Tessa
ME [+ comorbidities] post-vax in 2021. 100% bedbound since July 2023.
Hope one day to become an advocate for this life destroying disease.
Exponent of patient-led research & advocacy, and the right to try.
@sazpaps.bsky.social
PDRA recording oral histories with UK environmentalists @rhulgeography.bsky.social geographer / sociologist / oral historian interested in race, gender, class, life stories, place, gay stuff
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@c19lap.bsky.social
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.longhauler-advocacy.org
@longcovidjustice.org
We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@jon-moses.bsky.social
Co-director of Right to Roam 🥾 Co-editor of WILD SERVICE: Why Nature Needs You 🌿 https://linktr.ee/jonathanmoses
@sheencr.bsky.social
Immunologist and science communicator based at UoM fascinated by our immune response to threats (pathogens, pollution) & microbiome. Member IndependentSage person most likely to share random dog and nature pics 🧪👩🔬 #AcademicSky #SciCom #ImmunoSky
@saferairproject.bsky.social
Creating accessible and inclusive communities through safer indoor air. Registered charity with the Australian Charities and Not-for-profits Commission (ACNC).
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@guusontheinternet.bsky.social
Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
@amyboylanwrites.bsky.social
Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@julimaelle.bsky.social
Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
@sibylledahrendorf.bsky.social
former filmmaker II torn from life due to complex chronic illness II #CranioCervicalInstability #MCAS #SmallFiber #PoTS #FluoroQuinoloneToxicity #FlagylToxicity #Lyme #ME II https://sibylledahrendorf.jimdofree.com II Wer unter meinen Posts pöbelt ➜ Block
@symptomodyssee.bsky.social
Bessere Diagnostik & Versorgung für Patient*innen mit untererforschten Krankheitsbildern. "Das ist nur Stress" ist keine Diagnose.
@millionsmissingfr.bsky.social
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche. Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@mareksjf.bsky.social
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ http://mecfs.de/was-ist-me • EN ‖ PL ‖ DE
@lgoshen.bsky.social
Here mainly for evidence-based discussion of public health and the climate crisis. #TeamWissenschaft #ProtectTheKids #MaskUp Posts in German and English she/her @[email protected]
@ojohnstoni.bsky.social
Psychology, research, mother of three, fighting for my husband with #LongCovid, disillusioned yet cheerful, haven't lost humour #MECFS #maskup #ParentsForFuture
@simongehren.bsky.social
Advocating to #PreventLongCovid, through a smart scientific strategy: Honest risk education, good masks, mucosal vax, PlusLife, air filters. #MEAlly / #TreatLongCovid/ME💛. Swiss lawyer & strategic advisor for NGOs. https://twitter.com/CoronaZeroCH
@rsandra266.bsky.social
M.Sc.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | life pauses due to #LongCovid #MECFS #PEM #MCAS #SFN | team member of @Not_Recovered
@heikewigr.bsky.social
🐦 @will_ins_Gruene One of #millionsmissing since 2002 #MECFS Diagnose 2021
@petitfeu.bsky.social
Still suffering from #MECFS. Life still on hold. she/her 💙 = ME/CFS solidarity #noAfD
@momof2andahalf.bsky.social
Mom of 👧🏼👧🏽 and a Bonus 🧒🏼 #PostCovid #POTS #MECFS since Juli ‘22 #Schattenfamilie Collecting Information about Postcovid + ME/CFS - bc I had to become my own doctor.
@jenbrea.bsky.social
@jurika82.bsky.social
Meine Forderung: Aufklärung, Anerkennung, Forschung und Unterstützung für Betroffene von #MECFS #LongCovid und des viel selteneren #PAVCS https://gofund.me/80e5c7f7 für Aufklärung über #MECFS vor Ort
@dadlani.bsky.social
just arrived #LongCovidAwareness #BildungAberSicher #BringBackMasks #DavosStandard #SolidarityWithUkraine #CleanIndoorAir so far covid-free, born 319ppm
@chrissiep.bsky.social
Dog-, Book-, Sea-, Camping-, Movie-, Music-, Yoga-, Nature, Espresso-Lover. Active life stopped by Fluoroquinolones. #floxed, #FQAD, #MECFS, #MCAS, #SFN, #CCI, #LongCovid.
@bayoumystere.bsky.social
🦇Undead undead undead 🦇 Ex-burlesquer Queen of Wortwiederholungen I got #MECFS & a rock n’ roll heart, ADHD too 🖤🩶🤍💜
@judyintheskynet.bsky.social
Neo-artist & ex researcher with severe #MECFS, very severe #MCAS, #CSFleak & more. Co-founder of blackferkstudio.com (art & science for ME/CFS). 💘 for piglets. PhD in social sciences. 🇦🇹. Insta & Masto: judyintheskynet https://linktr.ee/Judyintheskynet
@maxwassermann.bsky.social
20+ || life paused due to #MECFS since 2013 || likes cats, video games and good bad movies || member of saME
@holdgolightly.bsky.social
Früher Künstlerin, Textildesignerin, Reisende. Eine von #MillionsMissing seit ca. 1987
@restthingever.bsky.social
formerly{{Passionate Software Developer. Guitarist, singer, songwriter. Foodie and traveller}}. Lover of Art Déco, geometry & Sci-Fi. Struggling with ME/CFS since 2020. Currently at Bell 40. Based in 🇨🇭 #MECFS #pwME #MyalgicEncephalomyelitis
@lightupthenight4me.bsky.social
Offizieller Account ME/CFS Awareness, Aufklärung und ein bisschen mehr https://lightupthenight4me.wixsite.com/website
@mightymermaid87.bsky.social
M.A. Early Childhood Education // #MECFS #SFN #Hashimoto #ChronicPain #fundraisingbc007MEcfs #MEawarenessHour #Kinderschutz // MightyMermaid87 @ web.de (she/her)