#NotJustFatigue
We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue. Visit www.notjustfatigue.org
@hidfid.bsky.social
RN, PhD drop-out (for now at least) 💓 Peds & NICU. Mom of 2 energetic boys & wife to 1 great husband. POTS (likely LC triggered), MCAS, ME/CFS, HSD & Endometriosis. #pots #longcovid #wearlumia
@ravenvyper.bsky.social
Sci-Fi/Fantasy Romance Author from Malaysia | BIPOC | Chronic Illness | Mental Health | Disabled | Little Tempest in a Teacup | Plant Lover & Pet Mom. 🌺🐾 | https://linktr.ee/authorjepeter15
@clairerobson.bsky.social
Whimsically sardonic feminist/mom/writer/gardner Actively striving for an equitable world Autism/Multiple Sclerosis/Ehlers-Danlos/Menieres ClaireRobson dot com Tik Tok: clairerobsonwrites
@verityholloway.bsky.social
Strange fiction, weird history. Lost member of the PRB. Marfan syndrome. Will-o’-the-wisp. Victorians, folklore, bad medicine. THE OTHERS OF EDENWELL and CHEER THE SICK out now.
@jjclapton.bsky.social
Reader. Writer. Crafter 🏳️🌈🇮🇪🇮🇨 Chronically ill. Queer. Autistic It's easy to remember, I'm AAAA - agender, ace, aro-spec, & autistic. Featuring: ME/CFS, cats, crochet, f1, SFF books. My YA scifi: A STAGE OVER RUTHLESS STARS out now!
@jaxxi.bsky.social
•writer•vegan•sick for a living🌈🍀💙 Brotherton Prize 2024 - Live Canon Prize 2025
@marbledmayhem.bsky.social
Poet, publisher, essayist, crip—PhD on gender, genre & disability at NTU, Singapore. Vising PhD Fellow: IMH, Durham. Digital Editor at Osmosis Press. Debut collection: 712 Stanza Homes for the Sun (2023) (they/them)♿️🏳️⚧️
@clairerwade.bsky.social
Author of THE CHOICE. Winner of the Good Housekeeping First Novel Competition. Founder of Authors with Disabilities and Chronic Illnesses (ADCI). Winner of the RNA Inclusion Award. ♿️💜 She/her https://linktr.ee/clairerwade
@tomshakespeare.bsky.social
Talks, writes, teaches. "The Ha-ha" & "The Ends" might make you laugh. Patreon https://patreon.com/Tomtalksdisabillity?utm_medium=clipboard_copy&utm_source=copyLink&utm_campaign=creatorshare_fan&utm_content=join_link
@daveghoul.com
Philly artist, DJ, & streamer | Loves spooky stuff & plays too much Fallout | Dyslexia, Dysgraphia, Dercum's Disease, Long Covid | He/him Game: https://twitch.tv/DaveGhoul DJ: https://twitch.tv/DaveGhoulDJ Stuff: https://linktr.ee/DaveGhoul
@murtoz.bsky.social
🇳🇱/🏴. He/Him. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@sickbound.bsky.social
Sick Bound: Life from bed with ME/CFS and Long COVID. A blog by Rosemary Harper. Coming soon!
@ohtwist.bsky.social
Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed) https://ohtwist.com
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@marcusfitzsimons.bsky.social
#CovidIsntOver #MasksWork #FBPPR #FBPE #FBNHS #ScrapNHSBill #GTTO #Climate #FreePalestine #CovidIsAVascularDisease. Be aware: Animal Lover. He him his. Liverpool.
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@emmajourno.bsky.social
Freelance journalist writing about medicine/health/biosciences. Bylines in BMJ, Pulse, Pharmaceutical Journal, Sunday Times, Lancet, BBC and more. Co-founder Freelancing for Journalists. Often found running up Sheffield hills.
@delafina777.bsky.social
Cranky lioness. You know me from Twitter. Cats, game design, Judaism, and very long threads. (She/her)
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@elijahlrc.bsky.social
Game developer (mostly UE5), photographer, yimby, Berkeley grad and resident, liberal. Microplasticsꙮenjoyer. Doing my best to be honest and kind. I post about politics, technology, my creative work, and other interests. Same handle on 🧵s.
@austiejfish.bsky.social
senior reporter for @sourcenm.com, part of @statesnewsroom.com. settler on Tewa land. he/him.
@fuckmecfs.bsky.social
Queer, autistic, and disabled library assistant in her late 20s. Long COVID and M.E. since 2022. Passionate about disability justice, community care, and collective liberation. 😷❤️🇵🇸
@amykdebellis.bsky.social
Disabled writer. Debut novel ALL OUR TOMORROWS out Feb 2025 with CLASH Books. 🖤 Also in X-R-A-Y, The Pinch, Vol. 1 Brooklyn, HAD, Hobart, etc. Rep: Aurora Fernandez at Trident https://linktr.ee/amykatherrrine
@theoldlostroad.bsky.social
Severe #MECFS for a very long time. Loves nature poetry children hope. Hates arrogance dishonesty injustice.
@funkishen.bsky.social
Housebound by ME (myalgic encephalomyelitis), married, has a dog, agender, lives in the forest. Gender neutral pronouns preferred. Trying to be kind.
@alexandrite113.bsky.social
@ancesra.bsky.social
Artist making furry / kemono art. SFW content NOT for minors. All my art is possible thanks to my supporters ❤ Support my works and get to see early releases much more perks in Patreon, Pixiv NSFW alt: https://bsky.app/profile/ancesra18.bsky.social
@horizontalviews.bsky.social
Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb n=50 @remissionbiome.bsky.social Poetry @diktgymnasiet.bsky.social
@mxworldwide.bsky.social
They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸 In "Australia" on Wurundjeri Country
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@mephysio.bsky.social
UK 42 year old mum of preteen, had ME since early 20’s and I am a Specialist ME Physiotherapist www.mephysio.org.uk
@ozfish.bsky.social
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
@eleanorsews.bsky.social
Retired lecturer/therapist. Interested in politics, music, culture, science, languages and disability-woke AF I’ve been in the #ME owners club for decades 👩🏼🦼➡️ Angry but peaceful. She/her Uninvited DMs = Instant Block Maker of #FanningTheFlames cartoons
@tmprowell.bsky.social
Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky Team hope/good trouble/go high💙 https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
@daniellebeckman.bsky.social
Neuroscientist into virology & microscopy. Also a nerd that loves history, movies, books and video games! In a mission to help cure #LongCovid Long Covid Advisory Team: https://whn.global/long-covid-advisor. daniellebeckman.com
@ninasteinkopf.bsky.social
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com Anti-genocide.
@davidjoffe64.bsky.social
Respiratory and Sleep Medicine Neurobiology and Long Cövid WHN Long Covid Working Group Vice Chair