Marie Jobin
Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp
@heyjanae.bsky.social
she/her | ♒️ | copywriter & 🩵 @ctpublic.bsky.social social media editor 🩵 Anime & Cartoons | 日本語OK | Long Covid Mar 2022 | I complain often ✨🌺🧡 #CovidCompetent
@rachelriggs.bsky.social
Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life instagram.com/the.rachel.riggs #EDS #MECFS #Food #paleo #glutenfree #dairyfree
@kerriemccure.bsky.social
Writer / editor / photographer / full-time sick person. Cinema lover, cat-and-dog person, mostly horizontal. 🍉 #MECFS #hEDS #HSD #POTS #MCAS #CCI #CSFleak
@carolbarrel.bsky.social
I enjoy cats and bicycles. I much less enjoy my chronic illnesses. #pwME
@steigerecon.bsky.social
Assistant professor of economics on medical leave from Northeastern University; macroeconomics, growth and development. Severely ill with MCAS/POTS/EDS/ME. Catholic convert who loves the balance of faith and reason. Native Oregonian.
@vashetc.bsky.social
ph.d. perpetually horizontal. writer, researcher. ✍🏽 v ash e t c [dot] com — vashetc.com profile ID: brown person poses in wheelchair in front of a wall of pink paperflowers. banner: lake & mntn @ sunset. There’s a silhouette of a family in the water
@rejayjay.bsky.social
Silly Chicago girl, marketing professional, long covid patient. No DMs unless you donate to the mutual aid I repost. 💜
@lguterman.bsky.social
Science journalist with long covid. Former staff at Science Magazine, Science News, C&EN, Chronicle of Higher Education. Now full-time patient.
@jenbo1.bsky.social
@meighanstone.bsky.social
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
@lygianavarro.com
indie journalist editor. reporter. producer (ES & EN). cover: Latine, LGBTQ+, health stories +more #DisabilityJustice. disabled. queer. #LongCovid + #ME. immigrant in Tkaronto Signal: Lygia.65 lygianavarro.com contributing writer @discojourno.bsky.social
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@dsavannah.bsky.social
~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014 ~ #LiveInBedButIAintDead ~ When brain & body behave: Chronic Illness Advocate ~ Discworldian, Browncoat ~🐱(x3)🐢💐🌻🌷📸📚🖼️ ~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷 https://linktr.ee/thedsavannah
@rebeccanagle.bsky.social
Cherokee writer and journalist, check out my substack: https://gohini.substack.com/ Author of BY THE FIRE WE CARRY out now https://www.harpercollins.com/products/by-the-fire-we-carry-rebecca-nagle?variant=41322925359138
@sickandtiredaus.bsky.social
http://heymp.com.au/sickandtired http://change.org/LongCOVIDInquiry http://www.instagram.com/sickandtiredaus https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09 https://www.facebook.com/share/19nSvtGPNz/
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@lizmeactga.bsky.social
Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
@kaufmanmd.bsky.social
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut. And sadly, the ongoing coup.
@rivkabluesky.bsky.social
• Advocate/Organizer: Immune-Associated and Infection-Associated Chronic Illnesses, ME/CFS, Long COVID, Lyme, disability and women • Writer: Washington Post, Marie Claire magazine, NPR, Ms. magazine, Newsweek • Playwright: Dozens of productions
@tenaciousmumma.bsky.social
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
@faithie.bsky.social
SevereME/vax injured. Can't read, write, watch, walk or talk much. Just me, my bed & my swollen brain. Trying to stay sane. Roy Kent is my spirit animal.
@dreamsatstake.bsky.social
Mostly bedridden with severe myalgic encephalomyelitis/ME Interests: health, reading, nature, film, photography, art, travel, social issues Former blog: www.dreamsatstake.com
@nlizaki.bsky.social
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
@elizacharley.bsky.social
Actress on Pause with Myalgic Encephalomyelitis 🌍 Florence, Italy <-> Melbourne, Australia 🎙️ Writer, Producer, Actor 🦋Living that Stockdale Paradox life
@drbevans.bsky.social
Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@martinruecker.bsky.social
investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
@drchronically.bsky.social
Bitte keine Hilferufe über Social Media! #MECFS #LongCovid #Schattenfamilie #PflegendeEltern #Praxis #NoAfD #ÄrzteGegenRechts #Löwinnenrudel Mach dich selbstständig, haben sie gesagt. Dann hast du es viel leichter mit den Kindern, haben sie gesagt.
@susscrofa.bsky.social
Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin. Wer solche Fragen an mich stellt, wird blockiert.
@bettinagrande.bsky.social
Psychologische Psychotherapeutin mit Praxis in Heidelberg; Charité #PAIS Care Berlin. Aktiv in der Aufklärung über und gegen die Psychologisierung von #MECFS #PEM #PENE. Paper zu an ME/CFS angepasste Psychotherapie: https://doi.org/10.3390/medicina59040719
@ninaweber.bsky.social
Medizin-Redakteurin beim SPIEGEL, Biochemikerin, Buchautorin. https://www.spiegel.de/impressum/autor-de0618d4-0001-0003-0000-000000015007
@verhac.bsky.social
ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna de/en
@constanzeertl.bsky.social
journalist, ORF, Vienna persistence > contacts + competence :)
@thonigilles.bsky.social
La promotion intégrée de l' #ActivitéPhysique favorable à la #Santé : de la santé des individus à la #SantéPublique. #Sédentarité; #Education; #Evidencebased; #APA CovidLong, EM, Réadaptation, Malaise/exacerbation de symptômes post-effort MPE PEM, Pacing
@fatigatioev.bsky.social
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein. Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
@cbammermd.bsky.social
Facharzt für Innere Medizin | Nephrologe | Geriater | interessiert an #PAIS und assoziierten Multisystemerkrankungen | * Privat gerne alles mit Musik * * Skeets in DE/EN * * TwiX: @CBammerMD *
@sgme.bsky.social
💙 Fighting tirelessly for ME patients in Switzerland and worldwide 💙 #MyalgicE #MEawareness #MyalgischeEnzephalomyelitis
@geschom.bsky.social
Psychiatrist, stigma researcher, w/ special interest in time trends and SUD stigma. Chair of Psychiatry at Leipzig University. Opinions are my own @MHandsociety.bsky.social
@tilmangrande.bsky.social
Psychotherapie, Psychoanalyse, Psychotherapieforschung, ME/CFS
@mastzellenhilfe.bsky.social
Wissenschaftlerin. Medizinpsychologin. Gründerin von Mastzellenhilfe.de. Mehr auf Instagram und Facebook präsent 🙂
@pamelarbishop.bsky.social
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
@danielmissailidis.bsky.social
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications