Millions Missing France
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@pro2health.bsky.social
Telehealth enabled respiratory muscle trainer with 20+ years of research demonstrating performance and health improvements. #IMT #RMT #COPD #CHF #LongCovid #MECFS https://www.pro2health.com https://www.pro2health.com/research
@maudejarry.bsky.social
Écrivaine aux Éditions de Ta Mère La mère des larves🪱 (avril 2025) Si j’étais un motel 🏩 (2019) maudejarry.com
@ffhambu.bsky.social
Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Now #longcovid #mecfs 12/23, Bell 20-30 emptystands.me Homepage: https://www.bildung.uni-siegen.de/mitarbeiter/fritz
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@aurores.bsky.social
Passionnée de #sciences/médiation scientifique - #CSTI #inclusion #EM/SFC #ME/CFS
@ptswithpower.bsky.social
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science 🧐 Patient rights & power dynamics 🦾 I like solving puzzles. #NEISvoid #MedicalGaslighting
@struangrant.bsky.social
Professor of Genetics and Pediatrics, UPenn/CHOP🧬. https://orcid.org/0000-0003-2025-5302. Views my own. 🏴🇺🇸
@atanas-g-atanasov.bsky.social
Innovations in Molecular Medicine and Digital Health. PI of LBI-DHPS. Prof of IGAB-PAS. Editor-in-Chief #CRBIOTECH and #ExplorDHT. Leader of #DHPSP and #INPST 🔗Web: https://digitalpatientsafety.com/atanas-g-atanasov/
@elzorro777.bsky.social
Antifaschismus, Wissenschaften, Politik, Literatur, Musik, Film, Gaming. #ME/CFS #MillionsMissing #MEAwareness #TeamWissenschaft #TeamVorsicht #FCKNZS #noAfD #wirsindmehr #Games
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@lisatschudi.bsky.social
Family manager, caregiver, data analyst, artist and co-owner of Two Squared Media Productions, llc.
@merespite.bsky.social
ME RESPITE is a registered New Zealand Charity providing practical support to those with Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS) and related illnesses.
@unitetofight.bsky.social
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters. #UniteToFight2024 www.youtube.com/@unitetofight2024
@viralpersistence.bsky.social
fund research and clinical trials for infection associated chronic illnesses now, and furthermore provide clean energy-powered hotel cold on demand for free. medicaid, not medicare, for all. aspiring #burquesky member.
@maskblocparis.bsky.social
Collectif qui distribue des masques respiratoires (FFP2) gratuits dans Paris et petite couronne 🗼 Besoin de masques ? De conseils ? Envie de nous aider ? Contacte-nous ! 💌 #AutodéfenseSanitaire #Antivalidisme #MaskUp #CovidIsNotOver #CovidIsAirborne
@lagousse.bsky.social
Intrusion de roches magmatiques au sein de la croûte terrestre Autodéfense sanitaire et Féminisme @leplanning @[email protected]
@crunchme.bsky.social
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid. 📍 https://crunchme.org/
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@oonaghcousins.bsky.social
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@mayalongcovid.bsky.social
RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
@ravenscimaven.bsky.social
Raven Baxter, Ph.D. -- Molecular biologist helping people + companies globally learn + share science, for a more scientifically engaged world. iloveraven.com
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@yogafogie.bsky.social
DMV native. COVID long hauler. Patient-Led Research Collaborative.
@shellchat.bsky.social
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
@mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
@lizworthey.bsky.social
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected sites.uab.edu/cgds/ she/her
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@mareksjf.bsky.social
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ http://mecfs.de/was-ist-me • EN ‖ PL ‖ DE
@jannamoen.bsky.social
Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her My long COVID research newsletter: lcbreakdown.substack.com
@filowenstein.bsky.social
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more... https://www.fionalowenstein.com/ The Long COVID Survival Guide: https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/ they/them
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: [email protected] | signal: betsyladyzhets.25 | https://thesicktimes.org/
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org [email protected] #LongCOVID
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@annabookwriter.bsky.social
Author (The Ember of Elyssia Quartet, Fortune's Calling Trilogy, THE BRIDAL PARTY, THE PRINCE WITH SIX FACES). Dice roller. Disability justice advocate. All opinions mine. All around nerd. https://linktr.ee/annaholmeswritesbooks (She/they) ♿️🏳️🌈
@maskbloclyon.bsky.social
Distribution gratuite de masques FFP2 à Lyon. #AutodéfenseSanitaire Contact par messages privés ou mail à [email protected] https://linktr.ee/maskbloclyon
@associationcle.bsky.social
Association qui lutte pour la reconnaissance du Covid Long pédiatrique, la prise en charge des enfants, adolescents et jeunes adultes concernés, soutient les familles.
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@tessapinto.bsky.social
ME [+ comorbidities] post-vax in 2021. 100% bedbound since July 2023. Hope one day to become an advocate for this life destroying disease. Exponent of patient-led research & advocacy, and the right to try.
@tbadhikari.bsky.social
Public Health Researcher at Aarhus University, Denmark | Posts #GlobalHealth #PublicHealth #NCDs #Epidemiology #COPD #LungHealth, and occasionally #Nepal #Politics #Cricket & #Football Nepal🇳🇵🔄 Denmark🇩🇰
@gaby0605.bsky.social
CEO @weandmecfs Supporting our sons and everyone else fighting with #MECFS and #PAIS