OpenNotes
๐ Sharing the story of healthcare, one open note at a time.
๐ Transparency, trust, and teamwork in healthcare.
๐ Advocates for patient access to their medical records.
๐ก #OpenNotes | ๐ฉบ #MedSky | ๐ Join the movement for open healthcare conversations!
@anguspratt.bsky.social
Poet, watercolourist, and intrepid local adventurer. I dabble in Drupal and advocate for patients with lung and breast cancer, both of which I have. #LCSM #medtwitter
@amjohnston.bsky.social
Daughter, sister, wife, mom, lawyer and shenanigator living out loud with MBC since 2017.
@drssb.bsky.social
Teacher, Tutor, Professor, Spy. I like poetry, silly humor and puns, and animals. #BlueGeorgia #IBlameFoxForever #Cancer Warrior! Nani to one boy, one grandboy, and 2 Chihuahuas. Xpat from the ๐ฆ place. TG โ๏ธ forever.
@itsnotpink.bsky.social
She/Her. Living w #MBC since '13 & advocating for people w MBC to LIVE. #AntiRacist #InclusionPledge. Co-founder of @graspcancer.bsky.social & @therightdose.bsky.social. ๐ง๐ท๐บ๐ธ๐ฉ๐ช
@denniskeim.bsky.social
Foreign languages, computer sci, wind energy, Cornhuskers, producer coops, political economics & electric bikes. Breast cancer survivor. Degrees in engineering, microbiology and early childhood education. Yes, it's complicated. ะกะปะฐะฒะฐ ะฃะบัะฐัะฝั!
@malefitness.bsky.social
Breast cancer Stage IIIb in 2014. Advocate for men with this disease. In 2016 treated for prostate cancer. NED for both. BRCA 1 VUS. NBCC Project LEAD grad 2018. SABCS 2019 Writer for Health Union. Currently being treated for Myositis.
@crpinyyc.bsky.social
Traveller ๐, Nature Lover ๐๏ธ, Auntie Extraordinaire, ๐จ๐ฆ Opinionated Cat Lady ๐, Metastatic Lobular Breast Cancer Haver ๐๐ผ #bcsm #mbc
@ceciliamorgan.bsky.social
Wife๐Mother of 2 + 2 cats ๐บ๐ธ Ohio Living/Struggling with ER+ her2 low MBC since 2021 (Primary dx 2017) Passion for researching NIH Junkie #MedSky #OncSky D&D, Anime, Hiking/Nature, Star Trek, Stargate, Books, MUSIC ๐ต ๐
@ladyscorcher.bsky.social
big fan of public libraries and clean air. engineer, jogger & cyclist. cancer survivor and patient partner. co-founder cavi.
@mommyhascancer.ca
Using my story to advocate for better screening, cancer care and research in Canada. Author of an animated comic strip series about a young family with a terminally ill parent, based on my and my kidsโ experiences. ๐ https://linktr.ee/mommyhascancer
@jborgfjord.bsky.social
Breast Cancer Advocate | Educating & Empowering for Early Detection | #DBC | #KYL | #BSAM | ๐ฏ Improve screening access and awareness in MB. Letโs save lives. Teacher by day | Advocate by night #edusky
@m44-ceo.bsky.social
Founder & CEO of MoreFor4, Inc. -- a national 501(c)(3) nonprofit that supports the Stage IV cancer community. Social Worker/disability advocate living with de novo Metastatic Breast Cancer. Political/social justice views are my own. https://morefor4.org
@sarahdwald.bsky.social
environmental humanities prof at U of Oregon | Environmental justice | Living with MBC (she/her)
@getupswinging.bsky.social
She/her/hers. Dog mom. Stage 4 cancer. Book nerd. Www.getupswinging.com
@amybeumer.bsky.social
MBC advocate and patient, microbiologist, educator, nature lover, gardener, reader, and feminist. She/her/hers.
@joycernphn.bsky.social
RN, PHN, Pt Advocate, Autodidact, Lifetime Progressive, Information Junky, Audible Book Lover, Childless, Cat Lady, CA Native, In tx for MBC since 03/2023.
@researchmatters.bsky.social
Researcher | Patient | Advocate | Advisor | Board Member | Consultant Committed to improving cancer care, and healthcare in general As me about the learning health system
@shehasmbc.bsky.social
๐จ๐ฆ Adventurer, in transit on planet Earth. I refuse to let MBC (cancer) take more from me than what it takes without my permission. ๐ซNO porn ๐ซNO wanna be my friend DMs ๐ซ NO follow backs on: new/low follower, or reposting only accounts.
@arosen380.bsky.social
#Cancer survivor, patient #advocate, Public #speaker, American Cancer Society, Director Project ECHO, MD Anderson and SWOG volunteer. #crcsm #ayacsm Views my own
@jfreemandaily.bsky.social
Lung cancer patient and research advocate. Cofounder #LCSM Chat, The ROS1ders, IASLC STARS. Also writer, retired engineer, science geek. Temporarily between feline overseers. Blog at grayconnections.net.
@coopermommy.bsky.social
Retired nurse, cancer support groups facilitator, Project LEAD graduate interested in patient advocacy for breast cancer and lymphedema. Consumer reviewer.
@tombreedlove.bsky.social
Hopefully a esophageal cancer survivor ๐ค #cansky #Cancerbs #EsophagealCancer
@reverendlars.bsky.social
American. Also Canadian, in an understated way. Lover of things with six strings. Cancer survivor. Not religious. Lifelong Democrat because Republicans are SO WEIRD. Everybody be nice to each other, m'kay?
@limeylizzie.bsky.social
Ex pat Brit with a tumor in my rear view mirror, actor, knitter, and decent person.
@liberalvixen.bsky.social
Intellectual Property/Patent Attorney; PhD chemist; fierce progressive; baseball fan (especially of my dynasty team); frequently seen laughing and enjoying life. I'm knitting right now.
@crankyapricot.bsky.social
Encapsulated in mylar. Archivist and historian, living with recurrent chordoma and early-stage mesothelioma. Growing tumors is my BAP1 mutant superpower. Semi-expert in philanthropic studies. Asexual/agender, she/her. Vegan. ๐ท
@abirimmer.bsky.social
Editor and reporter @bmj_latest https://www.bmj.com/careers-articles Email arimmer@bmj.com
@kristenthemagician.bsky.social
Just an #mbc girl looking for a good research and #bcsm community. I also teach piano, am a member of the lgbt+ community, play games, and have cats. Burn me at the stake, I guess.
@lesleykailani.bsky.social
Native Hawaiian * Cat Lover * Founder: Project Life * Nature Seeker* Living with stage IV breast cancer since 2012 * Advocate *
@cmatte.bsky.social
Faculty & Scientific Affairs Coordinator | Former parasitologist | Cancer a$$-kicker | Dog-lover | Boardgame enthusiast | Will quote F.R.I.E.N.D.S until your ears get sore
@thebastardsdontwin.bsky.social
Love to cook and throw parties for friends and family. Never met an animal I didnโt like. Refusing to let a stage 4 de novo breast cancer diagnosis in 2022 slow me down, because I have great treatment and Iโm incredibly stubborn. Also, fuck cancer.
@paulajwilson.bsky.social
Still here after breast cancer (ER+/HER2+) โพโพLove my Seattle Mariners โพโพ Humom to Jarvis ๐บ
@d5ebbie.bsky.social
De novo metastatic breast cancer 2023. Still yearn for my horse riding cycling self but found a new normal in this chaos. Hispanophile. #cansky #oncosky
@fcancerak.bsky.social
TNBC (triple negative breast cancer) survivor. Author. Helping others navigate breast cancer. Artist.
@racharn.bsky.social
Midwestern values, breast cancer survivor, youngest of five girls, cat lover (actually animal lover), foodie, wine connoisseur (I wish), ready to retire after long career in IT and operational risk.
@morgannewmanmsw.bsky.social
MSW || Metastatic/Recurrent Cervical Cancer Cervivor || Lymphedema || Patient Advocate || Community Engagement || Doxie Mom || Amateur Photographer || #AYACSM #GYNCSM #OncSky #CanSky #PtAdvocacy
@who.int
We (The World Health Organization) are the United Nationsโ health agency championing Health For All. Always check the latest posts for updated advice/information. We will remove misinformation, spam and hate speech here. www.oneworldhealthforall.org
@assocanaes.bsky.social
Every anaesthetist aims to keep their patients safe. We aim to safeguard every anaesthetist. Follows/Likes/RTs โ endorsements. Monitored 9:00-17:00, Mon-Fri
@assocsas.bsky.social
Supporting the interests of Specialist, Associate Specialist and Specialty (SAS) doctors of the Association of Anaesthetists
@anaesresidents.bsky.social
Supporting the interests of resident doctors of the Association of Anaesthetists #fightfatigue #knockitout #coffeeandagas
@erinkun.bsky.social
NOLA BRED โ๏ธ Nurse ๐ฉบ๐ My Intrusive Thoughts win sometimes. Love Yourself ๐งธ Dream On ๐ซง
@kprather.bsky.social
Aerosols, airborne, air quality, clouds-climate, health, viruses, bioaerosols, public speaker, environmental justice. โค๏ธ โค๏ธ gardening, cooking, empathy. https://airborne.ucsd.edu https://kprather.scrippsprofiles.ucsd.edu/
@czelticgirl.bsky.social
Milwaukeean. Luxembourger. Public servant. Urbanist. Introvert. She/her. It's tea time somewhere. I'll put the kettle on and make some toast.
@amcollegegastro.bsky.social
http://gi.org 20,000+ members dedicated to advancing digestive health & improving patient outcomes. #GastroSky #LiverSky Journals: AJG, CTG, ACGCRJ, EBGI https://bsky.app/profile/did:plc:fmug4zegnl7lf6ljp7aokpeh/lists/3lav6nra5wj2b
@ameetrkini.bsky.social
Professor, University of Illinois at Chicago, Department of Pathology Hematopathology. Flow Cytometry. Faculty Development. Advocate for students. #MedSky #PathSky #HemePath "Why stand on a silent platform?" ๐ฌ๐ญ๐ธ๐
@nicumusings.bsky.social
A neonatologist in Canada.๐จ๐ฆ Love sharing knowledge Sharing the occasional #wine or #cocktail thoughts! TikTok, Instagram: @NICU_musings Linkedin: https://www.linkedin.com/in/michael-narvey-06aaa562 Blog: www.allthingsneonatal.com #NeoSky #MedSky #PedSky