Anneke Vliegen - Author
Author of Recognise Me, memoir about medical gaslighting. Advocating for more dignified approach to chronic, barely visible, fluctuating and/or rare conditions. Speaker and blogger. BHSc OT. Postgrad Cert Health Research.
@precisionmedicine.bsky.social
Associate Director of Bioinformatics and Software at Illumina. Unleashing the power of the genome through SW and AI. #PrecisionMedicine #Cancer #MECFS #RareDisease
@misaonwheels.bsky.social
“Cosplay is for EVERYONE.” ✨👩🦽✨ Misa is a cosplayer and disability advocate based in New England.
@mandyg99.bsky.social
Mother, granny, wife, sister, likes to knit and crochet, computer techie, avid reader, gardener, animal lover. Happily retired. ME/CFS, IBS, blah blah blah. 🚫 go fund me, 🚫 Forex 🚫 crypto 🚫 religion 🚫 DM. Blog: http://beencalledsonic.wordpress.com
@chronicillnessmeme.bsky.social
Just a place where a bunch of chronically ill peeps can come to laugh through the pain together and maybe earn some extra spoons 🥄 instagram.com/chronicallyillmemes
@mecfsskeptic.bsky.social
Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS). https://mecfsskeptic.com/
@iovercomeme.bsky.social
☀️☺️ SARAH 😷🥱😴 (she/her) Severe ME due to LC (2023) ME/CFS (1999 dx 2008) UC/IBD (2002) ADHD (Birth😝)
@alinda6.bsky.social
@hanamichels.bsky.social
They/Them. Writer & other stuff probably. Chronically ill & sexy about it. Love animals and cryptids (fake animals) Free Palestine. NOT MY DAY JOB ACCOUNT!! THIS. IS. PERSONAL.
@medicalgaslighting.bsky.social
Exposing medical gaslighting. Advocating for ME/CFS awareness & justice. Disrupting neglect, demanding change. Voices ignored, now amplified. #pwME #MECFS #millionsmissing #GreatestMEdicalScandal
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@doctrinedominatrix.bsky.social
I am a Severely Normal Albertan with interests in science, history, politics, human rights & especially disability rights. Also public policy in general. I am NOT looking for a relationship & am NOT able to sponsor anyone’s path to citizenship. NO DMs!
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@authoralnorton.bsky.social
International, award-winning, bestselling author. Owner of Readers Depot. Podcaster. Youtuber. Grandma, mommy. Love to read. Book Hoarder. #Autoimmune warrior. chronically ill. #Disabled. #childabusesurvivor #metoo #wolfpackauthor NO PORN! NO DM'S!
@emlywill.bsky.social
Scientist, zebra, #ActuallyAutistic. I study #autism #genetics #evolution #NeanderthalDNA #EhlersDanlos -- Asst Prof/Basic Scientist @ St. Louis University. Tweets = mine.
@cppedsa.bsky.social
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians about the Ehlers-Danlos Syndromes and related conditions. https://chronicpainpartners.com
@i-am-lawesome.bsky.social
Tiktoker (i_am_lawesome) and disability rights advocate. Also disabled myself since 14. ♿️ I have a husband and 2 young daughters 👨👩👧👧 And living in the Northwest UK. 🇬🇧 #dontbechronicallyignorant
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@deborahbrian.bsky.social
Recovering academic, research manager, #POTS, #ChronicIllness, etc. Opinions my own; fools not suffered. Meeanjin. she/her
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@tanyamarlow.bsky.social
Writer, lecturer (pastoral theology), speaker. Author of Those Who Wait (+ more). Writing on Christian #faith, trauma, #disability & #chronic illness, Bible. Housebound w/ M.E. #MyalgicE. Spirituality, suffering, soc justice & all the big questions.
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@sedsconnective.org
The foremost hypermobility neurodivergence community charity BrainBodyMind AUTISM ADHD DYSPRAXIA TS DYSLEXIA EDS HSD pain Chair @JGjanegreenmbe.bsky.social Patron @bendybrain.bsky.social Web: www.sedsconnective.org Link: https://linktr.ee/JaneGreenSEDS
@jgjanegreenmbe.bsky.social
Founder @SEDSConnective.org Fellow FCCT / UK Rep. EFNA CAB / exAHT / MA Ed AHT neurodivergence Hypermobility Disabled often discombobulated / Was School dropout / Parent / carer MBE for services to neurodivergent hypermobility folk 2023
@nicolajeffery.bsky.social
Writer for The Canary Events manager at AMBI 🫶🎶🏳️🌈🏳️⚧️ #FreePalestine🇵🇸
@amymooney.bsky.social
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions. http://www.OT4ME.com
@notunpackedyet.bsky.social
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
@dramirkhangp.bsky.social
NHS GP, TV Doctor, Nature Enthusiast, Human Rights, Writer, Home Cook
@otskiff.bsky.social
Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #MECFS, #ChronicMigraine, #HSD, #MCAS & #TeamClots 🫁 AHP Committee @LongCovidPhysio. Swiftie 🫶, F1 🏎, cricket 🏏 fan London, UK
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/ Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com Design | https://emmarubystudio.com/ She / her
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@drmelissageraghty.bsky.social
🦋 CEO of Phoenix Rising with Dr. G 🦋 Clinical Health Psychologist (Complex Medical, Rare Disease, Eating Disorders) 🦋 Medical Gaslighting Sensitivity Trainer 🦋 Keynote Speaker 🦋 #IamRare 🦓 ♿ www.phoenixrisingwithdrg.com
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@ohtwist.bsky.social
Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed) https://ohtwist.com
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@hedsphysicist.bsky.social
X @hEDS_Physicist | Insta @hypermobile_physicist #Bisexual PhD Physicist & industry engineer journeying and blogging through #ChronicPain with #hEDS #MCAS #dysautonomia. Posts not medical advice. #BLM https://linktr.ee/hypermobilephysicist
@ack025.bsky.social
Links+follows related to: Ehlers-Danlos + Lyme + MEcfs + Autoimmune (Myasthenia Gravis, Sjogren’s, Hashimoto’s) + POTS + Mast Cell + ApoE (4/4) + Bilateral Vestibulopathy + BPPV + SIBO + migraine + mito myopathy + Long COVID + LMCA & Celiac Artery Stenosis
@louiseathome.bsky.social
Patiently (mostly) persevering with pacing #LongCovid #pwME #MECFS #POTS 🏳️🌈😷 cats • science • cats • FPL • cats
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@ruthlampard.bsky.social
Looking out for blessings: in wildlife, nature, & kindness. Lead Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. Fan of rewilding, life too. Usually moderate to mild in views, occasionally sharp. No DMs, will block
@odyody.bsky.social
Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery