~Somehow~
Disability justice. Chronic illness.
Tags: EDS, HSD, MCAS, POTS, ME, ND, Migraine, Encephalitis, Short Bowel Syndrome, Endometriosis, Autoimmunity
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@putrinolab.bsky.social
@drannanz.bsky.social
Immunologist | Flow Cytometrist Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS Senior Research Fellow Liggins Institute | University of Auckland DysImmune Research Aotearoa www.dysimmune.nz 🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
@thisismetweety.bsky.social
Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility; #hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
@migrainechat.bsky.social
Education researcher turned migraine advocate #MigraineChat host Vermont maple syrup aficionado 🚫 Unsolicited advice She/Her/Dr (PhD kind) Header: Dinosaurcouch MigraineChat Resources & Discord: https://campsite.bio/migrainechat MC feed/starter pack👇🏻
@sandersat.bsky.social
Never let someone drive you crazy, it's nearby anyway and the walk is good for you🤷♀️ Justice sensitive
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@andersheger.bsky.social
@beate.bsky.social
Blogger på Rasteplassen. Livet har alltid og til alle tider handlet om å henge i ei liane utfor et stup, med en tiger over og en tiger under, se en mus komme og gnage på liana, strekke ut armen til markjordbærne som vokser der, og nyte smaken. (hun/henne)
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@eivind1984.bsky.social
En slags jurist. I am under no obligation to make sense to you. Finnes ikke på ordentlig.
@primamette.bsky.social
Stolt mamma 💕 Gruppeleder i Stavanger Venstre, har en phd om forbrukeratferd, 💚 leder i Utvalg for Oppvekst og Utdanning i Stavanger 📚Rød turlue ❣️
@stavanger.kommune.no
Norges fjerde største by og kommune. Her er folk gode på energi, havbruk, tomat, sau, kylling og - ikke minst - hverdag og fellesskap for store og små.
@programmerhumor.bsky.social
For anything funny related to programming and software development.
@bmkrohn1.bsky.social
Snill og grei, litt sta muligens. Siving med ME. Dvs ligger og later meg hele dagen. Lillestrøm, Norway
@ninasteinkopf.bsky.social
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com Anti-genocide.
@froydislilledalen.bsky.social
Psykologspesialist, forfatter, tangodanser, aktiv i debatten rundt kvinnehelse og ME/long-covid
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them 🎶 iii'm still masking 🎶 working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
@annmemmott.bsky.social
Autistic disabled researcher, carer & Mum. #AutisticElder Personal page, own views. Like/repost = "I've read it" Encouraging moderation, a peaceful & fair society, & better research.
@thinkingautism.com
Autism: What you need to know, from autistic people, professionals, and parents. Pro-neurodiversity. Find us here, on FB, and on Instagram. We bailed on Twitter.
@ehlersdanlosdaily.bsky.social
Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.
@midcatecrisis.bsky.social
Chronically ill, autistic, demi/greyace (mostly in bed, mostly homebound) ME/CFS and probable LC 😷😷😷 Interests: climate, COVID, disability justice, nature, parenting, socialism Ltd cog energy, don't tend to follow back. Toronto, Canada She/her/they
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@safety.bsky.app
Sharing updates about trust and safety on Bluesky. This account’s mentions are not actively monitored. To report a post or account, use the in-app reporting feature. Community Guidelines: https://bsky.social/about/support/community-guidelines
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app