Alexis M.
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
@adamwong.bsky.social
@seastarsal.bsky.social
As a ME/CFS and Long Covid cartoonist, I try to comfort the afflicted and rage against the bad guys. I've had ME/CFS since 1992. cfsgraphics.com
@wendykloiber.bsky.social
So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her.
@marciamam.bsky.social
Long Covid/MECFS patient, quilter and gardener when able to be active.
@ellbail.bsky.social
Welcome to the Recumbent Renaissance. Freedom’s just another word for nothing left to lose. Amor fati. ME/CFS, longcovid, Dercum’s. Remission Biome R50. She/her.
@leonoragunn.bsky.social
PhD student at the University of Leeds, researching the philosophy of disability and the social model. Working with Chronic Illness Inclusion. Writer of weird little stories. Living with ME/CFS and trying to stay safe from covid!
@emergeaustralia.bsky.social
Not-for-Profit Organisation supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome) and long COVID. Education | Research | Advocacy | Support Services Website: www.emerge.org.au Donate: www.emerge.org.au/donate/
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@rookdigoo.bsky.social
Hey, it's me. Writer, reader, crafter, nerd, and amateur folklorist. Chronically ill (long covid) and won't be silent about it. We are still in a pandemic. Wish I was a tiny mouse living in a tiny mushroom. 🐭🍄 | She/her
@megclems.bsky.social
she/her - long COVID since 7/2020 + ME + dysautonomia 😷 ❤️ drag TV shows, knitting, poetry, and Ethnic Studies
@vanadiumzest.bsky.social
we’re still in a pandemic🍋eugenics leads to fascism🍋LC/ME/MCAS/lupus/endo🍋still with her🍋OG khive🍋always punch nazis
@coresinai.bsky.social
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
@samnorpel.bsky.social
Wife, Mom, Former Executive, now #disabled by #LongCOVID. When I feel up to it, I try to use #ArtTherapy 🎨 to express what life is like as a LC patient 🖼️ & raise awareness. I also paint flowers 💐🌺🌻 to bring a little joy.
@heatherhogan.bsky.social
your friendly neighborhood soft butch // @thesicktimes.bsky.social engagement editor // http://theheatherhogan.substack.com // #LongCOVID
@immunofever.bsky.social
Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford https://talresearchgroup.mit.edu/
@iaccsky-updates.bsky.social
Custom feeds for the IACC community (IACCs=infection-associated chronic conditions, such as Long Covid and ME/CFS). Personal account is viralpersistence.bsky.social
@amykdebellis.bsky.social
Disabled writer. Debut novel ALL OUR TOMORROWS out Feb 2025 with CLASH Books. 🖤 Also in X-R-A-Y, The Pinch, Vol. 1 Brooklyn, HAD, Hobart, etc. Rep: Aurora Fernandez at Trident https://linktr.ee/amykatherrrine
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@brokenwingpoet.bsky.social
Poet. Writing on disability & eco justice. Bedbound with Long COVID and Severe ME. 🍉 🌲 🐦 🛌 😷 #millionsmissing #disabilityjustice
@anneosterrieder.bsky.social
Public/community engagement and involvement. Interested in scicomm, global health, evaluation, EDI. Love knitting, cats, plants and Bangkok. Views are my own. She/her.
@paulwatton.bsky.social
I was "TheGodofPleasure" on Twitter. I've had M.E. most of my adult life and am still trying to find a way out of it. I believe that Prof. Bhupesh Prusty is close to providing the answers.
@aoc.bsky.social
Waitress turned Congresswoman for the Bronx and Queens. Grassroots elected, small-dollar supported. A better world is possible. ocasiocortez.com
@lumiahealth.bsky.social
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
@catherinehale.bsky.social
Independent research and policy consultant on disability employment and social security. Founder, Chronic Illness Inclusion. #pwME and survivor of medical abuse. Mum of 2 teenagers.
@neuroweaveratl.bsky.social
GSU • UNG Chronic Disease Researcher ME Action • Board Member #Neuroscience #ChronicIllness *views my own*
@littlehen.bsky.social
A bricolage of things. Nature, design, creativity, community, kindness… My profile picture is me in a pink jumper smiling, my header image is me in a purple hat taking a picture of myself in a broken mirror, the reflection distorted and fragmented.
@scienceyael.bsky.social
studying the role of autoimmunity in post-infectious syndromes 🦠 | Stanford immunology postdoc—Robinson Lab • Harvard neurobiology PhD, 2024 🧠 • scientist, writer, & teacher • 40/100 books in 2025 📚 she/her
@dredf.bsky.social
DREDF is a leading national civil rights law and policy center directed by individuals with disabilities. Website: dredf.org
@5calls.org
Your issues, scripts and representatives all in one place. Spend 5 minutes, make 5 calls: http://5calls.org
@seekingboston.bsky.social
Ty. Former marathoner & triathlete that raced with Liam. Disabled w/ Long Covid and now stage IV cancer. Advocate. Artist. I make satire long Covid advocacy videos via Man in the Robe Productions. Love my wife, kids, & family. Seekingbostonmarathon.com
@hannajow.bsky.social
Medically retired PT bc decades-long #ME/CFS, #MCAS, #hEDS, #POTS, #IIH, #CPP. Worked w/ ppl like me in a system that refuses to meet our medical needs. 🩺💉History/GINT B.A. b/f PT. #Alaskan born in #SC. 😉 Happiness is #GamecockWBB🏀🏆 #WNBA #Unrivaled ♿️👩🏼🦼➡
@seasidegp.bsky.social
She/her, NHS GP in rural Wales, #LongCovid sufferer, views my own. 😷💉💨🇪🇺
@miamingus.bsky.social
transformative justice. disability justice. pandemics. abolition. (she/her) https://leavingevidence.wordpress.com https://www.soiltjp.org
@rebeccacokley.bsky.social
Politics. Legos. Prince. #YNWA Obama WH. Disabled. Not a werewolf. 🇮🇪
@petterbrodin.bsky.social
Pediatrician & Professor of Pediatric Immunology Human Systems Immunology MRC LMS, Imperial College London & Karolinska Institutet
@dysautonomiac.bsky.social
I have a brain blood flow disease. Work @ Lumia Health. Living with #pots #mcas #eds #longcovid #dysautonomia #chronicillness #orthostatichypertension #bronchialatresia #spoonie #zebra
@aiteallcreations.bsky.social
Aiteall “AT-ell” - A fine spot of weather between showers Living with chronic illness (ME, POTS, LC) Surviving on dark humor, art, & gratitude
@criquaer.bsky.social
Queer, humanist, pantheistic Quaker. Politically non-partisan. Disabled & chronically ill #pwME #MyalgicEncephalomyelitis #SevereME 🇪🇺🗣️ 🏴🇦🇹🇩🇪🇪🇸🇫🇷🇵🇹
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia
@trans4m8tion.bsky.social
Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS Mastodon: @_trans4m8tion@zeroes.ca
@spoonfuloflindsay.bsky.social
chronic illness life & disability lit 📚🪴🌊🐕 honoring the hard & finding joy along the way migraine | SF neuropathy | POTS | ME/CFS | long COVID | MCAS | ambulatory ♿
@roomcmoo.bsky.social
Research in Connective tissue/Osteoimmunol. Strive to apply Baha'i Faith. Bird app projects: @eds_hub @smbsltpodcast being moved here eventually roomcmoo at universeodon dot com as well
@aclu.org
A nonprofit, nonpartisan, legal and advocacy 501(c)(4) organization. Visit our site for more about us and our affiliated organization, the ACLU Foundation.
@leahmcelrath.bsky.social
Politics, intl relations, psychology, etc. Making sense of a world that doesn’t Encourager and threat scanner Smith College BA, MSW | LSE #ActuallyAutistic #LGBTQ #MECFS Patreon: patreon.com/leahmcelrath Substack: https://leahmcelrath.substack.com/