multipaldev 🏳️⚧️👼🇵🇭
York & (Zach) A perfectionist and a (stoner) • Blender Appreciators • Spoonie(s) • Plural • Working on projects with @pandesoft.itch.io & @cmdrpandesoft.bsky.social See our progress in #Multipaldevlog #doppelgangerdev •
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@twoshaws.bsky.social
#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary 🌈🌈🌈🌈 | views are mine.
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
@uselesspriest.bsky.social
Long COVID, mild, since Apr 2022 ME / Long COVID diagnosed May 2024
@yogafogie.bsky.social
DMV native. COVID long hauler. Patient-Led Research Collaborative.
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@katieklocksin.bsky.social
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum 😷 Long covid is common 😷
@lonniemarcumpt.bsky.social
Wife/Mother, Science Writer, PT, HC Admin, Disease Detective, Voracious Reader, Connoisseur of Coffee, Graduate CSUN, Olive Farmer, HHS 2019-2022 Tick-Borne Disease Working Group, CDC Fdn ICUE patient advocate.
@cuboidalhug.bsky.social
@rachelriggs.bsky.social
Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life instagram.com/the.rachel.riggs #EDS #MECFS #Food #paleo #glutenfree #dairyfree
@carolbarrel.bsky.social
I enjoy cats and bicycles. I much less enjoy my chronic illnesses. #pwME
@steigerecon.bsky.social
Assistant professor of economics on medical leave from Northeastern University; macroeconomics, growth and development. Severely ill with MCAS/POTS/EDS/ME. Catholic convert who loves the balance of faith and reason. Native Oregonian.
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
@riemerville.bsky.social
Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos We are living in a choose-your-own dystopian novel
@vashetc.bsky.social
ph.d. perpetually horizontal. writer, researcher. ✍🏽 v ash e t c [dot] com — vashetc.com profile ID: brown person poses in wheelchair in front of a wall of pink paperflowers. banner: lake & mntn @ sunset. There’s a silhouette of a family in the water
@rejayjay.bsky.social
Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. 💜
@wanderingkayli.bsky.social
@wandering on Instagram ✍🏻 Disabled with Long Covid 40+ months Long COVID Researcher @sfu-fhs.bsky.social Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID https://beacons.ai/wanderingkayli
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@karriehiggins.bsky.social
Writer, Artist, Ink-Maker, Psychogeographer. Two Best American Essays notables; Schiff Award; NEA/Iowa Arts Council grantee. http://www.karriehiggins.com
@jendupuis.bsky.social
Disabled librarian turned writer • 📚 • Mom to rescue dog Clara & cat lover • #pwme #migraine #amquerying GenX upmarket/women’s fiction jendupuis.com | Detroit, MI | she/her
@mariefollayttar.bsky.social
@MaineAllCare #UniversalHealthcareNow Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist Disabled Director of Mainers for Accountable Leadership(leave) Rare Chronic Cancer survivor Long Covid, Me/CFS Autistic Wabanaki
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@ckshowalter.bsky.social
Chief Cat wrangler @ HouseOfPotats. I foster cats and tiny kittens. I also do pet hospice mentoring. [email protected] Home of KittenHappyHour ♿️ Long🦠,🐈, TexPat, CO, Wx junkie, Swiftie, https://linktr.ee/houseofpotats
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@colocharachel.bsky.social
the truest thing I can say tonight is that being disabled out of the workforce was one of the best things that ever happened to me. • “I’m just an asshole who tries hard” -Kelly Hayes • Dakota land; Minnesota but no longer Minneapolis • she/her
@sleepymidwife.bsky.social
midwife on a sleepy sabbatical; listening for those as yet unheard; mama to many; DJ; lover of history, botany, physiology, music, justice, & kindness; BLM ~living with ME/CFS 🫘
@tyffiboo.bsky.social
👩🏽🦯🦓🥄 ~Tiff E. Boo ~My love languages are oxtail and mangoes ~Pronouns: Her/She/G ~Adjectives: Bootylicious ~Hoochie Mama Advocate ~Perfecta of the Osteogenesis 💅🏽🦴 -Wear yo MASK 😷
@leeram.bsky.social
Greetings from...Where the hell am I? Is any of this real? Dabble in many art forms when able. #HSP #ME/CFS, #goldendoodlemama
@joeblow604.bsky.social
Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative Former Electro-Mechanical Prototyper Inclusive #pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness #art #artist #painting #oilpainting #digitalart #photography
@anjalifp.bsky.social
2-time Paralympian & Medalist. Disabled Researcher. Disability Activist.
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@jeannemcardle.bsky.social
@skibbityflee.bsky.social
Health and mental health advocate Schizoaffective BP1, BPD, CPTSD Leukemia, Fibromyalgia, CFS
@slh82.bsky.social
Lover of animals and wildlife/nature 🐶🌷 TV dramas, films, photography, art, news/current affairs Living with severe M.E #pwme #mecfs #fibromyalgia
@wordsbychloe.bsky.social
freelance books, culture & ♿ journo/editor/copy | author 🖋️ romantasy w/ messy, disabled girls | rep: Maria Whelan @ Inkwell | words: Independent, R29, Grammys, Fast Company, Bookseller etc | AuDHD | https://linktr.ee/WordsbyChloe | [email protected]
@mxworldwide.bsky.social
They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸 In "Australia" on Wurundjeri Country
@celticghirl1888.bsky.social
Family & Friends .. Celtic FC .. Scottish Independence Supporter .. Walking .. Music .. Cats .. Darts .. Festivals .. Theme Parks .. Laughter .. Mental Health Awareness .. Chronic Pain Warrior 💚
@gmuzz.bsky.social
Looking for a quieter life away from X. 20+ years in #sustainability and still fighting the good fight. Also championing / struggling with #mentalhealth and #MECFS since 2017. #PwME. Might even mention #LFC occasionally. #YNWA Feel free to connect. 😁
@resiliencebeast.bsky.social
Ecology-botany nerd, #Herbalism, sustainable food & #Organic, agricultural policy, farming, leftist, #Disability and chronic illness advocate, trans non-binary queer, writer and artist. #Agroecology #HumanRights 🍉♿️