#MEAction Network
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@triciam.bsky.social
Have had ME/CFS since 1994. Waiting for cure so I can get back to living my life. Animal lover.
@lifeaccrdingliz.bsky.social
#chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.
@vanadiumzest.bsky.social
we’re still in a pandemic🍋eugenics leads to fascism🍋LC/ME/MCAS/lupus/endo🍋still with her🍋OG khive🍋always punch nazis
@moriende.bsky.social
24, they/them - hEDS, very severe ME/CFS, MCAS, POTS, all manner of brain things - send me cats and birds. not in the same box, though. I am also known as KookySnell 🦚 this account is COVID-safe rock music and poetry 🇮🇪
@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
@viralpersistence.bsky.social
fund research and clinical trials for infection associated chronic illnesses now, and furthermore provide clean energy-powered hotel cold on demand for free. medicaid, not medicare, for all. aspiring #burquesky member.
@disruptcoalition.bsky.social
United in response to the attack on Section 504. Defending disability rights under threat now & in the future. Join the DISruption. #DISruptors https://protectsection504.carrd.co/
@gvnett.bsky.social
ME/CFS Endurer. Still missing and still trying to send gentle day wishes to all the never well warriors.
@omfcharitymugs.bsky.social
Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵 https://omfcharitymugs.teemill.com
@meactionuk.bsky.social
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
@caringacross.org
A movement of caregivers and care recipients working to better care systems so everyone can live, work, age, and parent with dignity. #CareCantWait
@moiracalifornia.bsky.social
Eco-Friendly Art & Culture from the Sierra Foothills Photography. Dogs. Flowers. Climate. Art. Rage. Divinity in Nature. “Beautiful Things for Catastrophic Times” {pronounced mora}
@maryeilmicdom.bsky.social
Retired solicitor |Sport, history, language, law & humour | Living with and writing about #ME #POTS #IST #Asthma #Dysautonomia | #Celtic 🍀 | #LifeWriting at merrydholl.wordpress.com 🏴
@longcovidmommy.bsky.social
Wife! Mom to 2 beautiful daughters! Former teacher, now Covid Long Hauler and Covid Long Haul Advocate 🩵. Fighting PASC, AxSpA, IST, PMDD, MDD, GAD, POTS, Dysphonia, Lumbar Spondylosis, Dysautonomia, Cervical Radiculopathy, Sacroiliitis, Neuropathy
@unitetofight.bsky.social
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters. #UniteToFight2024 www.youtube.com/@unitetofight2024
@davetuller1.bsky.social
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@racheldl.bsky.social
Disabled artist, writer, and youth advocate. Comics and writing in The Washington Post, The Nib, Disability Visibility. #endyouthhomelessness She/Her Website: https://www.racheldl.com/
@jacquelyngill.bsky.social
Climate, extinction, and biodiversity scientist at UMaine, researching Earth’s past for a better future. Writer and podcaster for the planet. Chaotic good professor. Working to be a good ancestor. She/her. #BiInSci #DisabledInSTEM
@newdisabledsouth.org
Working to achieve liberation and justice for all disabled people in the South.
@jenepgh.bsky.social
Formerly known as PghMedia on other sites. VP of External affairs at 412 Food Rescue/Food Rescue Hero Half of Spielmill (on YT and insta) for boardgame content No n*zis. No t*rfs.
@cambridgegill.bsky.social
Thanks for dropping by! Interests: justice, humour, art, archaeology & architecture, climate crisis & ecology. All this & more, tho grounded by ME/CFS since 1998. Anti bigotry & exploitation, hence moving here. UK based, UK and USA raised. (She/her).
@aapd-disability.bsky.social
AAPD works to increase the political and economic power of people with disabilities and advocates for full civil rights for over 70 million Americans with disabilities. We are a national cross-disability and nonpartisan organization. Get involved: aapd.com
@ptswithpower.bsky.social
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science 🧐 Patient rights & power dynamics 🦾 I like solving puzzles. #NEISvoid #MedicalGaslighting
@rhapsperhaps.bsky.social
✨ Disabled Comfy-Cozy Creator 🥔 House Potato and Bed Burrito ♿ #AuDHD #hEDS #pwME #pwLC 🏳️🌈🏳️⚧️ AroAce Agender 👑 Throne Partner 💚 DC3 Member 🍉 They/Them 🔗 https://rhapsperhaps.carrd.co/ ✉️ rhapsperhaps@gmail.com 2D: RinKira i & h: sugarysmall
@maggieboxey.bsky.social
Author of The 3 Things, Speaker #mecfs #sober #recovery #MOMsky Community• Contemplation• Creativity 🦋living with disabling ♿️ Chronic Illness🦋 🍑Rural GA Progressive🍑 🇺🇸⚓️veteran 🧶🎨📚👩🏻💻📝 *low energy life: please comment or repost for a follow back 🦋
@lizmeactga.bsky.social
Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
@meactionnc.bsky.social
Support and advocacy group for people with ME/CFS and Long Covid, their allies, caregivers, and practitioners.
@massmecfs.bsky.social
To improve the lives of all people affected by ME/CFS, Fibromyalgia, Long COVID, and other Infection-Associated Chronic Conditions and Illnesses (IACCIs) through advancing awareness, care, treatment and research. https://www.massmecfs.org
@madelinenerd.bsky.social
IamMadelinePOD #podcast: https://anchor.fm/i-am-madeline #myalgicE #disability Fb/inst/X @madelinenerdfighter LATEST https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/ WORLDWIDE PETITION pls sign https://bit.ly/Marcia_petition
@carriekellenberger.bsky.social
🎨 DISABLED ARTIST 🌴 https://linktr.ee/myseveralworlds 🦋 MySeveralWorlds.com 👩🦼 #DisabilityAdvocate ✒️ Chronically Fabulous Author - I write about #SpA #PsA #Arthritis #fibromyalgia #MECFS #APS #ChronicIllness #ChronicPain
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@lurieinstitute.bsky.social
We lead research at Brandeis University to improve the well-being of people with disabilities & their families. linktr.ee/lurieinstitute
@sweetsciencewriter.bsky.social
Science journalist, with bylines in Nature, National Geographic, the New York Times, the Washington Post and the Houston Chronicle. I cover a mixture of health topics, with a focus on conditions such as autism, ADHD, ME/CFS, POTS and Long COVID.
@francesryan.bsky.social
Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled. E: frances.ryan.freelance@guardian.co.uk
@caseydoherty.bsky.social
Disability policy analyst @americanprogress.bsky.social by day, disability studies PhD student by night, disabled activist by later night. ME/Long Covid/Lyme/MCAS/etc. Cat mom! she/her
@murtoz.bsky.social
🇳🇱/🏴. He/Him. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@jefflubellc19.bsky.social
I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
@dsavannah.bsky.social
~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014 ~ #LiveInBedButIAintDead ~ When brain & body behave: Chronic Illness Advocate ~ Discworldian, Browncoat ~🐱(x3)🐢💐🌻🌷📸📚🖼️ ~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷 https://linktr.ee/thedsavannah
@medidier.bsky.social
Severe ME after covid infection Feb'22. Young dad. Bedbound. 🛌 #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
@ahimsa-pdx.bsky.social
Vegetarian, book lover📚 #MEcfs, #Dysautonomia since 1990 #PwME #POTS ♿️ She/Her Mastodon account = https://disabled.social/@ahimsa_pdx Profile photo: Old photo of my cat, tabby with white chest & paws Banner: Green trees in a park
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@sherbert-lemon.bsky.social
Avid reader, occasional reviewer. Beginner genealogist & dysgu Cymraeg. Retired by moderate-severe ME/CFS & chronic migraine. Managed by Rowan. She/her.