@kacheston.bsky.social
Researching “the greatest medical scandal of the 21st century”. Infection-Associated Chronic Illness, activism, stigma, medical humanities. Postdoctoral fellow in Sociology.
@somethingchronic.bsky.social
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS and more. Chronically hopeful for better days. Determined to fight against injustice so people with ME and LC are treated with the same belief, respect and kindness as any other serious physical illness.
@elzorro777.bsky.social
Antifaschismus, Wissenschaften, Politik, Literatur, Musik, Film, Gaming. #ME/CFS #MillionsMissing #MEAwareness #TeamWissenschaft #TeamVorsicht #FCKNZS #noAfD #wirsindmehr #Games
@ladylonghaul.bsky.social
Born 324 ppm. small spoons & sensory spaces. 🥄🎧 #ADHD #hEDS #LongCovid #MCAS #pwME #Migraine #POTS #PsoriaticArthritis #Tinnitus #Disability #Adoptee #Climate ko-fi.com/ladylonghaul LongCovidKids Awareness Banner 5 years since Long Covid Changed Lives
@mcdrowsy.bsky.social
Leah #pwME Lives in a small town by the sea, heart in the city. Life interrupted by chronic illness 🛌 #mecfs #fibro Anti poverty. Social justice. Classic + indie film. 🇦🇺 native flowers + birds. Vintage clothing. Architecture + design.
@murtoz.bsky.social
🇳🇱/🏴. He/Him. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@turnoftheshrew.bsky.social
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
@dinsley.bsky.social
director of engineering, software dev, ruby, security, foodie, gaming, politics, cats, adhd, chronic pain, disabled. he/him.
@bibicosplays.bsky.social
Abi | She/They | bi/pan | 🇨🇦🇳🇬🏳️🌈♿ | Disabled | BSc. Computer Science |Store: Bibipins.com
@fhronesis.bsky.social
Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
@ezra.zone
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
@phazel.bsky.social
The name stays for as long as it's true. Urban hermit, queer crip, knitter, tech ghost, ND, parent, gay married, any pronouns. 🦓🧑🏻🦼👩🏻💻📚🧶🏴 Previously @phazelic on Twitter.
@adamfare1996.bsky.social
Trying to muddle my way through life. Equity, AuDHD, Disability, Mental illness, Stomas and Eating Disorders. Ace 🖤🤍💜 Views are my own. (He/Him) This is a bigot-free zone. https://linktr.ee/adamcfare
@scotjess.bsky.social
I love my boys (plural) even if only one of them, Elvis, is alive. 🦎🧡 💚 #TheSims (since 1). Got The Sims 4 Christmas 2014, year when shit hit the fan as I got #MEcfs Also #POTS #MenieresDisease & likely #MCAS #hEDS #Autistic late discovered She/Her
@hallwayorchard.bsky.social
dad, professional engineer, neo-luddite, anti-fascist, bespectacled. writing from Wəlastəkwiyik land. opinions are my own. he/him/they/them
@zoom.earth
Interactive weather map and hurricane tracker. Real-time satellite imagery, radar, and forecast maps. Get our app 👉 https://zoom.earth/app
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@oplopanax.ca
🇨🇦 Search and Rescue volunteer, ⛰️🧗🏻♂️⛷️🚵🏻♂️🪢mountain rescuer, SAR manager, software developer (C#, C++), technology and risk expert, transplant recipient. Sḵwx̱wú7mesh territory
@frogandtoadbot.bsky.social
Cozy random passages from Arnold Lobel's Frog and Toad books. Posts auto-delete.
@kaufmanmd.bsky.social
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut. And sadly, the ongoing coup.
@hermien.bsky.social
Ik onderzoek, adviseer en schrijf. Ik ♥️ taal, bibliotheken, literatuur, filosofie, politiek, geschiedenis. #NietHersteld - De Podcast @NietHersteld.bsky.social
@niethersteld.bsky.social
Wij laten zien welke mensen we missen in de maatschappij omdat ze #NietHersteld zijn. 📣Actiegroep die zich inzet voor de honderdduizenden met Post Acute Infectieuze Syndromen (PAIS) zoals Long Covid, ME, Lyme, Q-koorts, Post Sepsis
@cc-dragon.bsky.social
Disabled w/chronic illness (#MCAS, #POTS, #hEDS). #ActuallyAutistic. #Medicaid #SNAP LGBTQIA+, ace/aro, NB. Progressive/SocDem in PNW. Indie author @ccnaughton.bsky.social alt text: profile pic: crayon-drawn dragon. banner: disability pride flag.
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com
@coresinai.bsky.social
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
@mommunism.bsky.social
Curly hair enthusiast, ☭, mom, abortion aficionado, misplaced Kentuckian, Berliner, Colonel Sanders chronicler, recovering lawyer, contributing writer @therealnews.com Social Media etc for @burnitdownkimbrown.bsky.social Always Antifascist
@stickmancomms.bsky.social
Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@longcovidpharmd.bsky.social
Pharmacist interested in Long COVID and ME/CFS research Pro-mask, pro-clean air! Substack: https://pharmd.substack.com/
@tenaciousmumma.bsky.social
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@quyetpawz.bsky.social
41 - Disabled polyam queer non-binary femme, geek living in Ottawa, Canada. ADHD, C-PTSD, Bipolar, Chronic Pain. Loves board games & 3D Printing. Retired CanFURence Co-Chair PFP is by jambiird.bsky.social Ask to DM because my DMs are off.
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@joyfulmilitant.bsky.social
+ organizer with @cmajustice.bsky.social + educator-agitator-organizer + anarchist + pro youth liberation! + time-loop/temporal studies scholar + writer + performer + queer | mad | disabled | white | she/her + ME/CFS + Buffy 4 + Ever + lover of lists
@ptswithpower.bsky.social
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science 🧐 Patient rights & power dynamics 🦾 I like solving puzzles. #NEISvoid #MedicalGaslighting
@verlorenezeit.bsky.social
Industrial engineer with severe M.E. Art, astronomy, writing, podcasts, thunderstorms.
@kbneal.bsky.social
Medievalist | Cricket tragic | Dog lover | Ex-scientist | Occasional tractor driver | Living on Wurundjeri Woi Wurrung land | Long COVID sucks | She/her
@awsparling.bsky.social
Ph.D., history. Hist. of sci. & med.; Paracelsus; c16 Germany. Husband & father. 𝕏-pat. Hobby: learning about & not catching brain-eating bat viruses. In public indoor spaces, wear a high-quality mask (N95 or better). Clean the air! 📍Melbourne, VIC
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@scholenveilig.bsky.social
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com 🌍The Netherlands