m.e_and_sophs_
17 | ME since ‘20
Advocacy 💙
You are not alone 🫂
#severeME #millionsmissing
Insta - m.e_and_sophs_
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@robbielane87.bsky.social
Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD.. Trying to get by one day at a time 🖤
@piengreta.bsky.social
a small chronically ill creature (moderate-severe ME/CFS) from finland, known as piengreta.
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@medays.bsky.social
(She/her) ME, hEDS, adeno ~ surviving being housebound with birds, books, embroidery ~ still masking 😷 #pwME #MillionsMissing
@alivago.bsky.social
Lover of woods and mountains, botany and dragons, children’s books and much more. 🌳⛰️🥾🦊🌈🧑🏻🏭🪁 Stuck in an uncooperative body, severe Long Covid/ME. #LongCOVID #mecfs #pwme 🇵🇸 🇱🇧
@alexisme.bsky.social
Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health Most active on IG stories: https://www.instagram.com/alexis___me/
@lauraillustrated.bsky.social
illustrator & motion designer, memes, disability justice and climate | she/her | https://laurabeckman.com
@carlywelton.bsky.social
She/her. Mostly talking about life housebound by chronic illness (when I have enough energy to). #pwME
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@sinistralscribe.bsky.social
Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers. 💙 #MECFS & Co. | 🎭 GM at @operamariposa.bsky.social 📍MST Territories (Greater Vancouver, BC) https://stephanieko.carrd.co
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@mecfsmama.bsky.social
Just a Mama navigating parenting with a chronic illness. Mild ME/CFS & IST Aotearoa, New Zealand.
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@spoonfuloflindsay.bsky.social
chronic illness life & disability lit 📚🪴🌊🐕 honoring the hard & finding joy along the way migraine | SF neuropathy | POTS | ME/CFS | long COVID | MCAS | ambulatory ♿
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@elianachristy.bsky.social
@anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@quellaisstilldizzy.bsky.social
Chronic Illnese and Disability education and advocacy. 🐙 Severe MECFS warrior with Long Covid, Dysautonomia (POTs and low blood volume), Fibromyalgia, Endometriosis, Depression.🐙 Medical researcher + Medschool Dropout 🐙
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app