AQEM - Association québécoise de l'encéphalomyélite myalgique
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc
#EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
Starter Packs
Created by AQEM - Association québécoise de l'encéphalomyélite myalgique (1)
besties
amo muito estes aqui
@longcovidcan-co.bsky.social
We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
@altnps.bsky.social
The official "Resistance" team of U.S. National Park Service. Our website: www.ourparks.org
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@sarahdorner.bsky.social
Génie de l’environnement. Polytechnique Montréal. Google Scholar : https://scholar.google.ca/citations?user=S2HhkvEAAAAJ&hl=en
@floriannaye.bsky.social
PhDc Shared Decision Making, Chronic Pain, Université de Sherbrooke
@annebhereur.bsky.social
Médecine familiale/soins palliatifs / Family & palliative medicine 🛑 par/by COVID-19 x 12/2020 ➡️ Recherche #CovidLongue #ACAI / Research #LongCovid #IACC - Post ➡️ Ø avis médical / Ø medical advice!
@associationcle.bsky.social
Association qui lutte pour la reconnaissance du Covid Long pédiatrique, la prise en charge des enfants, adolescents et jeunes adultes concernés, soutient les familles.
@kiannha.bsky.social
Neurospicy Occupational Therapist, Disability & Trans Advocate fighting to survive as immunocompromised, with Long Covid, PEM, POTS, MCAS, HEDS
@merespite.bsky.social
ME RESPITE is a registered New Zealand Charity providing practical support to those with Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS) and related illnesses.
@sunshineseeker.bsky.social
Activist at heart. #AuDHD #neurodivergent with #MyalgicE and co-morbid illnesses. [she/her] Hoping and doing my best for a better tomorrow, currently from my bed. ~ Autistin mit ADHS, bettgebunden aufgrund von ME und komorbiden Erkrankungen. [sie/ihr}
@romatowski.bsky.social
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
@iktsuarpoked.bsky.social
Severe ME/CFS going on 2 years, Optimistic 🛌🐛 , California mom, absurdist , Poké trainer, old enough to remember Friendster, she/her, 🏳️🌈 😴💤
@hedsphysicist.bsky.social
X @hEDS_Physicist | Insta @hypermobile_physicist #Bisexual PhD Physicist & industry engineer journeying and blogging through #ChronicPain with #hEDS #MCAS #dysautonomia. Posts not medical advice. #BLM https://linktr.ee/hypermobilephysicist
@bendyhedsandco.bsky.social
For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #NEISVoid #MedEd for EDS/HSD & co 🔗 conditions go to: 👉 https://gptoolkit.ehlers-danlos.org/ 👈
@livingnexisting.bsky.social
Reaching out to others with #ME/CFS. Learning to live a new life after Sepsis
@apeskygirl.bsky.social
Tree hugger with ME/CFS since 1992. #MEAction volunteer. Patient Advocate. OMF & Stanford Study Participant. ME/CFS • ND • POTS • EDS • One of the Millions Missing. Former Copywriter and Art Director. Now I watch squirrels and make things.
@jimlebrecht.bsky.social
Co-director, Co-producer, with Nicole Newnham, of the documentary Crip Camp. Filmmaker, disability rights and justice advocate/activist, Co-founder of FWD-Doc.org. #Save504
@liapas.bsky.social
#SciArt symptomatology and #anatomy #embroidery, writing, and #MECFS. A bit of music too. Canadian settler. she/her. https://linktr.ee/lia_pas
@drericding.bsky.social
Public health warnings & health policy. Epidemiologist & health economist. Chair and Faculty at NECSI. Former 16 years at Harvard. DC & Virginia. Bio & contact: necsi.edu/eric-feigl-ding A story: bit.ly/raisealarm 📝: drericding.substack.com/subscribe
@nmjk.bsky.social
The State of Me, HarperCollins, 2008 | Shortlisted Bridport Flash Fiction Prize 2012 & 2023 | Love books, tulips, jazz, birds, French films | Novella-in-progress | Had ME since 1983 https://www2.societyofauthors.org/soa-member/nasim-marie-jafry/
@cbme-mark.bsky.social
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK. Pronouns: depends how the day pans out
@jceoltasmith.bsky.social
Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
@ruairidhm.bsky.social
Long Covid since March 2020. “Nothing about me without me” - doesn't seem unreasonable. Previously: health research, public health, technology assessment and appraisal Also some Shetland!
@dormousediaries.bsky.social
Cartoonist, #BylinesNetwork, occasional artist, writer and sketcher of things. Likes tea and books. Sometimes hibernates. Living with #LongCovid
@ravihvj.bsky.social
Post-Covid ME/CFS since March 2021. Before then, a life I loved. Stanford History | 2021 Schwarzman Scholar
@jamesglen.bsky.social
Having a bit of a break O_o ● Founding member @LongCovidSupport ● Long Covid & MECFS advocate #FBLC ● Arts Centre Director ● Watford FC fan ● #FBPE 🇪🇺
@chronicchannel.bsky.social
Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality. https://www.youtube.com/@ChronicIllnessChannel Clean The Air http://bit.ly/CleanTheAirUK
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@scribblerpen.bsky.social
Writer, editor, analyst. Disability employment rights advocate. Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid
@annakwood.bsky.social
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
@drkatecushing.bsky.social
Doctor, scientist, mum, recently retired w ill health. Public Governor Newcastle upon Tyne Hospitals Trust Long Covid & CCH. Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU Wrote Little Orange Book 4 parents of babies & small kids.
@cleanairstars.com
Non-profit. Helping businesses better protect their customers from viruses like SARS-CoV-2. Fix your air with the guides cleanairstars.com/steps. Air filter recommendation tool (non-profit) at filters.cleanairstars.com
@dalupton.bsky.social
Prof, Arts, Design & Architecture, UNSW Sydney, Australia. Clean air/COVID safety advocate/activist/researcher. Other health and digital media research too. Personal blog: https://simplysociology.wordpress.com/
@nisreenalwan.bsky.social
Professor of Public Health. Southampton, UK. Citizen of the world but also proud immigrant☀️ Posts are my own personal opinions not those of any organisation. Reposts are not necessarily endorsements. Anti-war, anti-discrimination, pro-equity, pro-feminism.
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
@christinabaltais.bsky.social
Artist exploring the intersection between art & advocacy, sharing my experiences living with ME/CFS
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com
@mmissingaus.bsky.social
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
@emilyladau.bsky.social
Author of "Demystifying Disability: What to Know, What to Say, and How to be an Ally." Disability rights activist who lives life on wheels. ♿️
@millionsmissingpod.bsky.social
Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: [email protected] / linktr.ee/millionsmissingpodcast
@missingfinland.bsky.social
ME/CFS G93.3 hoito & diagnosointi: 2021 Duodecim https://rb.gy/m9spr 2021 NICE https://rb.gy/h7eok 2021 Mayo Clinic Proceedings https://rb.gy/fd54d
@covidlonghaulers.bsky.social
Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: [email protected] #MedSky facebook.com/groups/COVIDLongHaulers YouTube.com/@covidlonghaulers Patreon.com/BrookeLine
@disabilitylab.bsky.social
DCL is a nonprofit disability media and narrative lab, by and for disabled folks. We exist to dismantle ableism and celebrate disabled community and culture. https://linktr.ee/disabilityculturelab