Sjogrens Warriors
Sjogrens patients, advocates, & researchers interested in news about Sjogrenss disease, POTS/dysautonomia, chronic illness. Also a place for mutual support
Created by
@sjpopkin.bsky.social
@4spooniesupport.bsky.social
#cerebralpalsy warrior, #cat mom, #chronicallyill, #trauma survivor, #stoner, #disabled, #mentalhealth advocate, standing up for #abuse survivors and sharing my story since 2016. I'm nothing special. I'm just me #spoonie
@jll-in-ct.bsky.social
Retired, progressive, dog lover, gym rat, humanist, grandmother. Also way too outspoken -- I've been told.
@theresep.bsky.social
@mennonitemom.bsky.social
Follower of Jesus, Cranky Old Broad, Mennonite mom&wife, lover of books, world, peo, poetry & art. Disabled Spoonie🥄(MCTD, RA, Sjogrens, PH) Fierce Mama Bear 🏳️🌈 of lesbian daughter (32) and pan & autistic son(27) 🖤🤎❤️🧡💛💚💙💜
@ceciluki.bsky.social
Española learning and sharing about Sjögren'sD. Con NeuroSjögren desde 2023
@brunellalongo.bsky.social
I ask questions on #science, #healthcare, #technologies. Between flare-ups I'm writing my 9th book "The Sicca Messenger" on Sjögren's and other #autoimmunediseases #healthliteracy and #knowledge management. Semi-retired technologist. Freelance.
@sloroll.bsky.social
Too old and too tired to put up with bullshit. Reader, Sjogren's/Fibromyalgia Warrior, Dog/Cat Foster Mom, #FreeMomHugs🌈
@arianek.bsky.social
Co-founder Textillia.com! ✂️💕• SFU Geog • Public health/urban planning/open source nerd • Sick AF #Sjogrens #Dysautonomia #IVIG #IatrogenicIllness • ♿️🌈🇦🇲🦆🐶🖖📚💌🌿 • Vancouver • she/her • C4C🇨🇦 FB: https://www.facebook.com/groups/care4complexcanada/
@jancmrn.bsky.social
RN learning to live well with RA, EDS, HaT, dysautonomia, CKD, Sjogren’s, and vasculitis.
@sjogrensmom333.bsky.social
I'm new to Bluesky...be patient with me. I'm a patient advocate, co-group leader of a support group. Mom and grandma, pet mom. #Adoptdontshop #spayneuter #sjogrens #invisibleillnesses
@arthritisdietitian.bsky.social
Arthritis Dietitian | Living with Sjogren's/RA | Speaker | Blogger | Views my own 🇨🇴🇨🇦
@susanmurphy113.bsky.social
Lived in NYC for 35 years, Maine for 7 years, now on my homestead in Salisbury, VT. Old but not grumpy. Brit Pop fan, Oasis, Blur, Muse. Sjogren's warrior, patient advocate, animal lover. X trolls will be deleted.
@heliaa.bsky.social
she/her Programmer, biennial author, FFXIV player, reads lots of books I like cats. I have 4 cats. I also like dogs, horses, mice, rats, bats, etc. Get the pic? I like animals. Lots of animal reposts because spread the happy.
@neurosjogrens.bsky.social
Advocate for NeuroSjogrens & assorted other chronic illnesses. Posts articles & re-posts items this acct is interested in. Advocacy rather than advice.
@sarahschafermd.bsky.social
Medical educator, MD-patient. I debunk Sjögrens myths. www.sjogrensadvocate.com - I show people with Sjogren's how to use credible resources to advocate for timely diagnosis and comprehensive care for this complex, multisystem disease.
@sjpopkin.bsky.social
Institute Fellow & Co-Director Disability Equity Policy Initiative @UrbanInstitute. Views my own.