Dialogues ME/CFS
https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history.
@doctoroxford.com
Palliative care doctor 🩺 Author (The Story of a Heart, Breathtaking, Dear Life etc) 📚 Co-founder Hospice Ukraine 🇺🇦 Rep: Clare Alexander at Aitken Alexander 📝 www.doctoroxford.com
@drtonyosullivan.bsky.social
Co-chair Keep Our NHS Public Retired NHS paediatrician
@ruthmspencer.bsky.social
GP Glasgow, interests- Homelessness, addictions, mental health.
@benking01.bsky.social
Long Covid & PE recovery. GeographyTeacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba player. Devon, UK.
@goodlawproject.org
Founder and Director, Good Law Project. King's Counsel. Hon Prof at Durham University. Live your values. Fight the power. Keep the receipts. He/him. https://goodlaw.social/nm7n
@oblivionwithbells.com
I blog about mortality awareness. Humanist. Anti-authoritarianism. I have #MECFS. Reposts not necessarily endorsements. (he/him) My blog: https://oblivionwithbells.com Location: Loughborough, United Kingdom 🇬🇧
@lisawiedemann.bsky.social
researcher/lecturer/STS science and technology studies/working on ME/CFS/LongCovid/digital health/type 1 diabetes care/material semiotics
@alanrew.bsky.social
UK-based retired software developer. Interested in Art, Photography, Science, Music, Economics, Politics [mainly, UK], Geology, Physics, Chemistry, Earth Science, Architecture, Archaeology Mastodon @[email protected] Xitter @alanrew
@sherbert-lemon.bsky.social
Avid reader, occasional reviewer. Beginner genealogist & dysgu Cymraeg. Retired by moderate-severe ME/CFS & chronic migraine. Managed by Rowan. She/her.
@sam-b13.bsky.social
Progressive activist, #FBPE, believer in fairness and kindness. Hate discrimination in any form. Lover of nature, animals and their welfare. The garden/outdoors is my happy place. #EDS warrior living with #axSpA. 🇬🇧🇪🇺♿️ LGBTQ+ ally 🏳️🌈🏳️⚧️ Free 🇺🇦🇵🇸 🚫DMs 🚫GoFundMe
@drkatecushing.bsky.social
Doctor, scientist, mum, recently retired w ill health. Public Governor Newcastle upon Tyne Hospitals Trust Long Covid & CCH. Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU Wrote Little Orange Book 4 parents of babies & small kids.
@meactionuk.bsky.social
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
@anneapplebaum.bsky.social
staff writer @theatlantic. author of GULAG, IRON CURTAIN, RED FAMINE, TWILIGHT OF DEMOCRACY and now AUTOCRACY INC https://linktr.ee/anneapplebaum
@longcovidcan-co.bsky.social
We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
@chrisnsimms.bsky.social
Science journalist writing for New Scientist, Nature, Scientific American and Live Science. Formerly an editor at New Scientist and Nature. Selection of articles here: https://www.newscientist.com/author/chris-simms/
@timothysnyder.bsky.social
Levin Professor of History at Yale. Author of "On Freedom," "On Tyranny," with 20 new lessons on Ukraine, "Our Malady," "Road to Unfreedom," "Black Earth," and "Bloodlands"
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@jebarnard.bsky.social
#NoCoalAB #ProtectOurParks Incisive Editing Services; MECFS amateur sleuth in The Falls Mysteries from Dundurn; owned by a large ginger tomcat Linktree http://linktr.ee/je_barnard Uninvited DMs get you unFollowed
@marynmck.bsky.social
Journalist. Contributing Ed at Scientific American. Senior Fellow at Emory Univ's Center for the Study of Human Health. Books: BIG CHICKEN, SUPERBUG, BEATING BACK THE DEVIL. All my stories at https://authory.com/marynmckenna. Fiber artist, cat wrangler.
@cathiemullen.bsky.social
Irish in Germany. International educator, lover of words and stories and trees and cats! Stinging Fly Summer School, The Mersey Review. Currently finishing a memoir.
@500milesforme.bsky.social
West Wales - Gorllewin Cymru - Carer - son very severe ME - longing for him to get his life back - www.500milesfor.ME
@westenglandbylines.co.uk
Powerful citizen journalism from the west of England https://westenglandbylines.co.uk Part of the @bylinesnetwork.co.uk of independent, not-for-profit newspapers across the UK
@emilychatelet.bsky.social
Biochemistry Geek, Research Analyst, Dogged Advocate, Optimist In Spite of The Deluge.
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
@swiftsandswallows.bsky.social
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect. I am also the parent carer of a younger daughter with ME & POTS. Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
@moleyme.bsky.social
Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
@giadadaros.bsky.social
@decodemestudy.bsky.social
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 https://www.decodeme.org.uk/
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@lizworthey.bsky.social
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected sites.uab.edu/cgds/ she/her
@doc4care.bsky.social
Physician. Recovered from Long Covid in 2022 after 2yrs. Metformin, TLR4 quieting, microclot busting, NRF2 promoting, HIF1a limiting approach. “Hypoxic theory of disease” Treat Long Covid and MECFS. Medical Director for Renegade Research
@jefflubellc19.bsky.social
I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
@oonaghcousins.bsky.social
@putrinolab.bsky.social
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@danielmissailidis.bsky.social
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
@thewhn.bsky.social
Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
@davidjoffe64.bsky.social
Respiratory and Sleep Medicine Neurobiology and Long Cövid WHN Long Covid Working Group Vice Chair
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@richellesepulveda.bsky.social
Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.