Sabrina Poirier
#CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Starter Packs
Created by Sabrina Poirier (2)
Patient Partnership in Canada
These are individuals and groups in Canada working to ensure that those most affected by research are helping to design and co-lead it as full partners in the research process.
Myalgic Encephalomyelitis & Long COVID Community
Our amazing community of researchers, clinicians, patient partners, advocates, patient leaders, journalists that care, carers, loved ones, PwME and PwLC.
@uconnmhealth.bsky.social
We are an academic research center at the University of Connecticut devoted to using digital solutions and social media for health promotion and disease prevention. #digitalhealth
@lydiafd.bsky.social
Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022
@liberalca.bsky.social
Building a stronger Canada with @mark-carney.bsky.social Bâtir un Canada plus fort avec @mark-carney.bsky.social 🔗 liberal.ca/links 🔗 liberal.ca/fr/liens
@kaitlancollins.bsky.social
CNN's Chief White House Correspondent, 9 p.m. Anchor and diehard Alabama fan.
@peterstefanovic.bsky.social
Lawyer, Filmmaker, Big Issue top 100 Changemaker 2024, CEO CAMPAIGN FOR SOCIAL JUSTICE https://www.cfsj.co.uk/
@fotografie1976.bsky.social
@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
@gailbellissimo.bsky.social
She/her. Knowledge seeker, gelato lover. #patientengagement #research #mentalhealth #PatientOrientedResearch 🇨🇦
@debmaskens.bsky.social
Cancer patient advocate. Canadian. Interested in patient involvement in cancer research, evidence-based advocacy, shared decision making globally. #cansky #oncsky #kcsm #kidneycancer #shareddecisionmaking
@robbielane87.bsky.social
Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD.. Trying to get by one day at a time 🖤
@angiejackson.bsky.social
Pro healthcare. Education. Democracy. Justice. Human rights. Pro choice. Canadian
@marciamam.bsky.social
Long Covid/MECFS patient, quilter and gardener when able to be active.
@longcovidbecca.bsky.social
Long Covid since 2022, POTS and ME/CFS. All damage from one infection. Former functioning person. #CovidIsAIRBORNE 😷
@quarantegan.bsky.social
Covid is airborne. Covid is not mild (ask your neurons & vasculature). And -- Covid is not over 😷 #wekeepussafe #covidcompetentcommunity #makeairbreathableagain #maskup [art credits: Eyvind Earle, "Paradise"; Artur Rosa, "Layers of Impossibility"]
@alexholmberg.bsky.social
Educator who cares about equity and human rights. Still COVID-cautious. 🇨🇦😷
@longcovidcollect.bsky.social
Austin based non-profit dedicated to supporting & improving the lives of those with Long Covid and other chronic illnesses. Reposts ≠ endorsements. Not medical advice.
@rachel-garcia.bsky.social
Anxious with an affinity for distress. 2SLGBTQIAP+ Advocate. RN. N95 Masker. Health. Climate. Social Justice. Animal Advocate. Vegan. Photography. Bookworm. HEA. Both Grumpy & Sunshine.
@spokeswoman.bsky.social
Democrat/Resister. Voted for Kamala and Tim to save our Democracy. I think too much and speak too loudly. I refuse to bow. Proud Kansan and Septuagenarian. Coffee drinker since I was 4. LIVING THROUGH A SLOW-BURN MASS EXTINCTION EVENT.
@invisible81.bsky.social
#MECFS is like attending your own funeral. You disappear, forced to watch the world move on without you, hoping that someday, you may rejoin the living. 🇺🇸🇬🇧
@ecosgarcia.bsky.social
( he / him / él ) Husband of my husband. Human of my dog. Hoarder of my plants. ✌🏾🏳️🌈 🌳 🏳️⚧️ 🇵🇸 🇺🇦 #BLM ✊🏾
@sheilae.bsky.social
Trying to connect the dots. Curious. Realist. Dreamer. AuDHD, Long-Covid sufferer.
@drandrealove.bsky.social
👩🏻🔬 Immunology | 🦠 Microbiology 🧫Cancer Biology | 🧬 Biotechnology SciComm | Data | Snark Founder: ImmunoLogic email with inquiries | immunologic.org
@coresinai.bsky.social
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
@anitaens.bsky.social
@crookedneighbor.bsky.social
Former medical communications professional, current long covid patient and caregiver, mask daddy, scheming for better housing and social services for pwME/LC (she/her) #NoNYMaskBan
@ontapphysio.bsky.social
Physical Therapist • Athletic Trainer • Tap Dancer • Long COVID since March 2020 • 🌈 💖💙💜
@ace9801.bsky.social
ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
@defendpublichealth.bsky.social
An organization of thousands of public health professionals dedicated to defending evidence-based public health.
@jebarnard.bsky.social
#NoCoalAB #ProtectOurParks Incisive Editing Services; MECFS amateur sleuth in The Falls Mysteries from Dundurn; owned by a large ginger tomcat Linktree http://linktr.ee/je_barnard Uninvited DMs get you unFollowed
@mastcellmadness.bsky.social
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@achronicvoice.com
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. https://www.achronicvoice.com/
@sarahmwalter.bsky.social
Working to empower research participants and co-create research that involves their perspectives and priorities. Alzheimer’s, Dementia, Down Syndrome with Alzheimer’s, Clinical trials, Advocacy. PhD Candidate, University of Edinburgh
@pericoleman.bsky.social
Botanist, Quaker, grandmother, friend of dogs, and lover of all things saltmarsh & salt lake.
@harlickjen.bsky.social
Social justice. Masks. COVID is airborne. Love is love. Don't forget Sudan. Retired from teaching because the schools are broken. Now I get paid to inform. Believer of science. Teacher of kindness. ✌️
@chronicallybeee.bsky.social
screaming about disability, being immunocompromised, working in healthcare, and being a dyke | she/they
@melodyschreiber.com
Health/science + Arctic journalist Email: melodyschreiber@proton.me Signal: melodyschreiber.06 Newsletter: notadoctor.news Book: WHAT WE DIDN'T EXPECT
@leslieleeiii.bsky.social
Critic | Writer | Host http://sesh.show | See me in Exegesis Lovecraft on Tubi #LongCOVID Venmo: lleeiii🙏🏿
@marylambert.bsky.social
Director : Pet Sematary I & II, Siesta, MTV Videos, Step Up, Arrow, Halloweentown II, The In Crowd, Goldbergs, SVU, Shining Vale...
@levin.bsky.social
Digital & narrative trainings @NewMediaMentors. Host of Graphic Policy Radio: a podcast on genre media & movements for social change. 🤘🏻 🏳️🌈 🖖🏻 Public Health, unions, NYC, comic books, music history & DS9. https://graphicpolicy.com/radio/
@doodah.bsky.social
Mum of 4/Masker/Ex teacher & Home Ed-er/AFOL/Spoon carver/Crocheter/Crafter/Remainer/Longer table not higher fence/#GTTO/#CovidIsNotOver
@coffeeteaanxiety.bsky.social
she/her, Filipina en España, international development and human rights professional, pop/queer/fandom culture enjoyer, illness avoider, clean air enthusiast (@coffeeteanxiety on twitter, trying to find my people and post here more often)