Nuwuzoho
Former athlete taken down by covid
Here for research & discussion about #longcovid #POTS #MCAS and related conditions
Trying to work my way out of the pain cave
@drericding.bsky.social
Public health warnings & health policy. Epidemiologist & health economist. Chair and Faculty at NECSI. Former 16 years at Harvard. DC & Virginia. Bio & contact: necsi.edu/eric-feigl-ding A story: bit.ly/raisealarm 📝: drericding.substack.com/subscribe
@joclaire.bsky.social
In a recliner by my bed. Thx ME/CFS, Long Covid. Following through the haze. I used to translate complex statistics & data science into plain English. Now I struggle to articulate simple thoughts. Artist. (Claire, @canary_boots from twitter, she/her)
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@xfiles720pcinema.bsky.social
Celebrating the cinematographic superiority of The X-Files seasons 1-5, in glorious 720p straight from the classic DVD boxsets! 3-5 screenshot posts daily.
@elizacharley.bsky.social
Actress on Pause with Myalgic Encephalomyelitis 🌍 Florence, Italy <-> Melbourne, Australia 🎙️ Writer, Producer, Actor 🦋Living that Stockdale Paradox life
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@sabinehermisson.bsky.social
PD Dr. (religion, empirical education research) mother of Mila who suffers from very severe ME/CFS (Bell 0) https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf Vienna, Austria #CleanAir
@martinruecker.bsky.social
investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
@drchronically.bsky.social
Bitte keine Hilferufe über Social Media! #MECFS #LongCovid #Schattenfamilie #PflegendeEltern #Praxis #NoAfD #ÄrzteGegenRechts #Löwinnenrudel Mach dich selbstständig, haben sie gesagt. Dann hast du es viel leichter mit den Kindern, haben sie gesagt.
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@neurostingl.bsky.social
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧[email protected]
@dialoguesmecfs.bsky.social
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@susscrofa.bsky.social
Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin. Wer solche Fragen an mich stellt, wird blockiert.
@bettinagrande.bsky.social
Psychological psychotherapist Heidelberg| Charité Berlin Advocacy against psychologization of #MECFS, #PEM & #PENE Research & psychotherapy adapted to ME/CFS Paper: https://doi.org/10.3390/medicina59040719
@workwellfoundation.bsky.social
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
@kinderdocnina.bsky.social
Pediatrician, MD, Believe in science, takes SARSCOV2 as serious as it should be treated, Can‘t believe that science is that ignorant
@apresj20.bsky.social
Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
@chantalbritt.bsky.social
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli @ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
@fvrhijn.bsky.social
MD | rheumatology resident #ME due to #LongCovid Nonbinary 🌈🌈🌈🌈 | views are mine.
@mecfs.at
💛 Österreichische Ges. für #MECFS ⚡ NEWS zu #MECFS #pwME #myalgicE 👇 Informationen, Spenden, Kontakt http://linktr.ee/oeg_mecfs https://mecfs.at/
@scheibenbogen.bsky.social
Immunologist and ME/CFS researcher @Charité https://cfc.charite.de/
@ypsilondas.bsky.social
ME/CFS, invisible chronic diseases, prevention, democracy, private account
@ninaweber.bsky.social
Medizin-Redakteurin beim SPIEGEL, Biochemikerin, Buchautorin. https://www.spiegel.de/impressum/autor-de0618d4-0001-0003-0000-000000015007
@dgmecfs.bsky.social
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein. mecfs.de
@verhac.bsky.social
ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna de/en
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@renzpolster.bsky.social
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
@constanzeertl.bsky.social
journalist, ORF, Vienna persistence > contacts + competence :)
@thonigilles.bsky.social
La promotion intégrée de l' #ActivitéPhysique favorable à la #Santé : de la santé des individus à la #SantéPublique. #Sédentarité; #Education; #Evidencebased; #APA CovidLong, EM, Réadaptation, Malaise/exacerbation de symptômes post-effort MPE PEM, Pacing
@fatigatioev.bsky.social
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein. Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
@cbammermd.bsky.social
Facharzt für Innere Medizin | Nephrologe | Geriater | interessiert an #PAIS und assoziierten Multisystemerkrankungen | * Privat gerne alles mit Musik * * Skeets in DE/EN * * TwiX: @CBammerMD *
@sgme.bsky.social
💙 Fighting tirelessly for ME patients in Switzerland and worldwide 💙 #MyalgicE #MEawareness #MyalgischeEnzephalomyelitis
@longcovidch.bsky.social
Long Covid Switzerland. The voice of people affected by long covid and long covid kids. Evidence-based, provaxx, promask, protect the kids.
@johanvawe.bsky.social
Immunologist curious about viruses, cancer, evolution and all things human Likes all #systems thinking and still working out all the #omics 🤓 #immunosky #medsky #idsky
@geschom.bsky.social
Psychiatrist, stigma researcher, w/ special interest in time trends and SUD stigma. Chair of Psychiatry at Leipzig University. Opinions are my own @MHandsociety.bsky.social
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@tilmangrande.bsky.social
Psychotherapie, Psychoanalyse, Psychotherapieforschung, ME/CFS
@mastzellenhilfe.bsky.social
Wissenschaftlerin. Medizinpsychologin. Gründerin von Mastzellenhilfe.de. Mehr auf Instagram und Facebook präsent 🙂
@daltmann.bsky.social
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
@sunny-rae1.bsky.social
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
@renegaderesearch.bsky.social
Renegade Research (RR) a non-profit 501c3 decentralized organization pioneering patient/caregiver led research focused on ME/CFS and LongCovid • https://renegade-research.org 💙 Project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
@daniellebeckman.bsky.social
Neuroscientist into virology & microscopy. Researcher at the California National Primate Research Center Long Covid Advisory Team: https://whn.global/long-covid-advisor. Cure #LongCovid daniellebeckman.com