OpenNotes
🚀 Sharing the story of healthcare, one open note at a time.
🌐 Transparency, trust, and teamwork in healthcare.
📖 Advocates for patient access to their medical records.
💡 #OpenNotes | 🩺 #MedSky | 🌟 Join the movement for open healthcare conversations!
Starter Packs
Created by OpenNotes (1)
OpenNotes' Expanded Universe
Clinicians, social scientists, and patient advocates who are working together to identify and disseminate best practices for sharing medical information with patients, families and care partners.
@brittaminnesota.bsky.social
MSW student, journo/health undergrad degrees, healthcare nerd, ePatient, chronic illnesses, here to stir up and disrupt healthcare as we know it, I also like to talk about the weather #MNwx & #NBAGameBall PSI inflation pressures in #Timberwolves games
@mcintose.bsky.social
PhD in Biomechanics. Patient advocate. Diehard Leafs fan. Trying to survive brain cancer and make an impact along the way.
@stuartselby.bsky.social
In my 50s, married to a wonderful husband, living in Toronto, Canada with incurable brain cancer. Pharma, Pun and Food geek. Brain Cancer Canada ambassador.
@sabine-nj.bsky.social
10+ yrs. Brain Cancer Patient, Advisor & Advocate. #BTSM #skychat Organizer & Moderator. Rock Climber, Dual Citizen 🇺🇸🇩🇪, 11yo Mom, Chocolate Addict.
@btsmchat.bsky.social
The official braintumor community chat organizer handle. Follow us for updates on dates, topics, etc. Grab our #BTSM starter pack!
@fumikochino.bsky.social
#RadOnc. Reformed Artist. Cancer Widow. I study #FinancialToxicity #Access #Equity MD Anderson Cancer Center 📲me COI http://bit.ly/3OBu0Cn 🐦🪶🕊️ #medSky #oncSky migration
@juliachou.bsky.social
COO @ Abridge ✨ energy is everything Culture building, work-life integration, & finding clarity in the chaos.
@chrislonghurst.bsky.social
@craigmjoseph.bsky.social
Was a doctor who was geeky. Now a geek who is doctory. Chief Medical Officer at Nordic Global. Co-author of "Designing for Health: The Human-Centered Approach." Tottenham supporter. #COYS #informatics #healthIT #DigitalHealth #medsky
@insarkar.bsky.social
Biomedical Informatician, CEO of the Rhode Island Quality Institute, Associate Professor of Medical Science at Brown University, #julialang enthusiast, and dad of a human, two dogs, two cats, and a parrot
@bmkwan.bsky.social
Professor, Social Health Psychologist, Implementation Scientist, Colorado
@healthcareittoday.com
Leading health it community at https://www.healthcareittoday.com
@lowninstitute.org
The Lown Institute is a nonpartisan think tank advocating bold ideas for a just and caring system for health.
@ddiamond.bsky.social
White House reporter at the Washington Post. Focused on politics, policy and public health. Democracy dies in darkness. Find me on Signal: username dan_diamond.01
@puhfu.bsky.social
CMIO @CityOfHope. Prof @UCLA. Pediatric hospitalist, clinical informaticist, healthcare advocate, nerd. Go @Dodgers! #COYB @evertonfc.com! 8 👏🏼 @UCLA! Tweets my own. #MedSky #PedSky #PHMSky #ClinicalInformatics #DigitalHealth
@larrychu.md
I lead the @Aimlabstanford program, and I'm a professor at @StanfordMed. I work on tech and health care. collaborate with patients, technologists and caregivers as partners.
@pallimed.org
Writing about #Hospice and #PalliativeCare since 2005 Over 1700 posts. Search the site and you will find something interesting! #HAPC = Hospice and Palliative Care https://www.pallimed.org/
@billhersh.bsky.social
Opinions my own and not those of my employer. Professor Department of Medical Informatics & Clinical Epidemiology Oregon Health & Science University http://www.billhersh.info
@pewhealth.bsky.social
@choo.bsky.social
Emergency Medicine Doc | Mom | Writer | Health Services Research | Public Health Preserving a modicum of peace where I can. If engagement is not respectful, I will block.
@lightcollective.bsky.social
We are on a mission to advance the collective rights, interests, and voices of patient communities in health technology. https://lightcollective.org
@spjuraschek.bsky.social
Internist, hypertension specialist, epidemiologist, and trialist interest in healthy food access, sodium, heart disease, blood pressure regulation, and gout
@adamrodmanmd.bsky.social
Physician, educator, historian, author, podcaster, researcher at Beth Israel Deaconess Medical Center and Harvard Medical School, host of histmed podcast Bedside Rounds, associate editor at NEJM AI, studies 🤖+🧠. 🖖🚲
@redwoofer.bsky.social
Health policy entrepreneur. Nonprofit exec. Former teaching faculty at Johns Hopkins. FAMIA. Consumer informatics. #informaticsSky Climate justice. Views are my own.
@josh.mandel.md
Physician, programmer, and would-be pâtissier/poet. Chief Architect for Microsoft and SMART Health IT. Health tech policy, interoperability, FHIR, AI, web.
@culehmann.bsky.social
Editor, Applied Clinical Informatics
@mariahagglund.bsky.social
Assoc Professor in Health Informatics, Uppsala Univ. Sweden. Researches implementation & impact of eHealth. Special focus on patients’ online record access #ORA, telemedicine, generative AI, digital work environment, and usability.
@ctlin.bsky.social
Good Informatics / Bad Ukulele. As CMIO at UCHealth - Colorado, I post about my failures (and occasional successes) in the field of healthcare informatics. I also play ukulele informatics parody songs. Opinions are my own.
@betsylowe.bsky.social
Patient advisor & researcher- Mother- Nature lover- Amateur chef
@trentrosenbloom.bsky.social
Physician, occasional photographer and baker, Vice Chair for Faculty Affairs, and Professor of Biomedical Informatics, Medicine & Pediatrics at Vanderbilt. Sometimes I run or hike too. Posts my own.
@embimd.bsky.social
Professor & Chair Dept of Biomedical Informatics (vumc.org/dbmi), Professor of Medicine, co-Director ADVANCE AI Center (vumc.org/ai), and Senior VP for Research & Innovation, Vanderbilt University Medical Center (VUMC.org)
@gracecordovano.bsky.social
@cait-desroches.bsky.social
Data nerd, introvert, hiker, Director of @myopennotes.bsky.social, really likes baseball and dogs
@coffeemommy.bsky.social
Strategic Advocacy Partnerships & Patient Engagement. Co-Creation & Community Building. 💗 Coffee drinker. Gardener. Wife. Mom. Breast Cancer. 🙃 Advocates for Collaborative Education (@advocatecollab.bsky.social) #MakeCancerLessShitty #PublicHealth
@stage4kelly.bsky.social
Former ob/gyn. Current metastatic breast cancer patient/advocate. Grant reviewer. Conference goer. METAvivor board of directors. #NotDeadYet since 2013 she/her. #bcsm #oncsky #cansky Also: #Swiftie #SwiftieOver60
@janicetnbcmets.bsky.social
🌍 Avid Traveler | Proud Nana of 3 | #MetastaticBreastCancer #PatientAdvocate / Knowledge Seeker | Retired Nurse | Dx #mTNBC 2016, “Dancing w NED” since 11/2016 | 🚫politics | @METAvivor @The_Right_Dose @OncoAlert #bcsm
@dmaes.bsky.social
Stage 4 mbc patient . Living life on a farm in Canada with my hubby . Mom of three and grand to three and two dogs n five cats
@jjdianem.bsky.social
(She/her) Single Mom of two gorgeous boys! Progressive Liberal Bay Area Millennial, surviving in a blue bubble in Texas. Fighting Ovarian Cancer and deaf. I vote blue, love is love.🌈 Eat the rich, Medicare for all and support Death With Dignity.
@stickit2stage4.bsky.social
Living w/Stage 4 #MBC & #RCC ~ Wife ~ Grandma ~ Four letter words are sentence enhancers ~ Gif’s are my weakness ~ Tequila is life🥃🍋🟩 🌊 🚫MAGA, #FuckTheOligarchy, #ProScience, #FreedomForAll, #TrueBlue, #Resist, #SlavaUkraine🇺🇦, #CanSky, #BCSM
@itsthebunk.bsky.social
Interdisciplinary creativity (Capoeira Angola, words, clay), advocacy, facilitation, book/story coaching, & more. NED🤞from 3 cancers. TCK 🇿🇦🇫🇷 LAX; now in 🇧🇷.
@raalbany.bsky.social
Founder|CEO Cancer In The Know|Patient-Research Advocate|Board Member|Breast Coach|Bridging the Disparities Gap|EUPATI Fellow cancerintheknow.com