C. Grace Juneau Whiting
@familycaregiver.bsky.social
Supporting family caregivers since 1977 🫶 We’ve got the tools, tips, and resources to help you care for loved ones 🌐 caregiver.org #FamilyCaregiving
@amberchrist.bsky.social
Managing Director, Health Advocacy @justiceinaging.org Posting on all things Medicare and Medicaid for older adults. Sprinkles of humor, music, & VW Buses. She/her Kansas Citian
@fumikochino.bsky.social
#RadOnc. Reformed Artist. Cancer Widow. I study #FinancialToxicity #Access #Equity MD Anderson Cancer Center 📲me COI http://bit.ly/3OBu0Cn 🐦🪶🕊️ #medSky #oncSky migration
@jasonresendez.bsky.social
President & CEO of National Alliance for Caregiving. Felix's dad. Former @UsAgainstAlz @WeAreUnidosUS @LULAC. @Georgetown Hoya. South Texan in DC. Opinions mine.
@caregiveraction.bsky.social
@everylifeorg.bsky.social
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
@palermo.bsky.social
Father of a child with CLN1 Batten Disease (searching for funding for research into first-ever cures) Open to work. Formerly, I made videos for TV Guide, GameSpot, Fandom. GoFundMe for Amelia’s medical expenses: https://gofund.me/e02c7708
@genesandhealth.bsky.social
One of the world’s largest community-based genetics studies, aiming to improve health among Pakistani & Bangladeshi people 🧬 Based at Queen Mary University London.
@nordrare.bsky.social
NORD is a patient advocacy organization leading the fight to improve the lives of rare disease patients. Alone we are rare. Together we are strong.® www.rarediseases.org
@camrare.bsky.social
Making rare disease an everyday conversation. CamRARE is a charity empowering rare disease communities & fostering cross-sector collaboration to improve outcomes for those affected. #RareDisease Local | National | Global www.camraredisease.org
@rarediseasectn.bsky.social
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
@laurenctesta.bsky.social
PhD candidate and #raredisease patient-scientist in Gene Therapy and Vaccines at Penn. Interested in genetic therapies, aortas, and climbing. #BillsMafia
@bbqcornnuts.bsky.social
GenX, rare disease, gun sense, chronic illness and pain, Democrat. The only thing that truly offends me is cruelty. Typos are a feature, not a bug . WV native. #raredisease #chronicillness #chronicpain #SchnitzlersSyndrome
@shaneir.bsky.social
Genetics/Genomics doc, Nazareth Hospital biker, developing solutions for #RareDisease and Digital Healthcare on a #Psion Series 3a. Want to see peace in Northern Ireland, Israel-Palestine & Planet Earth. https://shanemuk.github.io
@jxchong.bsky.social
Associate Professor. UW Center for Rare Disease Research, @MyGene2, Deputy Editor of @HGGAdvances. #raredisease genetics. CovidWA data
@hdashnow.bsky.social
Asst. Prof, CU Biomedical Informatics. #RareDisease #Genomics #STRs #bioinformatics #WomenInSTEM. Parent. Aussie. she/her Views my own. https://dashnowlab.org/ Img by familydestinationsguide (CC-BY)
@lizworthey.bsky.social
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected sites.uab.edu/cgds/ she/her
@cilialab.bsky.social
Group at MRC HGU using genetics, cell biology and lots of imaging to unlock the mysteries of mammalian #cilia. #cilia. #centrioles #cytoskeleton #RareDisease www.cilialab.co.uk
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@linguisticisms.bsky.social
PhD in linguistics. Researching Impoliteness in children's fiction, and metaphors in virtual health discourses (esp. on dementia). 🩷💜💙 they/she
@dtmaust.bsky.social
Geriatric psychiatrist & health services researcher interested in #aging #dementia. Lead National Dementia Workforce Study (NDWS.org) with Joanne Spetz, PhD. #GoBlue (but opinions my own)
@thebhf.bsky.social
We fund vital research into heart diseases, stroke and vascular dementia, and their risk factors like diabetes.
@martinhumphries.bsky.social
Professor of Biochemistry, University of Manchester. Career interest in mechanisms of cell-matrix adhesion. Current interest in mechanosensing in pancreatic cancer and vascular dementia.
@adamgordon1978.bsky.social
Professor of Care of Older People at University of Nottingham. Immediate Past President of British Geriatrics Society. Clinical Academic. Interests in frailty, dementia, care homes, pre- and periop geriatrics and clinical education.
@tejenson.bsky.social
Compassionate nihilist & gender traitor | Queer AF 🏳️🌈 | Postdoc @ BUSPH | Located in Mpls | Occasionally actual environmental epidemiology content (dementia/Alz) but mostly jaded cynicism & swears | she/they
@neilchadborn.bsky.social
Researcher at University of Nottingham & NIHR Applied Research Collaboration East Midlands. Interested in dementia, inequalities & digital #publichealthsky #gerontology
@profrobhoward.bsky.social
UCL Old Age Psychiatrist. Evidence-based treatments for dementia, psychosis, depression and anxiety in older people. Independent trialist. Clinical academic training. Owned by Layla. Still enjoying Twitter but here we all are.
@dementiaresearcher.bsky.social
A support service for Early Career Dementia Researchers Worldwide. Delivered by UCL funded by Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia & the NIHR - https://www.dementiaresearcher.nihr.ac.uk
@wai-alzheimers.bsky.social
Helping people with Alzheimer’s disease & other dementia, their care partners & health professionals. With offices in Madison and Milwaukee, we're home of the WRAP study, Amazing Grace Chorus, WAI Memory Clinic Network, New Friends program & much more.
@mateferretti.bsky.social
Neuroscientist, brain health advocate, cancer survivor, TED-x speaker, author. Anything related to the brain interests me–but #Alzheimer is my passion linktr.ee/Mateferretti
@michalkorenar.bsky.social
bilingualism + creativity in the brain | Assistant Professor at University of Amsterdam | research on dementia in bilinguals at Alzheimer Centre Amsterdam
@bettytijms.bsky.social
Senior scientist Alzheimer center Amsterdam | neuroinformatics | neuroscience | Alzheimer’s disease & other neurodegenerative disorders
@wisconsinadrc.bsky.social
Improving lives of people affected by Alzheimers & dementia | Early detection | Risk & protective factors | The center was established in 2009 with funding from the National Institute on Aging (NIA) Learn more: adrc.wisc.edu
@alzassociation.bsky.social
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZ alz.org
@monaalzheimer.bsky.social
Scientific coordinator & infection biologist @Sharmalab.bsky.social | RNA and infection | Deep-sequencing & microfluidics approaches to bacterial pathogenesis | Campylobacter & Helicobacter
@gfrasca.bsky.social
Management de la recherche - ex Fondation ARC et France Alzheimer - aujourd'hui à l'Institut Pasteur @pasteur.fr
@shsstl.bsky.social
Mama, wife, SWer, Alz lab director, she/her Alzheimer disease, stl politics, justice, public schools Wisconsinite, St. Louisan Opinions my own #BlackLivesMatter
@luretamal.bsky.social
Neurologist, and previously trained as a Health Psychologist. Focused in Research in Neurodegenerative diseases #Parkinson #Alzheimer, and Neuropsychiatry 🧠. Eternal Love for Books 📚📚
@alzheimerssupport.bsky.social
Wiltshire's award-winning dementia charity, supporting people living at home with dementia and family carers - in whichever way suits them best. Visit us at www.alzheimerswiltshire.org.uk
@rikvanderkant.bsky.social
Researcher, all things Alzheimer, brain diseases and lipids
@jungsukim77.bsky.social
Alzheimer, APOE, Actin, Txn factor, Immune, Tau, miR & lncRNA, Drug / Single cell & Spatial omics, Proteomics, QTL / CRISPR, ASO, AAV / 🐁, iPSC, 🪰, 🧠, 🐟 / Microglia, Astrocytes, Oligodendrocytes https://medicine.iu.edu/faculty/41977/kim-jungsu
@andrewmstern.bsky.social
Neurologist and Alzheimer disease scientist at Brigham and Women’s Hospital. My lab studies beta-amyloid aggregates as they occur in human brain. Also TDP-43 biomarkers. Associate PD for research at MGB neurology residency program. sternlab.bwh.harvard.edu
@nvillain-alz.bsky.social
Neurologue Chercheur | Neurologist Researcher | #Alzheimer #Dementia #Neurodegeneration | @fac-sante-sorbonne.bsky.social | @sorbonne-universite.fr | @pitiesalpetriere.bsky.social | @ap-hp.bsky.social | @institutducerveau.bsky.social
@chrisbintener.bsky.social
Project Officer at Alzheimer Europe #Gerontologist communicating about #neurodegeneration #dementia & related topics. @IHI-PROMINENT.bsky.social @fluidx-ad.bsky.social
@javisburgos.bsky.social
Investigador de la Universitat Jaume I de Castellón | Enseño Farmacología e investigo en Alzheimer | Siempre ceno
@elizabethhead.bsky.social
Professor, Dept Path at the University of California Irvine. Focused on Aging and Alzheimer disease in people with Down syndrome, 🇨🇦, http://sites.mind.uci.edu/headlab/ and https://www.nia.nih.gov/research/abc-ds
@alzheimerssoc.bsky.social
We want a world where dementia no longer devastates lives. That’s why we give help to everyone living with dementia today, and hope for the future. Find us at https://www.alzheimers.org.uk/
@leadcoalition.bsky.social
Executive Director at the LEAD Coalition (a diverse, national coalition working to overcome #Alzheimers disease and other forms of #dementia). @umichlaw.bsky.social and WashU alum. You may have known me as @LEAD_Coalition on the bird site