Mary Anne Meskis
Working as a rare disease leader to bring together patient families, clinicians, researchers, and industry to help advance research, improve patient outcomes, and enhance the overall understanding of Dravet syndrome. #curedravet
@karenswilcoxphd.bsky.social
Neuroscientist studying epilepsy and looking for cures. LGBTQ ally. 🏳️🌈🏳️⚧️ A stern warning from George Orwell -1984. “The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.”
@kearneylab.bsky.social
Neuroscience | Genetics | Pharmacology | Epilepsy | Neurodevelopmental Disorders | Targeted therapeutics | Northwestern University, Chicago | Opinions are my own 🧪👩🔬🧠🧬💊
@csaninocencio.bsky.social
Qualitative health communication researcher with a focus on rare epilepsy. Assistant Professor of Communication. LGS sibling. Founder, LGS Foundation; Board, Coalition to Cure CHD2; Advisor, FamilieSCN2A; Chair, Rare Epilepsy Network. LI, NYC & CT
@cnsdrughunter.bsky.social
🧠 🧬 Neuroscientist. Looking for new medicines for #CDKL5, #SCN1A, #SHANK3, #DHPS and other neurological #RareDiseases with #epilepsy
@clirinx.bsky.social
Clinical Research IT for Epilepsy & Rare Diseases Natural Hx Studies, Patient Registries, Electronic Data Collection Creator of The CRID and The RDDR Web: https://clirinx.com
@thecrid.bsky.social
https://TheCRID.org More data sharing, less data silos. CRID is a service that enables parents/patients create their own unique universal ID for clinical research.
@torierobinson.bsky.social
@EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
@oligoclonalband.medsky.social
Pediatric Neurologist/Neuroimmunologist • Editor-in-Chief, Journal of Child Neurology • Chair of AAN History Section • neuron embroiderer • she/her www.neurdgames.com www.Neurdle.com
@rohitmarawar.bsky.social
Neurologist with interest in Epilepsy in Older Adults, Dementia, Epilepsy + Dementia, Educator of “Hidden Curriculum” in Academia and beyond, AI for Professional Development
@zacharygrin.bsky.social
Doctor of Physical Therapy | 🏳️🌈 he/him Owner of Rethink Physical Therapy, PLLC | NYC I help people living with FND take back control. www.fnd.physio
@rikkesmoller.bsky.social
Geneticist/Professor at the Danish Epilepsy Centre, Filadelfia & University of Southern Denmark 🇩🇰 I Epilepsy 💜 | Precision Medicine 💊 I Genetics 🧬 | Rare Disease 🦓 |
@aledoneuro.bsky.social
Neurologist🧠 Epileptologist, director of Vithas Clinical Neuroscience Institute & Epilepsy Center - #FND - Neurogenetics🧬 angel.aledo@vithas.es
@emmmkaay.bsky.social
Mets, Giants, Rangers, family and a whiskey neat 💙 she/her, with a NeuroPace & few seizures here and there.
@childneurosoc.bsky.social
Child Neurology Society's official BlueSky account for members. At the #CNS, every member counts because every child counts. Retweets ≠ endorsement.
@sarahtefft.bsky.social
Pediatric nurse practitioner | epilepsy | keto4epilpesy| epilepsy genetics | EFEPA board member #livelikemike | Views are my own 💜
@sciencehood.bsky.social
Scientist. Advocate. Nerd. Scientific Director at Dravet Syndrome Foundation since 2020. PhD in Cell, Stem Cell, and Developmental Biology from University of Colorado Anschutz Medical Campus.
@fancypants77.bsky.social
She/Her, Liberal, Feminist, Mom #Antifascist #FThePatriarchy #CureDravet Life long democrat. 💙💜💙💜 https://www.tiktok.com/@melanie_dravet_mom?_t=8rSZ4dEUtFW&_r=
@mikell.bsky.social
Boston-based robotics nerd whose strong opinions do not reflect those of her employer. Come for the robots, stay for the gay pirates, Star Wars, and sarcasm. It’s pronounced “Michael”. I am cringe and I am free.
@thenotoriouseeg.bsky.social
Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
@todlaug.bsky.social
Biopharma Executive, President Dravet Syndrome Foundation, Dravet Fighting Grandfather
@curedravet.bsky.social
The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families. https://dravetfoundation.org
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app