@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@turnoftheshrew.bsky.social
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
@vickyvdtogt.bsky.social
Community organizer | Researcher | Advocate | Director of development at Research-Aid Networks 🌐 Author of The Long Covid Symptom Diary, now available in EN, NL & ES! - www.ddxpublishing.com
@ezra.zone
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@mervetepephd.bsky.social
PhD Microbiologist // Biomineralization, AMR & Biofilms // @remissionbiome.bsky.social team Defend science, resist ignorance https://twitter.com/mervetepePhD http://mastodon.online/@MerveTepe http://post.news/@/mervetepephd Ankara/New York/Tel Aviv
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@carolinechristian.bsky.social
Professor #ssu, writer, mother disabled by #hEDS #MECFS #LC; I write a blog called Frozen in Amber about the science of and lived experience w/ #hEDS #MECFS #LC | chronicallycaroline.com
@dguckenheimer.bsky.social
🥄 Sociologist, writer, feminist, anti-facist, anti-racist, disability justice activist. 🏳️🌈 Pronouns: she/they #livingwithableism #resist
@ellecarnitine.bsky.social
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
@mvgutierrezmd.bsky.social
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
@angelamswinca.bsky.social
🦠😷♿️#LongCovid disabled | 📢Chicané activist | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
@brianvastag.sciencemastodon.com.ap.brid.gy
Occasional science reporter at The Washington Post and elsewhere. Disabled by complex chronic post-viral illness. Living on #Kauai #Hawaii. Sometimes […] [bridged from https://sciencemastodon.com/@brianvastag on the fediverse by https://fed.brid.gy/ ]
@itswhitneywitch.bsky.social
Disability Justice Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more Ambulatory wheelchair user Cozy gamer, lazy gardener, hopeful baker
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@juliametraux.bsky.social
Disability Reporter @ Mother Jones • [email protected] • She/her • Berkeley Journalism alum • Signal: @juliametraux.49 Author page: https://www.motherjones.com/author/julia-metraux/ Free monthly newsletter: bit.ly/3Ee9lRO
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org [email protected] #LongCOVID
@georgewparker.bsky.social
Political Editor Financial Times, former FT bureau chief in Brussels. Presenter R4 Week in Westminster. Crystal Palace and Somerset CCC supporter
@tigresseleanor.bsky.social
Malum enim bonum videtur in mentibus eorum, quos deus ducit ad interitum.
@andreabarrett.bsky.social
Campaigner, Patient Advocate & Artist. Volunteer w/ NHSBT CTAG, CVF, PTHOTA. Founder: Clean Air Hampshire. Posts on: Disability Justice, gardening, Transplant Life, Clinical Vulnerability, cats, #CleanAir, Long Covid & Neurodivergence (AuDHD).😷💊🎗💗💜💙🇬🇧🇦🇹🇮🇪🐈🌱🍂
@debholloway.bsky.social
Former Professional Communicator. Alberta, Canada. Infected March 13/2020. 1st Wavers identified & named OUR disease. It is LONG COVID. Switch flipped: from victim to WARRIOR. #LongCovid https://covidtoolbox.com and https://longcovidland.com
@skeuomorphology.bsky.social
Runs the UK Covid PCR positivity map: https://jamestindall.info/skeuomorphology/ladb_covid/index.html Otherwise: literary history | philosophy of tech | EXTREME METAPHORS: Interviews with JG Ballard http://amazon.co.uk/dp/B007QOXKHI | www.danohara.co.uk
@ceri-turns.bsky.social
Politics - Eco-Socialist🍉 Green Party💚 (GPEW🏴🏴) Nature & Climate🌳 Social Justice⚖️ Covid Vigilant😷, Chair #GreensAgainstCovid (opinions my own) Feminist♀️Bi🏳️🌈 🇵🇸🇺🇦💃 🌍Lancaster, Lancs, NW 🏴 UK. 💆🌱👣Massage & Holistic Therapies at http://holistyx.blogspot.com/
@starseeker.bsky.social
C19 March 2022 caught at work #NHS Specialist || Life ⏸️ || Emotional Health & Longcovid Advocate ~ Life is Precious! 💫💕🪬☮️
@jgreen63.bsky.social
Musician (saxes, basses), artist, writer. Science advocate. Non believer. #brexitwasacon #wearffp3 #ClimateCatastrophe #zoology #animals. Banner is a tan and white boxer dog on a beach holding a long stick and looking to camera. Also writes.
@covidactionuk.bsky.social
Covid Action UK is the campaign to beat the pandemic. We are calling on the Government to recognise that Covid is still with us and that it's airborne, and for clean air, indoors and out, free tests, masks, and free vaccines for all. https://covidaction.uk
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@davidsteadson.bsky.social
Public Health academic back when Public Health was a thing. Now Entrepreneur, Raconteur, and Karateka. #LongCovid (recovered) #LongCovidKids #Kyokushin #NAFO Currently volunteering in Kyiv
@sleepyjim.bsky.social
A bit bothered by ongoing SARS2 pandemic, climate catastrophe, the rise of the far right etc etc. Generally not amused with how things are going. covidtoolbox.com
@drpops.bsky.social
Epidemiologist. PolSci, MPH, PhD. Clean Air Activist, Socialist, applied epi, vulnerable children. Sailor. Adj. Senior Research Fellow
@jammer.bsky.social
Sharks🦈 Peaks🏔️Cinephile ☕️Coffee Lover, Avid Reader. Medical Professional. #LFC #Broncos Long COVID Jan 2021. Surfing the Blue Sky🌐✌🏼
@karambales.bsky.social
Counter Disinformation Project, Former NEU and ATL union executive Freelance journalist & researcher @bylinetimes @whowhatwhy Educator Counterdisinformationproject.substack.com
@drtomlinsonep.bsky.social
Consultant Cardiologist & Electrophysiologist | Special interest: the objective nature of reality | CATA member | FreshAirNHS | Recent interest in scientific misconduct, & clean air
@0bj3ctivity.bsky.social
See the wood for the trees. #COVIDisnotOver #MaskUp #WearARespirator #COVIDisAirborne
@o-bel.bsky.social
Associate Marriage & Family Therapist under supervision of Lisa Gray MFT. Neurodiversity enthusiast, Covid conscious advocate 😷🏳️🌈🍉 https://www.oliviabelknaptherapy.com/
@karenparker2016.bsky.social
Dental Hygienist who understands #IAQ & mitigates to prevent Respiratory illness. Clean air enthusiast. HEPA filters & FarUV to Make EVERYWHERE #DavosSafe #CovidisAirborne #UpgradeYourMaskToFFP2or3 #StillMasking #UseALLtheLayers Always #Saltingthevibes
@ghostoftwitter.bsky.social
Advanced degree in engineering (beyond BS). covid is not over, politicians aren't going to solve the climate collapse.
@karmamylanta.bsky.social
Retired lawyer. OG Star Trek fan. Socialist at heart, Democrat by necessity. Nationals baseball and Pokémon GO keep me amused.
@chrischirp.bsky.social
Prof Operational Research , @UCL_CORU, passionate about health care, women in STEMs, defending liberal democracy (!). Member of @independentsage, posts personal.
@realsexycyborg.bsky.social
China's #1 Tech & DIY YouTuber Open Source, 3D Printing & Digital Fabrication, Automation, Infosec 1/18th synthetic 'It's all about merit until merit has tits' Shenzhen, China youtube.com/c/SexyCyborg
@tmprowell.bsky.social
Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky Team hope/good trouble/go high💙 https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
@gorskon.bsky.social
"Antagonist of Bhattacharya" (per Paul Thacker) & "damaging to science" (per Jay Bhattacharya). Surgeon/scientist promoting science-based medicine and Editor, Science-Based Medicine blog (sciencebasedmedicine.org). X/Twitter & Threads: @gorskon. (He/him)
@alexander-a-tin.bsky.social
Reporting for CBS News in D.C. on federal public health agencies. Raised in sunny Nevada. Email is [email protected], call/text/Signal is 202-381-7107 More places you can find me: https://github.com/tinalexander
@msmacrophage.bsky.social
Professor of Medicine, McMaster University Executive Director of the Firestone Institute for Respiratory Health Board of Directors Lung Health Foundation #macrophages #aging #respiratoryinfections #vaccinations #immunity #inflammation #scicomm
@jpweiland.bsky.social
Scientist+Engineer. Infectious disease modeler. Posts and spelling mistakes my own
@tylerblack.bsky.social
Child & Adolescent Psychiatrist, Suciidologist, and researcher. Science, Astrophotography, Japan, and Data geek. (he/him) Please subscribe: suicidology.substack.com