The Zebra Alliance Community
The Zebra Alliance represents a beacon of hope and solidarity for navigating the challenging waters of Ehlers Danlos Syndrome, Rare Diseases, and Chronic Illness 🦓💙
Community • Education • Resources • Advocacy & Allies
https://linktr.ee/thezebraalliance
@jgjanegreenmbe.bsky.social
Founder @SEDSConnective.org Fellow FCCT / UK Rep. EFNA CAB / exAHT / MA Ed / exnational lead ND / Keynote CONNECTIONS neurodivergence Hypermobility Disabled often discombobulated / Parent / carer MBE for services to neurodivergent hypermobility folk 202
@bendybrain.bsky.social
#hypermobility (and related conditions) brain-body neuro #research @bsmsmedschool UK | Dr Jessica Eccles | http://Linktr.ee/bendybrain | views own | https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@wearyourstripes.bsky.social
Our cause is to uplift the voices of Ehlers Danlos Syndrome and Chronic Illness streamers within the gaming community! 💜 We support everyone with chronic illness, we are not defined by our disability, and we wear our stripes proudly! 🦓
@kejames.bsky.social
Environmental geneticist & outdoorswoman into eDNA, botany, evolution, space, sci-comm, skiing, Outlander & kindness • she/her 📍Unceded Wabanaki land (aka Maine)
@edsinnl.bsky.social
Raising awareness of Ehlers-Danlos Syndromes and Hypermobile Spectrum Disorders in Newfoundland and Labrador. Linktr.ee/EDSinNL
@brigantlab.bsky.social
Welcome to BrigantLab! 🧬🧪🔬 Where science meets innovation in action! ✨ 🔗 Inside The Brigant Lab : https://linktr.ee/brigantlab
@bcmgenetics.bsky.social
The Department of Molecular and Human Genetics at Baylor College of Medicine is transforming medicine, research, and education in genetics and genomics.
@oxfordpsychiatry.bsky.social
@achronicvoice.com
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. https://www.achronicvoice.com/
@amergastroassn.bsky.social
Our mission is to empower clinicians and researchers to improve digestive health. Also follow @aga-gastro.bsky.social, @aga-cgh.bsky.social, @aga-cmgh.bsky.social, @aga-tige.bsky.social, @aga-ghadvances.bsky.social.
@annekevliegen.bsky.social
Author of Recognise Me, memoir about medical gaslighting. Advocating for more dignified approach to chronic, barely visible, fluctuating and/or rare conditions. Speaker and blogger. BHSc OT. Postgrad Cert Health Research.
@nywolforg.bsky.social
The Wolf Conservation Center (WCC) is a non-profit organization that promotes wolf conservation by teaching about wolves and their role in our world. nywolf.org
@jossreimer.bsky.social
President of the Canadian Medical Association. Passionate about physician wellness and public health.
@buffer.com
Create and share social media content anywhere, consistently. Built with 💙 by a global, remote team. ⬇️ Learn more about Buffer & Bluesky https://buffer.com/bluesky
@uthealthsa.bsky.social
Official Bluesky feed of UT Health San Antonio. #UTHealthSA #WeMakeLivesBetter #EverythingItTakes
@oncodaily.bsky.social
Your daily dose of hope, inspiration, and information in the fight against cancer. oncodaily.com
@spooniethreads.bsky.social
Making empowering Adaptive Clothing for ♿Disabilities & Chronic Illnesses: Diabetes, Ostomy, Tubie, Post-Surgery Care.😎 Limitations? So not our style!
@queerliblib.bsky.social
hey, we’re QLL — a fully digital library fighting to build a vibrant, flourishing queer future. 🏳️🌈🏳️⚧️ // follow for updates! 💜🪶 https://linktr.ee/queerliblib
@childrensresearch.bsky.social
Children's Colorado is committed to improving #ChildHealth by accelerating clinical discovery through research and innovation. Affiliated with @CUMedicalSchool.bsky.social. Follows and/or shares do not constitute endorsement or recommendation.
@katieabey.bsky.social
Sunshine-haired creative force🧚🏻 Award winning book illustrator✍🏻 Helping you embrace your weirdness🐛
@mayocliniccancer.bsky.social
@publichealthpod.bsky.social
Evidence and experts to help you understand today's public health news. A podcast from the Johns Hopkins Bloomberg School of Public Health. https://podcast.publichealth.jhu.edu/
@jcampbellcreates.bsky.social
Redhead in the redwoods. A miracle containing and surrounded by infinite miracles. In Awe of All. All humans are inherently artists and creators. We each create our own unique experience of existence. https://superhappyfunstudio.etsy.com
@ppfa.org
Hi! We’re America’s most trusted provider of sexual and reproductive health care education, and we think we look pretty good for over 100 years old. www.plannedparenthood.org & linktr.ee/PlannedParenthood
@ebi.embl.org
EMBL's European Bioinformatics Institute (EMBL-EBI) provides open biological data resources and tools, and performs basic research in computational biology. https://www.ebi.ac.uk/
@empoweringintimacy.bsky.social
A global advocacy organization focusing solely on education and empowerment covering sexual wellness, sexual health & sexual dysfunction issues for all humans. Based in Indiana.
@4spooniesupport.bsky.social
#cerebralpalsy warrior, #cat mom, #chronicallyill, #trauma survivor, #stoner, #disabled, #mentalhealth advocate, standing up for #abuse survivors and sharing my story since 2016. I'm nothing special. I'm just me #spoonie
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@lowhistamine.bsky.social
Find low histamine recipes and resources, largely from the SIGHI list. #mcas #histamineintolerance www.throughthefibrofog.com
@unremarkableme.bsky.social
Health and Wellness EDS & hEDS Awareness Chiari Malformation Awareness Chronic Illness Awareness Mass Cell Activation Syndrome POTS I have been fighting EDS, Chiari Malformation, Mass Cell Activation Syndrome, Scoliosis & POTS for 15 years.
@memesandmusings.bsky.social
😂 Mainly Laughs 💬 Some Opinion 😃 Always Aiming For A Good Time! https://linktr.ee/lueoutdoorsllc
@samluegger.bsky.social
👱♂️🐱🐱🐶🐶 Human & Fur Baby Mum 🌈🦓🏞 O.I. Ambassador. Advocate. Adventurer and Autophile. 🇨🇦👉🇺🇸 Founder: @LUEoutdoors.bsky.social @TheZebraAlliance.bsky.social @MemesAndMusings.bsky.social https://linktr.ee/lueoutdoorsllc No politics here ✌️
@lueoutdoors.bsky.social
Escape The Ordinary : Get Outdoors 🏞 Discover Gear, Clothing + 🏞 Blog: Adventure Tips, Reviews + more! 🏞 Grab Limited Edition Collabs and Mystery Gear & Clothing Boxes! 🏞 Colorado Based linktr.ee/lueoutdoorsllc
@medicsforrare.bsky.social
Our vision is a world in which there is equitable healthcare for everyone
@sedsconnective.org
The foremost hypermobility neurodivergence community charity BrainBodyMind AUTISM ADHD DYSPRAXIA TS DYSLEXIA EDS HSD pain Chair @JGjanegreenmbe.bsky.social Patron @bendybrain.bsky.social Web: www.sedsconnective.org Link: https://linktr.ee/JaneGreenSEDS
@cppedsa.bsky.social
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians about the Ehlers-Danlos Syndromes and related conditions. https://chronicpainpartners.com
@ohtwist.bsky.social
Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed) https://ohtwist.com
@johnshopkinssph.bsky.social
The @jhu.edu Bloomberg School of Public Health https://publichealth.jhu.edu/
@bcmhouston.bsky.social
Baylor College of Medicine is a health sciences university that creates & applies science and discoveries to further education, healthcare & community service.
@cugastrohep.bsky.social
The official Bluesky account of the University of Colorado Anschutz Medical Campus Division of Gastroenterology and Hepatology @cuanschutz.bsky.social
@cuanschutz.bsky.social
The official Bluesky account of the University of Colorado Anschutz Medical Campus, the largest academic health center in the Rocky Mountain region. This is where dreams live! 🖤✨ #CUAnschutz linktr.ee/cuanschutz
@hsph.harvard.edu
Health, dignity, and justice for every human. This is the official account for #HarvardChan: hsph.harvard.edu
@yalesph.bsky.social
Linking Science & Society | Official account of the Yale School of Public Health
@schroeder-uhn.bsky.social
🦴 The Schroeder Arthritis Institute are researchers, clinicians and educators focused on new treatments, diagnostic tests, and models of care for arthritis. 🔗 https://linktr.ee/schroederarthritisinstitute
@canadahealthwatch.ca
Curated-aggregator of health news from around the world, but with a Canadian focus. Visit us 🏡 https://canadahealthwatch.ca SUBSCRIBE: https://canadahealthwatch.ca/newsletter