Mind over MCAS
I am a cognitive scientist who suffers from episodes of severe cognitive dysfunction (Mast Cell Activation Syndrome). Never a dull moment.
#MCAS #Chronicillness #dysautonomia #disability #ME/CFS
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@rahaeli.bsky.social
Cofounder @dreamwidth.org / disabled queer cat lady / running social media since before it was "social media" and Trust & Safety since the dawn of time / do not cite the deep magic to me, I wrote it / no, I'm allergic to that, too
@mcas-wtf.bsky.social
MCAS = Mast Cell Activation Syndrome MCAS is the equivalent of having an immune system with PTSD [MCAS_WTF on Twitter]
@sato51643335.bsky.social
Researcher in the field of allergy and immunology. Mast cell-lover. Wrote a textbook of research integrity in Japanese. Ph.D (Pharmaceutical Sciences).
@atigersleeping.bsky.social
living w severe mast cell disease..🤓way before it was cool..believe in kindness-even to 🕷s..pls get💉 for those who medically can't & continue to mask up😷 #MCAS #ME/CFS #POTS #Dysautonomia
@jessmcallen.bsky.social
Staff writer & fact checker at @thebaffler.com Reporting on healthcare, especially mental health, chronic illness, and care inequalities I'm from New Zealand but I live in New York.
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@skipbidder.bsky.social
Disabled (MCAS and long COVID). Not-so-happily retired geriatrician/palliative doc. Previous professional gambler. My skeets do reflect the opinions of my current employers (The Tiny House Panther and The Emergency Backup Cat). 🏳️🌈
@sabrinapoirier.bsky.social
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis + #MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability (Unceded) #Canada https://linktr.ee/sabrinapoiriercanada
@hfrayling.com
Senior Accessibility Specialist - Many Cats Studios | Accessibility Lead - Limit Break | 🌈👂🧠 #WeAreImpact2024 I forget to reply to DMs 🤷
@romatowski.bsky.social
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
@undefinedopco.de
Platform Engineer, resilience engineering nerd, poet, writer, ERG lead. Brains, disability, retro-tech, incidents, engineering. trans/non-binary. MCAS. Autistic and ADHD. Opinions my own. turtleSpaces.org co-dev they/them 🏳️⚧️ See feeds in profile
@maricotona.bsky.social
Childless Spinster 💅 Mexicana en Chicago 🇲🇽 FuckSCOTUS AuDHD Severe MECFS POTS MCAS Sjogren's Mask so you don't get the yuppie flu too 😷
@nowhalle.bsky.social
❤️🩹 Queer, neurodivergent, disabled 📚 Writer, editor, creator 🛍️ Nowhalle.Etsy.com 💌 Managing editor of @wishbonewords.bsky.social 🔗 https://linktr.ee/Nowhalle
@patientadvocacy.bsky.social
IG @patient.advocacy @patient_advocacy_ 📧 patientadvocacy100@gmail.com Signal: patientadvocacy.100
@achronicvoice.com
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. https://www.achronicvoice.com/
@rippermd41.bsky.social
My life runs by the Murphy’s Law of illness: If something can go wrong, it will go wrong. Latest one is #MECFS but the laundry list is long. Live in New England
@equestrian34.bsky.social
My animals own me 🐎🐕🦺🐈 Domestic Violence Survivor Multiple Sclerosis Warrior It’s not about the cards you were dealt in life it’s how well you play your hand. #Resist #pro-choice #dogs #cats #horses #BlueCrew #Democrat
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@kateviolette.com
Multipurpose nerd. Engineering manager currently waylaid by a complex illness. On a mission to watch every Katharine Hepburn movie. 🏳️🌈 they (🇬🇧), elle (🇫🇷) Currently residing in Portland OR. Always a Mainer. Blog at my username!
@sarahbalmain.bsky.social
I’m just a Scottish woman who’s tattooed, pierced, chronically ill/disabled & extremely dark humoured/sarcastic! Welcome to my boring world!
@afthescientist.bsky.social
Virologist, PhD, collector of hobbies & plants, 🏳️🌈, 🐈⬛, currently in career & prof dev for scientists, AuDHD & hypermobile, she/her Pfp: sassy sketch of me - white woman with a shaved head wearing pearls & cateye glasses by @atlastalos.bsky.social
@katealexandra.bsky.social
AuDHD, POTS and MCAS, pro UBI, fan of baseball, women's hockey, reading, learning crochet. I have a body doubling service with weekly zooms - https://www.patreon.com/c/BodyDoublingwithKate. Let me keep you company while you work on your goals!
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them 🎶 iii'm still masking 🎶 working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app