Long Covid starter pack 1
This is a starter pack for #LongCovid folk to follow on Bluesky. Non-exhaustive (this is a start) but I hope you find this helpful. Suggestions welcome.
Created by
@scribblerpen.bsky.social
@norcalgaljoanie.bsky.social
Supports Ukraine and Democracies worldwide. Supports research into understanding and treating Long Covid and other post-viral conditions. Political news junkie. Tax Billionaires. Loves cats. #LongCovid #CovidisAirborne #MaskUp #ME/CFS
@gmcdp.bsky.social
Disabled People's Organisation (100% exec & staff are disabled people working from Social Model of Disability & Disability Justice) #RightsNotCharity https://gmcdp.com
@disrightsuk.bsky.social
We one of the UK’s leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all. https://linktr.ee/disabilityrightsuk
@dnehar.bsky.social
Passionate about #Immunology | Using Single cell multiomic approaches to understand immune aging and early life Immunity | The Jackson laboratory | https://dnehar.github.io/
@annesosin.bsky.social
Public health pracademic at Dartmouth | Rural health equity & global health | Occasional writer | Opinions are my own. Still getting started here.
@dr-kevinlee.com
Physician-Imager: endocrinology & nuclear medicine #AusMedSky https://www.linkedin.com/in/kevinleefracp/
@sharonburnabybc.bsky.social
🇨🇦 4.5 years of putting COVID news, research and encouragement to stay safe on Facebook.
@cyhusain.bsky.social
Degrees in Physics⚛ | Research Assistant👨🏽🔬 BioNTech | Paramedic⚕ | CAD & Simulation🖱 | Social/Political/Environmental Activist☮️ | Likes & RTs ≠ Endorsement | OPINIONS are MY OWN❗ Downtown Los Angeles, CA 90017
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@medrxivpreprint.bsky.social
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@bethechange1682.bsky.social
She/her - LTC advocate - COVID conscious Advocacy is all interconnected - we are stronger together Currently in Ontario, Canada Also on Twitter
@globalactionplan.bsky.social
Global Action Plan mobilises people and organisations to take action on the systems that harm us and our planet. We are an environmental charity, working towards a green and thriving planet where everyone can enjoy happy and healthy lives. UK and beyond.
@obrienjana.bsky.social
Gun violence prevention advocate, Packers fan, COVID cautious mom with grown kids and fur babies.
@kbishof.bsky.social
🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org 🔵 Pw/ #LongCOVID, #IACCS, #Disability 🔵 Fmr. Firefighter/Paramedic 🔵 Fmr. Educator, Coach, & Dir. of Athletics 🔵 B.S. (ex science & health promotion) 🔵 #StillCOVIDING #COVIDConscious #Mask
@eleanorsews.bsky.social
Retired lecturer/therapist. Interested in politics, music, culture, science, languages and disability-woke AF I’ve been in the #ME owners club for decades 👩🏼🦼➡️ Angry but peaceful. She/her Uninvited DMs = Instant Block Maker of #FanningTheFlames cartoons
@aqconsultant.bsky.social
Supporting developers through planning and permitting with expertise in air quality, odour and dust. Talks about #dust, #odour, #planning, #airquality, and #permitting
@consumedcovid.bsky.social
Long Covid since March 2020. Previously fit and healthy healthcare worker and mum.
@gregorytravis.com
Writer & Columnist for IEEE. COVID data geek. Political junkie. Midwesterner Working on a book about engineering, ethics and responsibility in the age of fraud
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
@ghhughes.bsky.social
Kanro grant recipient for respiratory protection testing and advocacy. Science aficionado. Cat fan. Clean air and NPI proponent. @ghhughes at the old place https://www.youtube.com/@gerardhughes
@margaretohara.bsky.social
Patient Advocate in #LongCovid and #HyperemesisGravidarum Patient Involvement in Research in #NHS
@leopardgizmo.bsky.social
Psych Clinician (30yrs+) practices interpersonal neurobiology, rinzai zen, silversmithing. #Lupus, #Bronchiastasis & #LongCovid Passionate about climate change, public health, women’s rights, climate, birds of all sorts — and REASON. INTP
@airborneucsd.bsky.social
UC San Diego Meta-Institute for Airborne Disease in a Changing Climate. airborne.ucsd.edu
@drmaireaddb.bsky.social
PhD in Education. Advocate for DAVOS safe schools for children & staff. #COVIDisAirborne #MasksWork if FFP2 (KN95) or better & if you wear it.
@corsiaq.bsky.social
Dean - College of Engineering at the University of California, Davis. Indoor air quality researcher. Dog lover. Music lover. Acoustic guitarist. Faith in younger generations. Posts are my own.
@smartrestartaps.bsky.social
Coalition of parents + teachers amplifying “VITAL” science for #FreshAirSchools in #ArlingtonVA: Ventilation/Filters, Immunization, Testing, Accommodations, Lunch/Activities Outdoors; Checking out this Musk-free zone to promote clean air in schools.
@popns.bsky.social
Protect Our Province Nova Scotia is a community-care initiative focussed on reducing COVID transmission through evidence-based mitigation. popns.org Clean Air Library, HRM: bit.ly/HRMcleanair
@stillcovidingca.bsky.social
https://stillcoviding.ca/ | https://linktr.ee/stillcovidingcanada #StillCoviding #COVID #CovidIsntOver #BringBackMasks #YallMasking #LongCovid #CovidLongue
@canadahealthwatch.ca
Curated-aggregator of health news from around the world, but with a Canadian focus. Visit us 🏡 https://canadahealthwatch.ca SUBSCRIBE: https://canadahealthwatch.ca/newsletter
@jmcrookston.bsky.social
Litigator. Biochem. ♿rights #COVIDisAirborne 🌬️🔅. wear N95. A founder of www.COVIDIsAirborne.org & its-airborne.org so many years ago MAIN ACCOUNT: https://mastodon.social/@jmcrookston. This place is funded by crypto so I don't expect it to
@awsparling.bsky.social
Ph.D., history. Hist. of sci. & med.; Paracelsus; c16 Germany. Husband & father. 𝕏-pat. Hobby: learning about & not catching brain-eating bat viruses. In public indoor spaces, wear a high-quality mask (N95 or better). Clean the air! 📍Melbourne, VIC
@actagainstcovid.ca
We press the Sask gov't & other institutions to prevent COVID-19 infection. Everyone's health is worth it. Start here: http://linktr.ee/actagainstcovid
@debholloway.bsky.social
Former Professional Communicator. Alberta, Canada. Infected March 13/2020. 1st Wavers identified & named OUR disease. It is LONG COVID. Switch flipped: from victim to WARRIOR. #LongCovid https://covidtoolbox.com and https://longcovidland.com
@scottsquires.bsky.social
Vfx supe Anti-Covid Free anti-Covid images https://drive.google.com/drive/mobile/folders/1NptYhWsy4IsnfQOgWDtHnJ9CScQ5Y0ol?usp=share_link
@andrewwang.bsky.social
Public health professional. Champion of health equity. Covid infections must end. Opinions are my own. On twitter as https://x.com/AWangMPH
@katiesvoice.bsky.social
I am 'Katie's Voice' the widower of a Deputy Carehome Manager lost to Covid-19, and son of Susan, who also fell victim to the pandemic. https://twitter.com/Charles83230639 https://covidfamiliesforjustice.org/ https://covidaction.uk/
@joissummers.bsky.social
Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid. #FBPE #FBLC #PWLC
@profdevisridhar.bsky.social
Professor & Chair of Global Public Health, Edinburgh Uni. Certified Level 3 Personal Trainer. Views own.
@enemyinastate.bsky.social
Journalist @Enemy In A State. "Gutter Journo" who, unfortunately, has to report from the gutter, as that's where 99.9% of politicians dwell patreon.com/c/EnemyInAState265
@rose-mary-x.bsky.social
She/her | UK | Covid conscious | Disabled | ME/CFS | Long Covid | Vaccine Injured | Climate aware | Free Palestine | Socialist | Human rights | Sisters, not cis-ters
@mirthdal.bsky.social
Learn, laugh, cry, protest, save democracy. Some snark. Let's make this the new global town square. Bilingue. #WearAMask #Vote #Resist #AltFam #AltGov #ElbowsUp Silicon Valley & Canada
@crwequine.bsky.social
Basic Scientist, mainly F(ab')2 (equine) #MedSky #covidconscious #cleantheair 🌈🏳️⚧️ally #treaty7
@longcovidch.bsky.social
Long Covid Switzerland. The voice of people affected by long covid and long covid kids. Evidence-based, provaxx, promask, protect the kids.
@njbbari3.bsky.social
MBBS BSc Hons Infectious Diseases 🇬🇧 🇦🇺 Zero COVID Australia NjbBari3@mastodon.social NjbBari3 on X
@support.bsky.team
Submit bug reports, feature requests, and feedback with the in-app form in your left side menu (mobile) or right column (desktop), or email us at support@bsky.app.
@jceoltasmith.bsky.social
Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
@cathythomsonpt.bsky.social
APP & Clinical Specialist PFP Committee member British PF Society Advocacy Committee Member LongCovid Physio
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@buds-disability.bsky.social
A community of disabled people working together to remove the barriers that disable us. Registered Charity 1102511 #Fair4All #Reach4Work
@covidmemorialwall.bsky.social
Iconic London memorial to the UK Covid dead. Account run by Friends of the Wall, the bereaved volunteers responsible for the wall. ♥️
@its-airborne.bsky.social
Keeping track of the airborne/aerosol Covid19 etc transmission facts so that the judicial inquiries can't ignore the fomites/droplets lies https://its-airborne.org/
@jamesglen.bsky.social
Having a bit of a break O_o ● Founding member @LongCovidSupport ● Long Covid & MECFS advocate #FBLC ● Arts Centre Director ● Watford FC fan ● #FBPE 🇪🇺
@joda.bsky.social
Trustee at Long Covid Support longcovid.org #LongCovid #TreatLongCovid Happy when in nature. Mason Bee Guardian.
@ruairidhm.bsky.social
Long Covid since March 2020. “Nothing about me without me” - doesn't seem unreasonable. Previously: health research, public health, technology assessment and appraisal Also some Shetland!
@cinnamonrollalong.bsky.social
#pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids #CovidisNotOver #CovidisAirborne
@starseeker.bsky.social
C19 March 2022 caught at work #NHS Specialist || Life ⏸️ || Emotional Health & Longcovid Advocate ~ Life is Precious! 💫💕🪬☮️
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org info@longcovidsos.org Charity reg no 1199120
@nikki-s.bsky.social
Love my dog, my husband, cooking and being creative - not necessarily in that order. In Long Covid hell since Feb. 2020. Founding Member of @longcovidsupport. Views my own.
@tatianatrifan.bsky.social
Life is full of surprises, but never when you need one. Completely allergic to any form of racism, sexism, genderism. #StandWithUkraine Views are my own
@longcovidchange.bsky.social
A COVID-conscious space dedicated to improving awareness and understanding of Long Covid, and the lives of those affected. Focus on UK public health, but good information and community support are global.
@lisalj.bsky.social
Mum of 2, physician. Mostly here to read and learn - special interest in COVID. Still advocating for masks, clean air and the precautionary principle. And on a more personal note - love knitting, baking and coffee, lots of coffee.
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@covidactionuk.bsky.social
Covid Action UK is the campaign to beat the pandemic. We are calling on the Government to recognise that Covid is still with us and that it's airborne, and for clean air, indoors and out, free tests, masks, and free vaccines for all. https://covidaction.uk
@longcovidfam.bsky.social
A US non-profit supporting children with Long Covid and their families.
@shrinkatlarge.bsky.social
Consultant clinical psychologist/ activist/ neuroqueer bluestocking. Former Lived Experience Practitioner. Future failed poet. Will question ideology for cake. 💜🎭🦓🥄🏳️🌈 #MadSky #TraumaNotPD #Disability #Neurodivergent #Mad https://t.co/83d2Ztwpp2
@profstevegriffin.bsky.social
Professor of Cancer Virology, University of Leeds. Co-Chair, Independent SAGE
@apresj20.bsky.social
Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
@jneill.bsky.social
77th? According to Narice Bernard: 'That guy is impossible! Avoid.' BTC (jks, or...) 1KFkyqUL9AmaVXu9SxjQ5PtKPJrryZzQEp
@harryspoelstra.bsky.social
Cardiovascular surgeon with daily CV science information on SarsCoV2/C19/LC, only active on X: @HarrySpoelstra
@catinthehat.bsky.social
Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
@drkatecushing.bsky.social
Doctor, scientist, mum, recently retired w ill health. Public Governor Newcastle upon Tyne Hospitals Trust Long Covid & CCH. Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU Wrote Little Orange Book 4 parents of babies & small kids.
@longcovidjustice.org
We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@covidtoolbox.bsky.social
The Covid Toolbox is where you can find a range of content, such as articles, selected links, helpful graphics, and informative videos. Covid is not over. Visit our website https://covidtoolbox.com where new articles are posted regularly.
@dalupton.bsky.social
Prof, Arts, Design & Architecture, UNSW Sydney, Australia. Clean air/COVID safety advocate/activist/researcher. Other health and digital media research too. Personal blog: https://simplysociology.wordpress.com/
@cvcev.bsky.social
𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 #FBCV (follow back CV) and JOIN us on FB 📸cv_cev ❌️@cv_cev www.clinicallyvulnerable.org
@drjoepajak.bsky.social
PhD⚛️physical chemistry: colloid & interface science 🌬️air entrainment. Public governor, NHS Foundation Trust Hospital. Previously director of education, UK children's charity. https://mstdn.science/@JoePajak https://petition.parliament.uk/petitions/701396
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org
@weselymd.bsky.social
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
@lisamccorkell.bsky.social
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
@francesryan.bsky.social
Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled. E: frances.ryan.freelance@guardian.co.uk
@nisreenalwan.bsky.social
Professor of Public Health. Southampton, UK. Citizen of the world but also proud immigrant☀️ Posts are my own personal opinions not those of any organisation. Reposts are not necessarily endorsements. Anti-war, anti-discrimination, pro-equity, pro-feminism.
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@drericding.bsky.social
Public health warnings & health policy. Epidemiologist & health economist. Chair and Faculty at NECSI. Former 16 years at Harvard. DC & Virginia. Bio & contact: necsi.edu/eric-feigl-ding A story: bit.ly/raisealarm 📝: drericding.substack.com/subscribe
@trishgreenhalgh.bsky.social
Prof of Primary Care Health Sciences, Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
@chrischirp.bsky.social
Prof Operational Research , @UCL_CORU, passionate about health care, women in STEMs, defending liberal democracy (!). Member of @independentsage, posts personal.
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@luckytran.com
Public Health, Climate Justice, and Science Communication. Bylines in the Guardian, Washington Post, and more. WHO Fides member. Grist 50 Fixer. Opinions my own and do not reflect those of my employer. http://linktr.ee/luckytran
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666