Hoa
Graphic & web designer, mainly using this account for illness fieldnotes.
♿ Chronically ill & disabled with ME/CFS, MCAS, hEDS, Psoriasis, Endometriosis/Adenomyosis, and likely some rampant undiagnosed ADHD
Je poste principalement en anglais !
@psychanar.bsky.social
39, NB 🏳️⚧️ elle/she psychologue clinicienne (MP moi pour demander une visioconsult !), ex-inspectrice du travail TSA/TDA Ancom ❤️🖤 misandre antivalidiste antipsychiatrie véganotrope Sud santé sociaux, Attac,🔻
@jo-lae-rouge.bsky.social
Handifol anarqueer en lutte contre ce cistème validiste, raciste, adultiste, spéciste et autres -isme. ♾️ 25 ans et des paillettes. ✨
@pierrelapin.bsky.social
Photographe / animateur / streamer Retrouvez moi sur ➡️ twitch.tv/pierrelapin Écoutez moi dans le podcast PardonGPT ➡️ linktr.ee/pardongpt
@handi-social.bsky.social
Association antivalidiste + entraide et défense des droits des personnes handicapées fondée en 2001 à #Toulouse - actions juridiques, médiatiques et désobéissance civile
@handiencolere.bsky.social
Méchandicapée #Lyon - Maman solo warrior 👩🏻🦼 TSA-TDAH, rhumatisme infl, fibromyalgie, Verneuil, etc. #handicap #antivalidisme Guide de survie #mdph sur YT https://youtube.com/@handi-en-colere?si=DBy7Luf71jXFe-NK
@nikoladbrc.bsky.social
@louisem31.bsky.social
✊👩🏫😷🦠🌍♻️⏪️🤘⚗️🔬🧬📚🍫🍻🎨🎸🎮🎲🧩🎢🏕️⛰️📝😜🥳🤬🫣🧝♀️🧟♀️💃🪡🧶🦄🦓🌳🌸☀️🌙🌊🎭🚃🗺️🏝️🏛️🛡️🛏️🪩🎐 ☮️🔢🤯🧠🤗🎒🍂🎆✂️🍷❄️🐈⬛♾️🌻 Chroniques d’une malade ordinaire
@0pal3.bsky.social
je débarque fraîchement de Twitt3r année 2015 | antispéciste décolonial | collectif vietnam dioxine | they/them 🇻🇳 ig : trrst_crow
@somethingchronic.bsky.social
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS and more. Chronically hopeful for better days. Determined to fight against injustice so people with ME and LC are treated with the same belief, respect and kindness as any other serious physical illness.
@pennicat.bsky.social
Shy, disabled, queer, autistic. Requires alt text to follow you. Writer of contemporary m/m/m and lesbian historical novels. Book related stuff found mostly at @penthewriter.bsky.social Cornwall dweller. May actually be the cat in the picture
@oneaudhder.bsky.social
Queer, brown, disabled, and angry. In between bouts of raging about the state of things, I read books and play video games. #DisabledPeopleExist
@qtcham.bsky.social
Blessed to bliss Long covid/ME sufferer attempting to see if eating the rich is an effective cure Letterboxd: https://boxd.it/nVfz
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@artasemita.bsky.social
Systems scientist Researching the etiology and pathogenesis of Long COVID and Myalgic Encephalomyelitis (ME)
@marushka-t.bsky.social
PwME since 2000. Focused on queer & disability rights and advocacy. Allergic to pseudoscience. Looking forward to the decline and fall of the neoliberal empire. 🇨🇦🏳️🌈🏳️⚧️🇺🇦🇵🇸 #ME/CFS #2SLGBTQIA+ #covidcautious #neverPoilievre
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@allie-c2.bsky.social
You may remember me from twitter before it went to shit. I have cptsd (bpd alot better after years of therapy). Basically recovered ocd & osdd. In the process of audhd diagnosis. Possible mild/moderate me/cfs. I also have antiphospholipid syndrome & ibs.
@sickbaycheese.bsky.social
she/they • Disabled • Soapmaker • Standard Nerd • Mom • I love: Star Trek | Golden Girls | coffee | cats | gaming | photography | science | documentaries #IDIC #hEDS #POTS #MCAS #PsA #Migraine #SalicylateSensitivity
@asinametra.bsky.social
They/She Disabled Genderqueer Bisexual Disaster, est. 1989 BLM ACAB 🍉 RPs may be 🔞 FFXIV NA: Naia🌊 Guldstyr🌟 Blooming🌹
@stenhelmfrid.bsky.social
Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS. Stockholm, Sweden
@bencoates1.bsky.social
Author - 'THE INVENTION OF AMSTERDAM' out now! (https://amzn.to/2QJx3bh). Writer, aid worker, speechwriter, recovering Tory. Columnist @ADnl; articles NYT, Telgraph, New Statesman, Groene Amsterdammer etc. Still available on Elon’s hellsite too!
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@dysautonomiac.bsky.social
I have a brain blood flow disease. Work @ Lumia Health. Living with #pots #mcas #eds #longcovid #dysautonomia #chronicillness #orthostatichypertension #bronchialatresia #spoonie #zebra
@lessorfewer.bsky.social
PhD geography: money & finance • Life mostly on hold from Long Covid 03/2021 • 개리말고 가리 ________________ 🇮🇪 | https://linktr.ee/g_a_r_y
@jenroses.bsky.social
@jcontraire.bsky.social
Interests: Civility | Democracy | Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow doesn't imply endorsement
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@musargenteus.bsky.social
Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has. -- Margaret Mead
@heniek-htw.bsky.social
Look deep, patiently into nature & then you will understand everything better.
@laurajerramp.bsky.social
Equality, Disability Rights, Early Years Education, Long Covid, Social Care, Art and Humour. Views my own.
@paulwatton.bsky.social
I was "TheGodofPleasure" on Twitter. I've had M.E. most of my adult life and am still trying to find a way out of it. I believe that Prof. Bhupesh Prusty is close to providing the answers.
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@technicoloursheep.bsky.social
Hi. severe #MEcfs #longcovid #MCAS #POTS ♿️ | Ex-Film industry worker📽 | they/them
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@thatmegbee.bsky.social
Apihtawikosisân (Fed: Métis Nation of Ontario), 2S indiginerd doing weird-ish things. Slowly healing from burnout/ME/CFS. Lead Designer at Achimostawinan Games (go play "Hill Agency: PURITYdecay") https://linktr.ee/meaganbyrne
@vashetc.bsky.social
ph.d. perpetually horizontal. writer, researcher. ✍🏽 v ash e t c [dot] com — vashetc.com profile ID: brown person poses in wheelchair in front of a wall of pink paperflowers. banner: lake & mntn @ sunset. There’s a silhouette of a family in the water
@atranscendedman.bsky.social
Transparent to the transcendent. Wrote a book on Long Covid. - https://jondouglas.dev/longhaul/ Extraordinary claims require extraordinary evidence. - Sagan
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@swalexander.bsky.social
Chiari Malformation, Dysferlinopathies (DYSF gene), Post Polio (PPS), POTS, PEM, Tarlov Cysts, Spinal Stenosis, Ankylosing spondylitis, Adrenal insufficiency, Lupus, LC, VWF+APS, Cold Allodynia.
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@danielmissailidis.bsky.social
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications