Hoa
Graphic & web designer, mainly using this account for illness fieldnotes.
♿ Chronically ill & disabled with ME/CFS, MCAS, hEDS, Psoriasis, Endometriosis/Adenomyosis, and likely some rampant undiagnosed ADHD
Je poste principalement en anglais !
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@cfsresearch.bsky.social
Interested in research into ME/CFS/MECFS, FND and related conditions. https://medium.com/@cfs_research
@vivreavec.bsky.social
♿🌈🐇🌱 Tous mes liens : vivreavec.fr/liens Bientôt de retour : vivreavec.fr
@kateviolette.com
Multipurpose nerd. Engineering manager currently waylaid by a complex illness. On a mission to watch every Katharine Hepburn movie. 🏳️🌈 they (🇬🇧), elle (🇫🇷) Currently residing in Portland OR. Always a Mainer. Blog at my username!
@lapsyrevoltee.bsky.social
Psychologue clinicienne • Féministe intersectionnelle • Gauchiste végane • 🏳️🌈 • Gameuse & Rôliste JDR • Créatrice #ApresJ20 • TSA, Handi & Malade chronique • J'aime mes chats #ThalieFamily https://linktr.ee/lapsyrevoltee
@erincandy.bsky.social
🇨🇦Just a chronically ill East Coast girl with a sailor mouth. #NB History/Science/Politics/Gaming/Movies/ #Leafs Hockey/Creator/Cat Rescuer Leukaemia cancer survivor! Anti-fascist/Anti-disinfo activist. Battling #LongCovid since March 2022 #MCAS #POTS ♑
@rahaeli.bsky.social
Cofounder @dreamwidth.org / disabled queer cat lady / running social media since before it was "social media" and Trust & Safety since the dawn of time / do not cite the deep magic to me, I wrote it / no, I'm allergic to that, too
@ohtwist.bsky.social
Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed) https://ohtwist.com
@bookhaven.bsky.social
Neurodivergent library ghost 👻 Napping instead of making lemonade 😴 ♿🦓🛏️ 😷 📚🚀 Don't share my posts on other platforms without asking. Header: Will Santino 🍋🥛 PFP: Pies Are Awesome 🥧
@arianek.bsky.social
Co-founder Textillia.com! ✂️💕• SFU Geog • Public health/urban planning/open source nerd • Sick AF #Sjogrens #Dysautonomia #IVIG #IatrogenicIllness • ♿️🌈🇦🇲🦆🐶🖖📚💌🌿 • Vancouver • she/her • C4C🇨🇦 FB: https://www.facebook.com/groups/care4complexcanada/
@lyndallc.bsky.social
I talk a lot about MCAS and TTRPGs. Canadian-Australian living in Alberta. Probably won't follow you if you're American. I get enough of that on every other social platform. Occasional Christian-posting. Occasional Ace-posting.
@bettje37.bsky.social
one of the #MillionsMissing, book lover, moderate/severe ME, favorite artists Amy Winehouse and J.S. Bach, not creative at all. Brain fog very bad, please excuse weird language now and then. #ME/CFS
@petecaruso.bsky.social
Interested in research and awareness of invisible chronic illnesses: ME, Long COVID, Post Vaccine injury, POTS, Sjogrens, and Lyme. Pfp: A man wearing a green face mask Banner: Colorful MEmes from patient-led Long COVID and ME awareness
@aceanbender.com
avi: me, a late-30s white guy with glasses and a mustache. banner: protect trans kids knife by @animus.bsky.social tear down the bo statue. writer on hiatus. me/cfs since 2005-ish. long covid superstar. audhd all-star. disabled at home. he/him.
@roelgrif.bsky.social
Mathematician, musician and numbercruncher. GroenLinks-PvdA member. Follow the mirror account @roelgrif.mstdn.social.ap.brid.gy to see my mastodon posts on BlueSky.
@franceculture.fr
▪️ Culture, arts, documentaires, débats et société... Compte officiel de France Culture 👉 https://www.radiofrance.fr/franceculture ▪️ Pour suivre nos productrices, producteurs, journalistes et nos émissions en un seul clic 👉 https://go.bsky.app/UG5sNwJ
@uselesspriest.bsky.social
Long COVID, mild, since Apr 2022 ME / Long COVID diagnosed May 2024
@vonhatti.bsky.social
Unwell book editor, once actor/cabaret. Fake name, real face. #ChronicIllness #Publishing #Cats #Languages #ComicSongs https://m.youtube.com/@Theheraldpatch
@callirhoe.bsky.social
Parisian activist. Chronically ill engineer. Climate, energy, healthcare and anti-ableism | Climat, énergie, santé et antivalidisme. EDS, ME/CFS and ophthalmology. English literature and fantasy lover. Posting in 🇫🇷 and 🇬🇧. https://linktr.ee/callirhoe_
@lauredasinieres.bsky.social
Journaliste Santé, psycho, genre et sexualité. 🌱🦄 Iel/they/them https://ginkio.com/laure-dasinieres
@lehmanndrc.bsky.social
Romancier, médecin, rôliste, GNiste, geek-vintage. Journal de Pandémie dans Libération. Auteur de la trilogie « No Pasaran ». www.christian-lehmann.org "Navigating the tumultuous galaxy of politics with the grace of a Gamorrean guard in a tutu"
@eleanoralbaugh.bsky.social
Crafter by necessity to stay occupied whilst dealing with health issues. MCAS PoTS Hypothyroidism (need T3 for life) ME. Please entertain me and lets connect. In a previous life xcountry skier, hen and beekeeper, keen gardener and HCW. Alt text required.
@wolkenmachine.bsky.social
In(ter)dependant researcher and toolmaker. Currently inventing programmable ink at Ink&Switch. http://wolkenmachine.nl
@nnkmll.bsky.social
Be the I in unify. Disabled artist & activist, housebound with ME, Covid cautious, loves her kitties and her bf’s butt 🩷 she/her Auteur van ‘We Zijn Allemaal Wel Eens Moe’ nu in de winkels 🥰
@saarmuller.bsky.social
Physicist with broad interest. Work experience Medical Physics, Metorology (observations including remote sensing) and semiconductor physics. Free time activities: cyclist union in Amsterdam, gardening, nature (birds!). I am deaf and wear a cochlear implan
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@esceedee.bsky.social
Horizontaalvirtuoos Nachthaker Runt af en toe een bed & brakdag Maakt* de wereld graag mooier (*handwerken, koken, fotograferen, schrijven) wanneer het lijf het toelaat 🇳🇴Trøndertun ‘90/‘91 #pwME
@millionsmissingfr.bsky.social
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche. Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@stephanekm.bsky.social
Rédacteur médical. Killer de fake news santé. Enseignant en DESMG @univ_spn. Diplômé de la HIV School of NoBullshit. Et véto sur les bords.
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@memoriata.bsky.social
musician and poet ~ autistic and chronically ill (ME/CFS since 2017) they/them
@gidmk.bsky.social
Epidemiologist. Research Fellow. Doctor of Spreadsheets. Writer (Slate, TIME, Guardian, etc). PhD, MPH. Host of senscipod Email [email protected] he/him. Find my writing on Substack and Medium.
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@shelmish.bsky.social
#PWME since 2020. Currently severe - FUNCAP score 1.3 Queer, any pronouns 🏳️🌈🏳️⚧️ Mainly here for pics of dahlias, dogs with underbites and macro bugs 😍 MA in Forensic Linguistics🧑🎓 Love my garden and my elderly pupper
@nofutureforme.bsky.social
#EM encéphalomyélite myalgique (c'est pas une maladie rare mais elle n'est pas enseignée en France) #MECFS #pwME #POTS
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@icancmeresearch.bsky.social
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)
@meadvocacyproject.bsky.social
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID. Unceded Canada
@fhronesis.bsky.social
Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
@karriehiggins.bsky.social
Writer, Artist, Ink-Maker, Psychogeographer. Two Best American Essays notables; Schiff Award; NEA/Iowa Arts Council grantee. http://www.karriehiggins.com