Hoa
Graphic & web designer, mainly using this account for illness fieldnotes.
♿ Chronically ill & disabled with ME/CFS, MCAS, hEDS, Psoriasis, Endometriosis/Adenomyosis, and likely some rampant undiagnosed ADHD
Je poste principalement en anglais !
@sunny-rae1.bsky.social
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
@nickeliferous.bsky.social
One of the sickest musicians “CASIO MUSIC 2” OUT NOW https://peopleplacesrecords.bandcamp.com/album/casio-music-2
@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
@sarahoc1.bsky.social
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@atanas-g-atanasov.bsky.social
Innovations in Molecular Medicine and Digital Health. PI of LBI-DHPS. Prof of IGAB-PAS. Editor-in-Chief #CRBIOTECH and #ExplorDHT. Leader of #DHPSP and #INPST 🔗Web: https://digitalpatientsafety.com/atanas-g-atanasov/
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@ameshaa.bsky.social
Infectious disease MD (also CCM & EM) focused on pandemics, emerging infections, biosecurity, biotech.
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@coresinai.bsky.social
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@thonigilles.bsky.social
La promotion intégrée de l' #ActivitéPhysique favorable à la #Santé : de la santé des individus à la #SantéPublique. #Sédentarité; #Education; #Evidencebased; #APA CovidLong, EM, Réadaptation, Malaise/exacerbation de symptômes post-effort MPE PEM, Pacing
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@wearlumia.bsky.social
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
@scotjess.bsky.social
I love my boys (plural) even if only one of them, Elvis, is alive. 🦎🧡 💚 #TheSims (since 1). Got The Sims 4 Christmas 2014, year when shit hit the fan as I got #MEcfs Also #POTS #MenieresDisease & likely #MCAS #hEDS #Autistic late discovered She/Her
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@vmatthiesboon.bsky.social
Professor by Special Appointment - Head of Department of Ethics and Political Philosophy, Radboud Uni. Interests: Long Covid, Health Justice, Postviral Ethics, Trauma, Critical Theory,
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@daniellebeckman.bsky.social
Neuroscientist into virology & microscopy. Researcher at the California National Primate Research Center Long Covid Advisory Team: https://whn.global/long-covid-advisor. Cure #LongCovid daniellebeckman.com
@mecfsclinicmn.bsky.social
We are a free clinic staffed by all volunteers to treat ME/CFS and Long COVID.
@renegaderesearch.bsky.social
Renegade Research (RR) a non-profit 501c3 decentralized organization pioneering patient/caregiver led research focused on ME/CFS and LongCovid • https://renegade-research.org 💙 Project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
@christinalaw.bsky.social
Struggling with #MECFS, #celiac, #migraine Former Financial/Data Analyst and College Economics Lecturer. https://christinalawrence.me
@huisartsrossen.bsky.social
MD, GP in the Netherlands. Huisarts in Noord Limburg. Praktijkhoudend. Opleider van aios sport en coassistent.
@robertb1.bsky.social
Post covid, 100% disabled (WIA, Netherlands). Father of three. Msc in ecological crop protection and plant breeding. Loves photography, forever DM for my family and adults, and short story teller. Now learning how to cook smarter with LC. No DM's please
@nelec.bsky.social
@jeffmyau.bsky.social
family guy • neuroscientist in Houston interested in touch, the body, and multisensory processing • views are mine and not my employer’s • he/him • proud immigrant • mask wearer • RT≠endorse #CIDP #autoimmune 🐆
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@amyhoy.bsky.social
- OG web - design - hci - reading - writing - saas biz - edu biz - photos - cats - desert - she
@lazerwalker.com
Experimental games, interactive art, OSS tools. Was games advocacy lead at MS/Xbox, currently a full-time Very Sick Person. Organizer, Roguelike Celebration (and formerly !!con). Disabled (ME/CFS), queer, neurodivergent. https://lazerwalker.com she/her
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@eleanorsews.bsky.social
Retired lecturer/therapist. Interested in politics, music, culture, science, languages and disability-woke AF I’ve been in the #ME owners club for decades 👩🏼🦼➡️ Angry but peaceful. She/her Uninvited DMs = Instant Block Maker of #FanningTheFlames cartoons
@longcovidpharmd.bsky.social
Pharmacist interested in Long COVID and ME/CFS research Pro-mask, pro-clean air! Substack: https://pharmd.substack.com/
@karlpybara.bsky.social
30-something French-Canadian (he/him-ish) Chronically Ill (MECFS) Mostly Bed-bound. Witchcraft, Video Games & Horror Movies. (pfp - picrew by pepperjackets) 🎬 https://letterboxd.com/karlpybara ☕ https://ko-fi.com/karlpybara
@craziedaizee.bsky.social
I have dreamed a dream but now that dream is gone from me. (former?) grand-masters #runner Please support #LongCovid research #LongCovidAthletes #MastersRunning #RunSky
@queerandloathing.bsky.social
Severe M.E./LC having creature in a room somewhere in the Netherlands They/them Ready to Return to the Woods. And to my art and writing.
@idea-alchemist.bsky.social
LC July 2020 🧠 🌿 Idea Alchemist, #LongCovid explorer, virology & neuroscience nerd. Tristate Area 📍 Twitter/X: idea_alchemist
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@winstonblick.bsky.social
#MECFS post-viral #longhauler | ally of #LongCOVID | quoter of @mecfsquotes | previously, 🚵🏼♂️ 🏂 🏃🏻🏕️ 📖
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/