@vpresearchals.bsky.social
VP Research & Strategic Partnerships @ ALS Canada. Science brain, advocate heart.
@andreaalsstrategy.bsky.social
ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
@alsdoubleplay.bsky.social
We raise awareness for ALS and support ALS research. Find out more at ALSdoubleplay.com #makeALShistory
@superstephsunshine.bsky.social
Living with ALS diagnosed 2011. Tracheostomy free. Knitter, seamstress, reader of books. 92270 for warmth.
@misaonwheels.bsky.social
“Cosplay is for EVERYONE.” ✨👩🦽✨ Misa is a cosplayer and disability advocate based in New England.
@mndaus-research.bsky.social
Motor Neurone Disease Australia is the peak body for the MND community in Australia. We have built & sustained Australian MND research for 40 yrs and partner with other Australian and international MND/ALS organisations.
@suzanakm.bsky.social
Palliative care physician, tender of those with ALS/MDS, mother, dog lover, positive deviant. Third-culture kid | #palliative #hapc #ALS #meded #creative | English • Spanish • Brazilian Portuguese • German |
@lizziedellar.bsky.social
Postdoc @mndoxford.bsky.social @ndcnoxford.bsky.social working on protein biomarkers of ALS/MND and extracellular vesicles.
@themyoclonicjerk.bsky.social
Dad, Neurologist, lap swim junkie, fountain pen enthusiast, note-taker. Owner of too many notebooks.
@hollylynchez.bsky.social
Academic lawyer/bioethicist studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), and clinical research ethics and regulation, with a splash of psychedelics.
@westwingslab.bsky.social
Drosophilist, DIY enthusiast, group leader, senior fellow & Dementia Research Leader Fellow based in SITraN, Sheffield, UK. Working on #FTD, #ALS and #MND Find us here: sites.google.com/view/the-west-lab-sheffield
@emmascotter.bsky.social
Associate Professor at the Centre for Brain Research, University of Auckland, NZ. #ALS #MND #FTD. Lover of molecules, cells, life.
@aartisharma.bsky.social
Neuroscientist 🧠 | ALS researcher 🧪👩🏽🔬 | human | biotech | she/her There is no 🌍 without ART
@alstdi.bsky.social
The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net
@alsadvocacy.bsky.social
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still meh treatments. Still quickly fatal. Still outrageous. https://x.com/alsadvocacy
@drpaulwicks.bsky.social
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded
@lynnbr2.bsky.social
Electronics Engineer who has ALS. Member IEEE Brain, EMBS,iBCI-CC.org. Designed & built a custom AAC eye gaze computer. BCI candidate to drive my exoskeleton. Python & CoPilot noob. Interested in EAPs. #MedSky
@michaelwheelson.bsky.social
Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. Oklahoma Blue Dot. ALS'ing since Feb. 2017.
@jeanc9orf72.bsky.social
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
@ammaralchalabi.bsky.social
Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://ukmndri.org #MND #ALS Specialist. Deputy Editor, Brain
@onein300.bsky.social
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. onein300.com
@willygrant.bsky.social
Disrupter. Director of Digital at a media company. Single. Corgi mom. BBQ enthusiast. Books, music, art. Punk. Born in #YVR. Lives in #YEG 🇨🇦
@alsargeant.bsky.social
Enjoyer of science, facts that are not alternative, books, movies and cats. Surviving ALS.
@martinmeyers.bsky.social
Retired commercial bankruptcy lawyer, ALS is my current battle. Pacific NW is my home.
@jcny79.bsky.social
Just a girl diagnosed with ALS 3/30/22. Living life day by day while I continue to adapt and process this journey I was given
@saritaapril.bsky.social
Physical Therapist and Assistive Technology Professional at the MDA/ALS Center of Hope. Advocate. ALS Hope Foundation. Philadelphia Fan.
@andyh-r.bsky.social
Motor Neurone Disease/ALS campaigner and husband to a brave MND warrior Mental Health Awareness Champion. Private Equity, Real Estate and Construction Industry Specialist. All views my own
@ewout.bsky.social
Biomarkers and mRNA translation | Long-read sequencing | ASOs and gene therapy | SMA & MND research lab at UMC Utrecht | Previously University of Edinburgh | Also cycling, cats, father of 2
@alsofgny.bsky.social
We provide local, on-the-ground services to patients and families living with ALS throughout the Greater New York area, including New York City, Long Island, lower and mid-Hudson Valley, and northern and central New Jersey. als-ny.org
@jennifera86.bsky.social
Alaska girl living in WA state. ALS Advocate since 2005. ALSTDI Board member.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app