AllisonHaynes
Advocate for Myalgic Encephalomyelitis per ME-ICC and Ramsay/Dowsett/Hyde et al.
Severe M.E. since 1989.
Supporter of meadvocacy.org and nightingale.ca
@sinistralscribe.bsky.social
Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers. 💙 #MECFS et al. | 🎭 GM at @operamariposa.bsky.social 📍MST Territories (Greater Vancouver, BC) https://stephanieko.carrd.co
@gvnett.bsky.social
ME/CFS Endurer. Still missing and still trying to send gentle day wishes to all the never well warriors.
@mckatt.bsky.social
Long Covid ME/CFS/PEM - Severe - Living in a dystopian world is strange. Humans are crazy. Slava Ukraini.
@profkharrison.bsky.social
Climate policy researcher, UBC Professor, chemical engineer, political scientist, feminist, cyclist. Persistently hopeful, but losing patience!
@sophiehharrison.bsky.social
UBC law student, living with #LongCovid #MECFS. Youth climate movement alum. She/her. Vancouver B.C. - MST territory.
@lilnic000.bsky.social
@jasemurphy.bsky.social
Author of one(1) book. Journalist. Economist. #rstats #mecfs #ausecon. May be found walking his dog in Melbourne, Australia.
@meverenigingnl.bsky.social
De nationale patiëntenvereniging voor myalgische encefalomyelitis. www.mevereniging.nl
@sorgenfri.bsky.social
Mest serier, film, bøker. The cathegory is… ** Hi Bob! ** We dug coal together ** Everybody counts or nobody counts ** Welcome to the 21st! ** What's next?
@jaseygalore.bsky.social
Disabled by #MyalgicEncephalomyeltis ° Ambulatory wheelchair user ° Nazi lives don't matter ° Science is real ° #AuDHD ° Free Palestine ° Dutton can kiss my dot ° #doomer in #Lutruwita I mostly repost things because my mind isn't sharp and lively anymore
@dom2023.bsky.social
ME since 2016. Have been working on microbiome since 2021. Finally got a test in 2023 with symptoms at 90% (first time in five years). Discovered four biomarkers in my sample correlated with 90%. Hope to maintain 90% in 2023/4.
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@0slersweb.bsky.social
Hillary Johnson, author of The Why: The Historic ME/CFS call to Arms. 92 pp. Audio, Ebook + paperback at Amazon. Untold morbidity, unspeakable suffering, a pandemic ignored. A case history of what went wrong. "Indispensable." "Jaw-dropping."
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@tapanuiflu.bsky.social
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand
@canucksafari.bsky.social
@dxrevisionwatch.bsky.social
Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@joanmcparlandmbe.bsky.social
1999 - Sudden virally-induced onset #MyalgicEncephalomyelitis 2011 - Founded Hope 4 ME & Fibro Northern Ireland charity Acting as Voluntary Co-ordinator, driven by passion for truth 13 years campaigning for specialist #ME service in N.I. Remain hopeful!
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@amymclaughlin.bsky.social
Painter. Lover of nature and art. Happiest outdoors or in a museum. Believes in democracy. Human and animal rights. The sovereignty of good. Deep blue. PwME since 1987. No DMS, please.
@cornellmecfs.bsky.social
Collaborative #research center based at Cornell directed by Dr. Maureen Hanson encompassing a variety of projects on #MECFS. Visit our website below for more info.
@alenyikov.bsky.social
Writer. Author of the prize winning, "Ivan and Misha" and "Sorrow's Drive". Moderator of the 18th St Writing Group. Former clinical psychologist. Disabled with Myalgic Encephalomyelitis. Vote Blue. Support Ukraine.
@bazzowie.bsky.social
Journeying w ME(myalgic encephalomyelitis) & assrtd illnesses frm unknown virus in 2000. 🇺🇸Learning, growing. Diving into stoicism. Here for connection, education, community. Hoping to provide a little light in this world. Covid competent. She/her.
@valerieeliotsmith.bsky.social
Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com Based in London, UK
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]