Lila Guterman
Science journalist with long covid. Former staff at Science Magazine, Science News, C&EN, Chronicle of Higher Education. Now full-time patient.
@lccampaign.bsky.social
Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
@workingfamilies.org
We are a progressive grassroots political party building a multiracial, feminist movement of working people. Text WFP to 30403 to join us. linktr.ee/workingfamilies
@madelinevo.bsky.social
Climate journalist, author, AT HOME ON AN UNRULY PLANET http://madelineostrander.com KSJ at MIT Fellow 2023-2024 Mastodon: @[email protected], @madelinevo on Insta
@alphafold.bsky.social
Unofficial account exploring the intersection of biology, molecules, science, AI and protein folding with AlphaFold.
@janeqiu.bsky.social
Globe-trotting, award-winning independent science writer in China | Words in @nature.com, @sciam.bsky.social, National Geographic and more | Writing a book on emerging diseases for @scribnerbooks.bsky.social | Ex: @ksjatmit.bsky.social, @nature.com
@jencox11.bsky.social
Retired writer of science who still does some freelance. Lover of science, dogs, long walks at the beach and mountains, all things nature, reading science-related books and mysteries and well-written novels. SCONC and NASW member.
@longhaulerspodcast.bsky.social
We’re a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how they’re surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
@postviraltrials.bsky.social
News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
@melissagiragrant.com
staff writer, The New Republic // A WOMAN IS AGAINST THE LAW (Little, Brown) out in 2026 // PLAYING THE WHORE (Verso) // member, NewsGuild of NY » email: [email protected] » press releases/lists: [email protected] » Signal: melissagira.01 (link below)
@legalnomads.com
Once a lawyer, then a travel writer. Now disabled, writing about curiosity & health. Travel writing & celiac translation cards: legalnomads.com Best things I read each month: jodiettenberg.substack.com MCAS, meditation, & health: jodiettenberg.com
@mervetepephd.bsky.social
PhD Microbiologist // Biomineralization, AMR & Biofilms // @remissionbiome.bsky.social team Defend science, resist ignorance https://twitter.com/mervetepePhD http://mastodon.online/@MerveTepe http://post.news/@/mervetepephd Ankara/New York/Tel Aviv
@lisadiedrich.bsky.social
Current projects: #IllnessPolitics, Keywords/Images in Graphic Medicine, & Multi-modal Pedagogies in Action. Author of ILLNESS POLITICS & HASHTAG ACTIVISM, TREATMENTS, & INDIRECT ACTION. Blogging at: lisadiedrich.org
@moppety.bsky.social
Parisienne Buffalonian linguist spoonie mom. http://bcopley.com "The line separating good and evil passes...right through every human heart." -Solzhenitsyn
@kunstjonas.bsky.social
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in Father. Views are my own.
@ezra.zone
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
@myrabatchelder.bsky.social
Policy. Advocacy. Public Health. Health Equity. SRHRJ. COVID-19. Advocate, Consultant. Harvard, Sarah Lawrence alum. She/her.
@osayko.bsky.social
Theater/film/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
@sannara.bsky.social
#MECFS #MILLIONSMISSING #MEAwareness #PEM #POTS #MCAS #PostCovid #LongCovid #TeamWissenschaft #GdB https://www.mecfs.de/was-ist-me-cfs/
@vickyvdtogt.bsky.social
Community organizer | Researcher | Advocate | Director of development at Research-Aid Networks 🌐 Author of The Long Covid Symptom Diary, now available in EN, NL & ES! - www.ddxpublishing.com
@turnoftheshrew.bsky.social
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
@midcatecrisis.bsky.social
Chronically ill, autistic, demi/greyace (mostly in bed, mostly homebound) ME/CFS and probable LC 😷😷😷 Interests: climate, COVID, disability justice, nature, parenting, socialism Ltd cog energy, don't tend to follow back. Toronto, Canada She/her/they
@emmiskyten.bsky.social
Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting. Here to connect with other sick people and for science stuff.
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@jannamoen.bsky.social
Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her My long COVID research newsletter: lcbreakdown.substack.com
@twoshaws.bsky.social
#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@lizworthey.bsky.social
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected sites.uab.edu/cgds/ she/her
@mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
@shellchat.bsky.social
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
@yogafogie.bsky.social
DMV native. COVID long hauler. Patient-Led Research Collaborative.
@uselesspriest.bsky.social
Long COVID, mild, since Apr 2022 ME / Long COVID diagnosed May 2024
@julialmv.bsky.social
Long COVID patient-researcher @ Scripps Research & Patient-Led Research Collaborative
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@katieklocksin.bsky.social
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum 😷 Long covid is common 😷
@lonniemarcumpt.bsky.social
Wife/Mother, Science Writer, PT, HC Admin, Disease Detective, Voracious Reader, Connoisseur of Coffee, Graduate CSUN, Olive Farmer, HHS 2019-2022 Tick-Borne Disease Working Group, CDC Fdn ICUE patient advocate.
@cuboidalhug.bsky.social
@eyebrowse.bsky.social
@heyjanae.bsky.social
she/her | ♒️ | copywriter & 🩵 @ctpublic.bsky.social social media editor 🩵 Anime & Cartoons | 日本語OK | Long Covid Mar 2022 | I complain often ✨🌺🧡 #CovidCompetent
@rachelriggs.bsky.social
Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life instagram.com/the.rachel.riggs #EDS #MECFS #Food #paleo #glutenfree #dairyfree
@kerriemccure.bsky.social
Writer / editor / photographer / full-time sick person. Cinema lover, cat-and-dog person, mostly horizontal. 🍉 #MECFS #hEDS #HSD #POTS #MCAS #CCI #CSFleak
@wanderingkayli.bsky.social
@wandering on Instagram ✍🏻 Disabled with Long Covid 40+ months Long COVID Researcher @sfu-fhs.bsky.social Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID https://beacons.ai/wanderingkayli