RemissionBiome MECFS/LongCovid Patient-led Science
Community Science Project
http://RemissionBiome.org
@thechronicsurvivor.bsky.social
Severe ME has been my biggest teacher. Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨ Spiritual Awakening. Lessons from the void. 💖
@lymenews.bsky.social
The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@nick2155.bsky.social
ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@drannanz.bsky.social
Immunologist | Flow Cytometrist Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS Senior Research Fellow Liggins Institute | University of Auckland DysImmune Research Aotearoa www.dysimmune.nz 🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
@thenicotinetest.bsky.social
The Nicotine Test -- a patient-led research project to evaluate the benefits of the nicotine patch for people living with #LongCovid. #TheNicotineTest #LongCovid #MECFS
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@ciarawrightphd.bsky.social
Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
@phylogenomics.bsky.social
Prof at #UCDavis Interests: evolution, ecology, function & phylogenomics of host-microbe/microbiome symbioses; #openscience; #birds; baseball; T1D Lab phylogenomics.me Pics jonathaneisen.smugmug.com Links linktr.ee/jonathaneisen TED go.ted.com/6WPm
@lifeanalytics.bsky.social
Data Scientist, Patent owner of Artificial Intelligence-assisted methodology for Medical Research Discovery. Tweets are mine/not medical advice or endorsements.
@cmaddis.bsky.social
Asst. Prof. in Machine Learning at UofT. #LongCOVID patient. https://www.cs.toronto.edu/~cmaddis/
@kristenobacter.bsky.social
Scientist, mom, & dog mom. She/they. Trans rights are human rights. Long covid survivor. Pissed about the climate crisis. Tell your dog I said hi
@artasemita.bsky.social
Systems scientist Researching the etiology and pathogenesis of Long COVID and Myalgic Encephalomyelitis (ME)
@whywhy.bsky.social
Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social
@ktscofield.bsky.social
Teach Texas and Federal Government at a CC. Living with Chronic Lyme. Love to spoil my Schnauzers.
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@erinsandersnp.bsky.social
Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@katierpoet.bsky.social
Poet, cnf writer, teacher, mentor. 4 books. Managing editor at sweetlit.org. Classes for poets & cnf writers. Katherineriegel.com
@lindsaybaran.bsky.social
Disability & healthcare activist/ policy nerd/ researcher on indefinite pause Chronically ill (EDS &co, ME/LC) & HoH Chicago She/her
@stonecoldpillar.bsky.social
Vote like your life depends on it. At the very least, the future of the planet does.🌎 COVID. Climate Change. Democracy. Xitter refugee. #pwme #pwlc #longcovid #POTS
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@romatowski.bsky.social
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
@himmatb.bsky.social
Writer + editor on pause due to Long Covid/vaccine. Very severe and fully bedbound. ME/CFS | POTS | hEDS. he/him
@sars2isairborne.bsky.social
Has a few biology degrees. Zero covid zealot™ Hard-line scientist© Covid avoider. #MECFS #pwME If I haven't used alt text it's because I don't have the spoons, please don't shout at me about it as it could make me crash.
@immunofever.bsky.social
Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford https://talresearchgroup.mit.edu/
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedbased 6yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@longhaulerbear.bsky.social
Mike Y, 50, San Diego USA. Interests: Long Covid, ME/CFS, #RemissionBiome https://linktr.ee/longhaulerbear
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@ruhisleep.bsky.social
Mom, humanist, anti-extractive. I do research - biomedical sciences through the lens of humanities & society with a focus on praxis. Settler on Turtle Island. Better Society 🔄Better Sleep Current focus MECFS & Long COVID research/care/community
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@shelleyjules.bsky.social
MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
@mervetepephd.bsky.social
PhD Microbiologist // Biomineralization, AMR & Biofilms // @remissionbiome.bsky.social team Defend science, resist ignorance https://twitter.com/mervetepePhD http://mastodon.online/@MerveTepe http://post.news/@/mervetepephd Ankara/New York/Tel Aviv