ThisisMEtweeting
Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility;
#hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
@lilnic000.bsky.social
@explaintrade.com
Author of Why Politicians Lie About Trade | Trade and Negotiations Explainer. Forever D&D DM. 🇺🇦 Born. 🇦🇺 Raised. 🇨🇭 Based. Media and training: explaintrade.com Consultancy network: auroramacro.com Speaking representation: cwgspeakers.com
@samuelmarclowe.bsky.social
Trade policy. Partner @ Flint Global. Senior visiting research fellow @ Kings College London. I have a Substack: https://mostfavourednation.substack.com
@davidheniguk.bsky.social
Trade wonk, Brexit bore, globalisation defender, music lover, cricketer, gardener, supporter of mediocre football teams, who knows where the time goes?
@jceoltasmith.bsky.social
Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
@tryangregory.bsky.social
Evolutionary biologist. Genome size, junk DNA, applied evolution, sci comm, SARS-CoV-2 evolution. Onions have 5x more DNA than you do. He/him.
@benking01.bsky.social
Long Covid & PE recovery. GeographyTeacher. Sustainability & Climate Change. BSc Env Science & Physics (Stirling). Soil Erosion PhD & Geog PGCE (Exeter). Tuba player. Devon, UK.
@craftymissb.bsky.social
Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs. https://craftymissbcrafts.etsy.com
@campaignfdj.bsky.social
A UK-wide campaign run by Disabled people, for Disabled people, run by a local charity @inclusionbarnet.bsky.social Join our campaign for updates: https://www.campaignfordisabilityjustice.org.uk/sign_up_to_support
@renegaderesearch.bsky.social
Renegade Research (RR) a non-profit 501c3 decentralized organization pioneering patient/caregiver led research focused on ME/CFS and LongCovid • https://renegade-research.org 💙 Project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
@romatowski.bsky.social
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@emilychatelet.bsky.social
Biochemistry Geek, Research Analyst, Dogged Advocate, Optimist In Spite of The Deluge.
@ceri-turns.bsky.social
Politics - Eco-Socialist🍉 Green Party💚 (GPEW🏴🏴) Nature & Climate🌳 Social Justice⚖️ Covid Vigilant😷, Chair #GreensAgainstCovid (opinions my own) Feminist♀️Bi🏳️🌈 🇵🇸🇺🇦💃 🌍Lancaster, Lancs, NW 🏴 UK. 💆🌱👣Massage & Holistic Therapies at http://holistyx.blogspot.com/
@drmk.link
Doctors' Association UK ⚕️ Emergency Medicine 💊 Passionate about truth, equity and fairness Slowly leaning into law and tech @drmattuk on X / the cesspit ☠️
@martinmckee.bsky.social
Prof of European Public Health LSHTM Co-Director European Observatory on Health Systems & Policy Member Independent SAGE Past President BMA & EUPHA Committed to 🇬🇧 rejoining 🇪🇺 https://www.lshtm.ac.uk/aboutus/people/mckee.martin
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@patientsafetylearning.org
Patient Safety Learning is a charity and independent voice for improving patient safety. 🔗Our website: https://www.patientsafetylearning.org/ 🔗the hub, our platform to share learning for patient safety: https://www.pslhub.org/
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@fascinatorfun.bsky.social
Retired Lawyer, cook, Europhile, books, music, good conversations, gardens, walking. Bird site refugee 🇬🇧 🇮🇪
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@68thmonkey.bsky.social
Previously an alien, but really a monkey. MECFS since 2017. ♿️🌈 Science, nature, climate, dogs, politics makes me mad but I just cant help myself. Peace & Love 😍✌️ (definitely not fear). Lucky to live in Bundjalung Country 🇦🇺 (Advocate for Bleats not Skeets)
@jefflubellc19.bsky.social
I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@sweetsciencewriter.bsky.social
Science journalist, with bylines in Nature, National Geographic, the New York Times, the Washington Post and the Houston Chronicle. I cover a mixture of health topics, with a focus on conditions such as autism, ADHD, ME/CFS, POTS and Long COVID.
@spichaksimon.bsky.social
Neuroscience MSc 🦔 dad Founded Resolvve Inc to make therapy affordable for students Science, health and tech journalist published in Being Patient, NYT, The Guardian's Scientific Observer, The Sick Times, and The Daily Beast
@torres-amy.bsky.social
Long Covid pediatric advocate/parent/caregiver. #CovidisAirborne #LongCovidKids #pwME Hate has no home here. A life long reader, a sometimes baker and a new gardener. Hospitality is in my blood, kindness too. Views are my own.
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@drkaradymond.bsky.social
AuDHD teacher, consultant & award-winning university lecturer. Author: Creating a Neurodiversity-Affirming Classroom & The Autism Lens. Podcaster: Autistic Tidbits & Tangents. (she/her)🧠🥄❤️🐈 www.karadymond.com
@mhornig.bsky.social
Translational MD-scientist, mom, 🎶 | Bklyn born + bred Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis #ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID All posts = my views
@amandabennett.bsky.social
Usually up mountains, sidetracked by long covid since Dec 2020. Now mostly housebound with cardiac issues.
@thrivingplanet.bsky.social
Was: Facilitation & organisational culture nerd for do-gooders, climate & sustainability activist. Ultra healthy, athletic, MTB / ski / mountaineering / outdoors. Everything on pause: Long Covid is brutal. Lancaster, North West England (Plague Island). ⓥ
@strangerandstranger.net
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@airspotrob.bsky.social
AirSpotHealth.com Our Smallest CO2 Monitor! #CleanIndoorAir #COVIDisAirborne
@thephysicsgirl.bsky.social
Lame puns and #longcovid. Maybe some science here and there.
@swiftsandswallows.bsky.social
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect. I am also the parent carer of a younger daughter with ME & POTS. Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
@jayletay.bsky.social
Author of A Girl Behind Dark Glasses, A Girl in One Room and A Girl Beyond Closed Doors. Casual artist and public speaker too
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@dr-kevinlee.com
Physician-Imager: endocrinology & nuclear medicine #AusMedSky https://www.linkedin.com/in/kevinleefracp/
@amandalhu.bsky.social
Neighbour and pal to children, adults and nature. Pro-treating each other like we live in a society. I communicate about stuff for work and for fun (here, where my opinions are my own). She/her. 📍Mohkinstsis, Treaty 7 (Calgary, Canada)
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.