A 😎 Long Covid and MECFS Billboards (DM for free merch!)
Billboard campaign/fundraiser here
https://www.notrecovereduk.org
@rachelhext.bsky.social
#LongCovid October 2020, NHS whistleblower , Zero Lessons Learned, Disabled NHS Staff. Co- Founder Keyworker Petition UK, Long Covid Advocate, Views are my own https://www.change.org/p/create-a-compensation-pension-scheme-for-key-workers-with-long-covid
@nomedenialism.bsky.social
@ptswithpower.bsky.social
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science 🧐 Patient rights & power dynamics 🦾 I like solving puzzles. #NEISvoid #MedicalGaslighting
@fakedoctorrealdata.bsky.social
Bin wirklich kein Doktor und auch kein Agentur-Account (Humbug-Framing) aber #TeamWissenschaft! Aktuelles zu #PostVacFake #FakeNius und sonstigen Schwurbel ehemals https://xcancel.com/fakedoctorreal1
@mariannehout.bsky.social
Dutch. Bedbound with severe ME. Trying to find my way back to life.
@healingfromlc.bsky.social
@hannajow.bsky.social
Medically retired PT bc decades-long #ME/CFS, #MCAS, #hEDS, #POTS, #IIH, #CPP. Worked w/ ppl like me in a system that refuses to meet our medical needs. 🩺💉History/GINT B.A. b/f PT. #Alaskan born in #SC. 😉 Happiness is #GamecockWBB🏀🏆 #WNBA #Unrivaled ♿️👩🏼🦼➡
@ajay-vermaa.bsky.social
Nature lover from North India. I am not interested 🚫 in crypto / binary / forex / trading / bitcoin / share market etc. 🚫 DM from Onlyfans beggars 🚫 DM from crypto beggars
@eddjones.bsky.social
Disabled dad. I want a more democratic, sustainable, co-operative, equal, healthy, happy & evidence-based world. Help each other to make that happen! https://eduardojones.wordpress.com Brighton, UK
@msmangajojo.bsky.social
Animal lover 🐿🐈⬛🕊🦅 Wears a mask. Not interested in antimaskers, antivaxers or Covid minimisers. Woke as f*** UK #WearAMask FFP2 /FFP3. #MasksinHealthcare #CovidIsAirborne Disabled, Chronic health issues,immunosuppressed ♿️☕️,📚Ancient Egypt, Labour Party 🌹
@gartenfreunddaniel.bsky.social
Team Maske 😷, Team Wissenschaft. Team Impfung 💉. FCK💩fD. NoFdp. Botanik u. Pflanzen. #Maskup #COVIDisAirborne #CleanAir #DieMaskebleibtauf Antifaschist, Berlin
@corandmecfs.bsky.social
I used to be a person, now I’m a ghost, lingering on in the world of the living. ME/CFS since 2011, severe since 2021.
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@ferrygodmother.com
#VR #Rollerskating #event space spotlighting #TouretteSyndrome, #Neurodivergent, #AuDHD, #ADHD, #Autism. Has a #Veterans art gallery & VIP loft. For #businesses, org. #clubs, #community #groups. We are artists, 2d/3d animators, programmers. No Soliciting
@resilienx.bsky.social
Expressive Arts + Trauma Healing + Brain Health + Fascia + Movement + Healthcare + Aging + Faith + Tech + Innovation Pioneer Catalyst Connector (was @HealthcareWen @CATALAIZE on the bird app)
@wearlumia.bsky.social
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
@softgothkitten.bsky.social
She/her, chronically ill, writer. BA degree in Disability Studies Anti-eugenics, pro-masking & clean air. RFK Jr & MAHA hater Free Palestine 🇵🇸 https://healthismandwellness.wordpress.com
@kittywilson.bsky.social
Writer of warm & witty romcoms RNA SoA Beachbum. Spoonie http://amzn.to/2kuqRsb
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org [email protected] Charity reg no 1199120
@panickedfoodie.bsky.social
Scientist | Cornell Alum | Bedbound w/ severe illness | Gamer | #FluidMechanics #HeatTransfer #CovidIsAirborne #MayThurnerSyndrome #NutcrackerSyndrome #Endometriosis Bell: 10-20 TikTok, YT: The Panicked Diaries disabled.social Mastodon server admin
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. [email protected]
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8). No unsolicited advice please!
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@karlaliliana.bsky.social
Part chaplain, part cross-pollinator, part coach, part builder. Multiracial multicultural institution dreamer. Brava pero vulnerable. www.bravaleaders.com
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org [email protected] #LongCOVID
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@ahandvanish.bsky.social
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice