@renegaderesearch.bsky.social
Renegade Research (RR) is a non-profit 501c3 decentralized organization pioneering patient and caregiver led research focused on ME/CFS and LongCovid... Website: https://renegade-research.org 💙 Project: @remissionbiome.bsky.social
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@katiamek.bsky.social
26. Former greek Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic https://linktr.ee/katiamek
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@tavaresspeer.bsky.social
Afro Cuban, Husband, Dog Dad, Fmr Business Analyst & an FSU Alum. I was diagnosed w/ #als 10/4/18. Still here, still fighting. #lougehrigsdisease #endals. 💙🏳️🌈 https://linktr.ee/tavaresspeer
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@neurologistmom.bsky.social
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains. 📍Seattle, WA
@amykdebellis.bsky.social
Disabled writer. Debut novel ALL OUR TOMORROWS out Feb 2025 with CLASH Books. 🖤 Also in X-R-A-Y, The Pinch, Vol. 1 Brooklyn, HAD, Hobart, etc. Rep: Aurora Fernandez at Trident https://linktr.ee/amykatherrrine
@jhealth123.bsky.social
27 | COVID-19, Clean Air & for nasal vaccines that can stop an infection:) // Deutsch & English
@mzuml.bsky.social
🏴🌏🔧🐙😷 ME/CFS sufferer * One of millions missing M. Sc. * Berlin based * Safe passage Environmentalism * Politics Radical left * Craftsman Outdoor enthusiast * Lab rat 🐀 * he/him *📍BLN Climate change <—> Social conflicts 🚫Schwurbeln verboten!
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@sebajones.bsky.social
Long covid/ME since 2020. Literary fiction. Em dash fan. Retired junglist. Guiri Madrileño. Socialista.
@sibylledahrendorf.bsky.social
former filmmaker II torn from life due to complex chronic illness II #CranioCervicalInstability #MCAS #SmallFiber #PoTS #FluoroQuinoloneToxicity #FlagylToxicity #Lyme #ME II https://sibylledahrendorf.jimdofree.com II Wer unter meinen Posts pöbelt ➜ Block
@sickandtiredaus.bsky.social
http://heymp.com.au/sickandtired http://change.org/LongCOVIDInquiry http://www.instagram.com/sickandtiredaus https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09 https://www.facebook.com/share/19nSvtGPNz/
@lundinadvocates.bsky.social
MEDICAL ADVOCATE, immune mediated neurologic illness-ie; autoimmune autonomic small neuropathy, POTS, previously Human Service Management for Medically Intensive 24/7 Residential, Disability Advocate, Elder Advocate
@fillthewhole.bsky.social
Neuroscience. Biomedical Sciences. Med Ed. Covid aware. Clean the air. Wear a mask.
@thephysicsgirl.bsky.social
Lame puns and #longcovid. Maybe some science here and there.
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@marijiserbij.bsky.social
Grunneger met Rotterdamse 'r'. Roze hoodie, panter Vans, zwarte ziel. Precies cynisch genoeg, maar flexibel af te stellen. Had vroeger al gelijk, voordat het hip werd. ME/CVS ✔️ Also available in English ME/CFS✔️
@healingfromlc.bsky.social
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@binitakane.bsky.social
Long COVID/ME interested lung doctor | Campaigner for race equality, clean air & patient voice | Independent SAGE | Co-Founder South Asian Heritage Month YouTube: @LCCWYCD Enquiries: info@thelongcovidclinic.co.uk Linktree: https://linktr.ee/binitakane
@ciarawrightphd.bsky.social
Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
@sarahlizzylou.bsky.social
She/her, Physio student on hold since Oct 2021 LongCovid/ME 🇬🇧 Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME My Twitter handle was @SarahLizzyLou
@emilyrj.bsky.social
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news, media and accessibility design consults. @emily_rj on Twitter #CripTheVote #Iowa ♿️🏳️🌈📚
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8), thanks for your patience.
@carlf.bsky.social
ME secondary to Covid vaccination. Provax/vax injured. Research and support those harmed. Current safety monitoring is not effective for these chronic conditions.
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@jdcantor.bsky.social
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@alexandrite113.bsky.social
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@peaksandwaves00.bsky.social
Love the outdoors, reading books, cosy fires and wildlife. Experienced hiker. Amateur forager. Scotland. Trying to survive with dysautonomia and chronic illness from Covid.
@ellecarnitine.bsky.social
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
@phicd.bsky.social
Another Australian (Cypriot & Greek) designer existing in Berlin. Been to hell & back thanks to the pandemic. End #prescribedharm #longcovid #MECFS check @sophsoph.psd & @berlin_buyers_club on the gram
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@megclems.bsky.social
she/her - long COVID since 7/2020 + ME + dysautonomia 😷 ❤️ drag TV shows, knitting, poetry, and Ethnic Studies
@romatowski.bsky.social
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
@thais22.bsky.social