvements conspifafs #AutodéfenseSanitaire #Antivalidisme #Antifascisme #NoFoucharan
@louisem31.bsky.social
✊👩🏫😷🦠🌍♻️⏪️🤘⚗️🔬🧬📚🍫🍻🎨🎸🎮🎲🧩🎢🏕️⛰️📝😜🥳🤬🫣🧝♀️🧟♀️💃🪡🧶🦄🦓🌳🌸☀️🌙🌊🎭🚃🗺️🏝️🏛️🛡️🛏️🪩🎐 ☮️🔢🤯🧠🤗🎒🍂🎆✂️🍷❄️🐈⬛♾️🌻 Chroniques d’une malade ordinaire
@victorbaissait.bsky.social
Expert & enseignant en tech/web: fake news, IA (images et vidéos), OSINT, brouteurs, faux profils, data(viz), arnaques… Journaliste & cogérant Maccaclub. Webdesigner/dev front-end. contact: [email protected] ou ici en DM victorbaissait.fr
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@cestassezcible.bsky.social
Préparatrice en pharmacie de métier Maladie de Crohn/Syndrome de Cogan Surdité/Audisme https://cestassezcible.com/ Contre toute forme d'exploitation, animale ou humaine