Kristen-end ALS
Quiet but loud. Educator|fuck als| I fight for sensible gun laws
@peacewithnoguns.bsky.social
I am at peace with no guns in my schools, churches, theaters, grocery stores, restaurants, etc.
@andreaalsstrategy.bsky.social
ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
@margogontar.bsky.social
Swearing Ukrainian Queen from Kyiv support my reporting : via paуpal pm contributeto762project@gmail.com & https://buymeacoffee.com/margogontar Listen to My K.Y.I.V. 🎧 https://margogontar.ffm.to/my-kyiv
@alsdoubleplay.bsky.social
We raise awareness for ALS and support ALS research. Find out more at ALSdoubleplay.com #makeALShistory
@connieschultz.bsky.social
Columnist, novelist, j-prof. NYT bestselling novel, The Daughters of Erietown. Children’s book, Lola and the Troll. On Substack at Hopefully Yours. I love Sherrod Brown. https://connieschultz.substack.com/
@johnnythelayton.bsky.social
Just a Woodcarving Geek working everyday to improve my craft, and help others do the same! Check me out on YouTube and learn to carve with me! https://linktr.ee/JohnnyTheLayton https://johnnythelayton.etsy.com
@elion3.bsky.social
Medical School Counselor, Lost my partner of 40 years to ALS. #ALSSUCKS #EndALS #IAmALS. Love my dogs and hate trump. No DMs unless I know you. #Resistance2.0
@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
@hollylynchez.bsky.social
Academic lawyer/bioethicist studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), and clinical research ethics and regulation, with a splash of psychedelics.
@mdwallach.bsky.social
Division Chief of Pediatric GI at SUNY downstate. Pain, EED, health equity, and intestinal barrier science. formerly of UCSF/Columbia. Ed board @jpgnreports . hater of ALS. only represent me. he/him
@limpbroozkit.bsky.social
@aartisharma.bsky.social
Neuroscientist 🧠 | ALS researcher 🧪👩🏽🔬 | human | biotech | she/her There is no 🌍 without ART
@nategillespie.bsky.social
Lapsed historian turned web product person turned #ALS warrior. Aspiring novelist. Dad. Long-suffering #NUFC & #RipCity fan. Suffering builds character. Columbia City, Seattle via Portland & SF. ↙️↙️↙️
@lynnbr2.bsky.social
Electronics Engineer who has ALS. Member IEEE Brain, EMBS,iBCI-CC.org. Designed & built a custom AAC eye gaze computer. BCI candidate to drive my exoskeleton. Python & CoPilot noob. Interested in EAPs. #MedSky
@ammaralchalabi.bsky.social
Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://ukmndri.org #MND #ALS Specialist. Deputy Editor, Brain
@drpaulwicks.bsky.social
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded
@onein300.bsky.social
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. onein300.com
@arrestalsnow.bsky.social
In the fight for the long haul until #EndALS. Fighting ALS injustice including Healthcare. Seek equality & quality ALS patient services & care. #NeverStopFighting #DontQuit
@chamtdi.bsky.social
@wokeleftistmama.bsky.social
📎Twitter refugee #StandWithUkraine 🇺🇦Lover of Democracy;🏳️🌈 Ally; BLM ✊🏽 ; #girlmom x 2; MND (PLS) caregiver to my hubby
@merricksy.bsky.social
Cardiac RN, ALS Clinic Coordinator, Music Lover 🎶🎵, Food aficionado🥓🥑, Cat Servant 🐈🐾 (All views do not reflect that of my employers)
@martinmeyers.bsky.social
Retired commercial bankruptcy lawyer, ALS is my current battle. Pacific NW is my home.
@azsuzeblue.bsky.social
"They were so angry at inflation they couldn't see the Communist through his spray tan."
@andyh-r.bsky.social
Motor Neurone Disease/ALS campaigner and husband to a brave MND warrior Mental Health Awareness Champion. Private Equity, Real Estate and Construction Industry Specialist. All views my own
@garygodfrey25.bsky.social
Retired Management Consulting Partner. Former Auburn Basketball player. Just trying to LIVE with ALS. Make Today Your Best Day Yet!
@emmascotter.bsky.social
Associate Professor at the Centre for Brain Research, University of Auckland, NZ. #ALS #MND #FTD. Lover of molecules, cells, life.
@ewout.bsky.social
Biomarkers and mRNA translation | Long-read sequencing | ASOs and gene therapy | SMA & MND research lab at UMC Utrecht | Previously University of Edinburgh | Also cycling, cats, father of 2
@nuvie.tv
Sometimes NSFW. Vermillion temptress, succubus kitten. She/her. The B T & I 🏳️⚧️ in LGBTQIA+. Nerd, ⬡-Drone, gamer, lewdtuber streamer. MDNI; Over 21. Twitch: nuvandibe linktr.ee/nuvandibe https://ko-fi.com/nuvandibe
@westwingslab.bsky.social
Drosophilist, DIY enthusiast, group leader, senior fellow & Dementia Research Leader Fellow based in SITraN, Sheffield, UK. Working on #FTD, #ALS and #MND Find us here: sites.google.com/view/the-west-lab-sheffield
@endrarediseases.bsky.social
Blue Dog Dem. Rare Disease Patient Advocate for Amyloidosis that killed my Mom & ALS that is killing my friends. Passionate about Enviro Justice, Foster Care & Gun Safety. Proud GGD of a Righteous Gentile murdered by Nazis. 💙LA sports.
@jeanc9orf72.bsky.social
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
@alswarriors.bsky.social
Widow due to ALS. Warrior because of ALS. Three words for ALS... WE WILL WIN! Dog momma. Musical Lover. Total Ham! my thoughts are mine and not my employer.
@tavaresspeer.bsky.social
Afro Cuban, Husband, Dog Dad, Fmr Business Analyst & an FSU Alum. I was diagnosed w/ #als 10/4/18. Still here, still fighting. #lougehrigsdisease #endals. 💙🏳️🌈 https://linktr.ee/tavaresspeer
@jcny79.bsky.social
Just a girl diagnosed with ALS 3/30/22. Living life day by day while I continue to adapt and process this journey I was given
@willygrant.bsky.social
Director of Digital at a media company. Single. Corgi mom. BBQ enthusiast. Books, music, art. Punk. Born in #YVR. Lives in #YEG 🇨🇦
@sabrevaya.bsky.social
@kellij.bsky.social
ALS Fighter since 2008; former Veterinary Technician Specialist ; amateur genealogist; firm believer in Liberty and Justice for ALL.
@headandtheheart.bsky.social
New album 'Aperture' out May 9th 📸 Tour on sale today ⬇️ beacons.ai/theheadandtheheart
@mtandlakegirl.bsky.social
❤️🎶,🐈,genealogy & people with stories.Midwest grown mountain matured. Dem since 1976. CALS(mom) survivor dad & brother suicide. Iowa->Colorado->Montana->Minnesota
@alstdi.bsky.social
The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net
@ezeitler.bsky.social
Energy Facts, Analysis, and Policy. Associate Director at the National Academies Board on Energy and Environmental Systems. I used to have hobbies, now I have kids. That was meant to be funny, so adding an exclamation point/emoji so you get the vibe! 😁
@michaelwheelson.bsky.social
Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. Oklahoma Blue Dot. ALS'ing since Feb. 2017.
@bsw5020.bsky.social
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. www.iamals.org/als-awareness-month #ALSisHere #SoAreWe