Theron Odlaug, Ph.D.
Biopharma Executive, President Dravet Syndrome Foundation, Dravet Fighting Grandfather
@clirinx.bsky.social
Clinical Research IT for Epilepsy & Rare Diseases Natural Hx Studies, Patient Registries, Electronic Data Collection Creator of The CRID and The RDDR Web: https://clirinx.com
@mmeskis.bsky.social
Working as a rare disease leader to bring together patient families, clinicians, researchers, and industry to help advance research, improve patient outcomes, and enhance the overall understanding of Dravet syndrome. #curedravet
@sciencehood.bsky.social
Scientist. Advocate. Nerd. Scientific Director at Dravet Syndrome Foundation since 2020. PhD in Cell, Stem Cell, and Developmental Biology from University of Colorado Anschutz Medical Campus.
@curedravet.bsky.social
The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families. https://dravetfoundation.org
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app